Welcome to the January 2019 edition of our nbmtLINK E-nnouncement
Happy New Year!
We strive to educate, inspire and offer support and hope to patients, caregivers and health care professionals navigating the bone marrow transplant journey.
It is truly our honor. Visit our website often for recorded series, blogs sure to inspire and much more.



Meet Guest Blogger Mike Ansley





Embracing the SUCK!


You are going to love this incredible perspective by Mike Ansley.

Remember this one thing: from the very moment of diagnosis you are a “Cancer Survivor.” As a patient you have a choice about how you will handle the disease. There is a fair amount of research that shows maintaining a positive attitude improves your overall outcome. Keeping a positive attitude throughout treatment (“EMBRACING THE SUCK”) prevents cancer from winning and enables you to enjoy your life. “In times of crisis some run towards the fight!”
Click above to read more from Mike.

New LLS Patient Financial Assistance Program

As the world’s largest nonprofit dedicated to fighting blood cancer, The Leukemia & Lymphoma Society (LLS) is committed to patients and caregivers throughout their cancer experience, helping them navigate their treatments and access quality and coordinated care.

We often hear from patients and families about the incredibly challenging financial burdens that cancer brings.

We are pleased to inform you about the opening of our LLS Patient Aid Program, which provides financial assistance to blood cancer patients in active treatment. Eligible patients will receive a one-time $100 stipend to help offset expenses. There are no income criteria to qualify for this program . To learn more about LLS Patient Aid, please visit:  www.LLS.org/PatientAid .

How to Apply:  
You may either refer your patients and their caregivers to apply, or you can apply on their behalf:
  • Online: Online portal (24/7, Available in English only)
  • By Phone: 866-446-7377 (Monday to Friday, 8:30 a.m. to 5:00 p.m. ET)

LLS is the leading source of free blood cancer information, education and support for patients, survivors, caregivers, families and healthcare professionals. Visit  LLS.ORG  or connect with LLS Information Specialists at (800) 955-4572 to learn more about our robust education and support services, including personalized clinical-trial navigation, disease booklets, CME/CE programs and more.

Survey Opportunity

Your time will make a difference for parents of children with cancer.

Eastern MI University's
Department of Psychology 
seeks caregivers of children with cancer to participate in an online study,

“Social Media Use in Parents of Children with Cancer”

Who can participate? 
  • Individuals over the age of 18
  • A parent or caregiver of a child who has a cancer diagnosis and is either currently in remission or receiving treatment

What is involved?  Completing an online survey which will take 30-45 minutes.

Answer questions about: 

  • your social support system, your social media use, and how satisfied you are with the support you receive from others 
  • your child’s diagnosis and treatment status
  • basic demographics about you and your child 

What are the benefits?

  • Although you may not benefit personally from participating in this study, your responses will help us to provide better support to other families coping with pediatric cancer in the future

To take this survey please follow this link:

For more information, please contact Kristina Brookshire-Gay at Kbrook35@emich.edu
Principal Investigator: Kristina Brookshire-Gay, M.A.
Faculty Advisor :  Dr. Michelle Byrd, Ph.D

How We Help Others!
We are a phone call away for patients and their loved ones. From one on one peer support to scheduled call series and webinars, we are ready to ease your burden.
Patients, caregivers and health care professionals are amongst those we aim to help through our valued resource books, programs and one on one calls.
We simply cannot do it without the support of corporations, foundations and individuals willing to make a difference in the lives of others.
PLEASE NOTE OUR NEW ADDRESS!
nbmtLINK
2900 Union Lake Rd. Suite 213
Commerce, MI 48382
800-LINK-BMT
nbmtlink.org

We Invite You to Become an nbmtLINK Link Partner!
Link Partners include cancer centers and allied partners who annually support our mission of providing psychosocial support to patients, caregivers, their families and health care professionals dedicated to helping people navigate a bone marrow transplant. If you would like to learn more about the many benefits (books, programs, hyperlink on our website, bookmark inclusion) to being a Link Partner, please do not hesitate to contact us at (248) 358-1886. Want a free bookmark which lists our many Link Partners? Let us know and we will send you one!

 American Society for Blood & Marrow Transplantation (ASBMT)
Barbara Ann Karmanos Cancer Center
Be The Match
Blood Marrow Transplant Program at Northside Hospital
Blood & Marrow Transplant Program, The Sidney Kimmel Cancer Center at Thomas Jefferson University
Center for International Blood & Marrow Transplant Research (CIBMTR)
City of Hope 
Dana-Farber/Brigham and Women's Cancer Center
DKMS (formerly Delete Blood Cancer)
Duke Adult Blood and Marrow Transplant Program
Froedtert Hospital and the Medical College of Wisconsin
Henry Ford Cancer Institute Bone Marrow Transplant Program
Incyte Corporation
Memorial Sloan Kettering Cancer Center
Meredith A. Cowden Foundation
Nebraska Medicine
Oregon Health & Science University Knight Cancer Institute
Roswell Park Cancer Institute
Seattle Cancer Care Alliance
Siteman Cancer Center at Barnes-Jewish Hospital/Washington University
School of Medicine 
Stem Cell Transplantation and Cellular Therapy Program, John Theurer Cancer Center at Hackensack University Medical Center
Spectrum Health Cancer Center
The Leukemia & Lymphoma Society
University Hospitals Seidman Cancer Center
UPMC CancerCenter
Vanderbilt Ingram Cancer Center
Thank your for being a friend of the nbmtLINK. We simply could not do this without you. If you can support our efforts at this time, we thank you in advance. Every dollar helps, especially year end.

Sincerely,
Peggy Burkhard
Peggy Burkhard
Executive Director
(248) 358-1886
National Bone Marrow Transplant Link