The Multiple Myeloma March:
Ten Years of Community Building
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The Chairman's Perspective
By Aldo Del Col, Co-founder and Chairman of the Board, Myeloma Canada
“
I am deeply grateful to the local March leaders, coordinators, participants, and donors who through their tireless grassroots efforts have made a tremendously meaningful impact on the lives of people impacted by myeloma, both locally and nationally. By working together, we have shown how we can make myeloma matter!
”
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We’re pleased to announce registration for the 10
th
annual Multiple Myeloma March is now open and to celebrate our anniversary year and growing community, we invite you to take part in our Full Bloom kick-off campaign!
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Awareness Day at the
Quebec National Assembly
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Maryse Bouchard, co-founders of the Défi cyclo-myélome, Danny Wade, Patient advocates, Diane Lamarre Member for Taillon, Parti Québécois, Francine Ducas, co-founders of the Défi cyclo-myélome and
Patient advocates
, Dr Richard LeBlanc, Myeloma Canada Chair Holder, Maisonneuve-Rosemont Hospital, Dave Turcotte, Member for Saint-Jean, Parti Québécois and Martine Elias, Director Access, Advocacy and Community Relations at Myeloma Canada.
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On April 11th Myeloma Canada was pleased to participate in an Awareness Day at the Quebec National Assembly, organized by Francine Ducas and Maryse Bouchard, co-founders of the Défi cyclo-myélome, and the Maisonneuve-Rosemont Hospital, represented by Dr. Richard LeBlanc, chair holder, Myeloma Canada Research Chair. Patient advocates Danny Wade and Mélanie
St-Jacques
also joined our team and spoke on behalf of myeloma patients living in Quebec.
Throughout the day, we were able to successfully shed some light on myeloma, a cancer that affects hundreds of Quebecers, and express our need for gaining access to effective treatments and investing in research and clinical trials in Quebec.
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We also had the privilege to exchange briefly with Dr. Gaétan Barrette, Minister of Health, who represents the electoral district of La Pinière as a member of the Quebec Liberal Party. The Liberal Party was very attentive and responsive to our needs and as a result, it sparked future discussions with members of this party to determine how Myeloma Canada can collaborate with the government to improve the lives of those impacted by myeloma.
Meetings were also held with Mr. Jean-François Lisée, Mrs. Diane Lamarre, Mr. Dave Turcotte, representatives of the Parti Québécois (PQ), as well as Mr. François Paradis and Mrs. Claire Samson, representatives of the Coalition Avenir Québec (CAQ).
We would like to thank our partners who collaborated in this worthwhile event, demonstrating that by working together, we can make myeloma matter.
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News in Myeloma Research in Canada
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Updates on MCRN Recruiting Clinical Trials
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MCRN 004 - The LAURENTIANS Trial
Now actively recruiting in 10 centres across Canada with 28 patients already enrolled.
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MCRN 005 – The BOSTON Trial
Find out more about participating Canadian sites and this novel therapy that is showing encouraging results to date.
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Thanks to You, We Are All Making a Difference!
Making Myeloma Matter
Kyprolis (Carfilzomib) is Now Covered
in British Columbia and Manitoba
In March 2017 during Myeloma Awareness Month, Myeloma Canada launched the Myeloma Advocacy Program (MAP). This impactful program pushed all boundaries of traditional advocacy by involving the community at large to act for a common cause.
We would like to thank each one of you who participated in the MAP campaign to date and would like to encourage those living in other provinces to continue writing letters to get Kyprolis funded in your province.
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Selinexor Receives Fast Track Designation from FDA
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Selinexor (KPT-330) was recently granted a Fast Track designation by the US Food & Drug Administration (FDA) for the treatment of patients with multiple myeloma who have received at least 3 prior lines of therapy, according to Karyopharm Therapeutics, the manufacturer of the oral SINE (selective inhibitor of nuclear export) compound.
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Myeloma Canada Welcomes Jessy Ranger to the Team!
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We are pleased to announce that as of March 19, 2018, Myeloma Canada has added a new member to its team; Jessy Ranger, communications coordinator. She will handle our communication needs, participating in setting up our awareness and education programs, scientific programs, and advocacy initiatives. With over 10 years of corporate and community communications experience, working for non-for-profit organizations and Quebec's health-care system, her understanding of the challenges that patient organizations face is a valuable asset for our organization. We welcome her to the team! She can be reached at
jranger@myeloma.ca
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Spotlight on Christine Hodges: Being My Own Advocate
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My Experience with My Diagnosis, Stem Cell Transplant and How My Family Dealt with It
“I need to find out as much as I can, so my doctor knows that I am my own best advocate and I am ready to participate in another trial”
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New Myeloma Canada
Educational Webinar
How to Better Follow Your Treatment Schedule
Wednesday, April 25, 2018
7:00 pm ET
Presented by
Karen MacCurdy Thompson, BSc. Pharm, BCOP
Oncology Pharmacist,
The Moncton Hospital
Moncton, New Brunswick
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Myeloma Canada National Conference
May 12-13
Radisson Hotel Vancouver Airport,
Richmond, BC
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An Opportunity to Learn from Leading Canadian Experts!
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Dr Chris Venner
Hematologist/Oncologist
Cross Cancer Institute
University of Alberta
Edmonton, AB
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Maintenance Therapy
Sunday, May 13 at 11:00 AM
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7
th
Annual Trevor Olfert Concert
April 26-27
Winnipeg, MB
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The concert is an opportunity for 40 talented musicians to donate their time to support worthy causes through music. Last year, over 750 people attended the concerts and it was a great opportunity to connect with and support those who are impacted by myeloma in Manitoba. Trevor has a personal connection to the cause and is grateful for your support and generosity again this year.
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To learn more about the concert series or to purchase tickets,
click here
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Myeloma Canada Golf Tournament
May 31, 2018
Montreal, QC
Just one month left to purchase your golf package for the Myeloma Canada Charity Golf Classic held at a private golf club just 15 minutes from Montreal! Dinner-only packages are also available.
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5
th
Annual Lynn Rousseau Memorial Golf Tournament
June 2, 2018
Essex, ON
Benefitting Myeloma Canada, join the Rousseau family for a fun day of golf in Essex, Ontario, followed by a steak or ribs dinner at the Knights of Columbus Hall.
For more information or to register, contact, Dennis, Joe or Jeff Rousseau
519-726-5201
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I
n the Community
Spring is in the air and the Canadian myeloma community has been keeping busy this month!
- InfoSessions: Gatineau, Sudbury and Moncton
- Bid Myeloma Goodbye in Thunder Bay raised $1,500
- Beat A Drum for Multiple Myeloma
- Noémi Labelle’s Boston Marathon Challenge
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