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In this issue:
Less than one month left to comment on federal recommendations for pain care | Senate hearing makes headlines: Let's keep up the momentum | Headache on the Hill brings 160 advocates to Congress | Save the date for the next pediatric pain retreat | "Age is just a number" event rescheduled | and more.
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Less than one month left to comment on federal recommendations for pain care
This is perhaps one of the most important opportunities yet for people with pain to advocate at the federal level.
Read more.
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Senate hearing on pain makes headlines: Let's keep up the momentum
Read news coverage of the Feb. 12 hearing, watch a slideshow, and take part in an action campaign to get more hearings on pain.
Read more.
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Headache on the Hill 2019 brings 160 advocates to Congress
160 headache and migraine disease advocates, including 23 representatives from U.S. Pain, took to Capitol Hill this year.
Read more.
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Save the date for the next pediatric pain retreat
the next Pediatric Pain Warrior weekend retreat will take place May 24-26 at Morgan's Wonderland in San Antonio, TX.
Read more.
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"Age is just a number" webinar rescheduled
A webinar about advocating at every age with writer and activist Katy Brennan has been rescheduled to March 10. It will also take place via Facebook Live instead of GotoWebinar. Read more.
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Pain Warrior of the Month:
Catherine Charrett-Dykes
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Location:
Holtsville, NY
Age: 51
Pain warrior role:
U.S. Pain ambassador since 2014
Pain conditions:
Chronic intractable migraine, Hashimoto's disease, and depression.
Favorite tips for living with chronic pain:
Educate yourself about your conditions. Don't assume that the doctors out there know everything. Learn to advocate for your own health.
Fun fact:
I like to sculpt in clay.
Cat is a leading patient advocate for the migraine and headache disease community. In addition to being a long-time U.S. Pain ambassador, she is President and Founder of the organization Chronic Migraine Awareness. She is incredibly active in fighting for change and is an inspiration to many others. Most recently, Cat was one of the 23 U.S. Pain Foundation representatives who attended Headache on the Hill.
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U.S. Pain in the News
- HHS Pain Draft Report-Have You Commented? National Pain Report.
- Tuesday's a big day for drug pricing and FDA, Politico. Feb. 11.
- Influential Pain Academy to Close Its Doors, National Pain Report.
- Patient Advocate to U.S. Senate Panel About Chronic Pain, National Pain Report.
- Woman in cot testifies to Congress on opioids, chronic pain management, NBC News, Feb. 12.
- Senators focus on marijuana's role in combatting the opioid crisis, Marijuana Moment, Feb. 12.
- Opioid crackdown said to leave out pain patients, McClatchy DC Bureau, Feb. 12.
- Pain patients to Congress: CDC's Opioid Guideline is Hurting Us, MedPage Today, Feb. 13.
- Patient advocate tells U.S. Senate Committee "Pain conversation is long overdue," National Pain Report.
- Legislators back step therapy bill, Sun Prairie Star, Feb. 13.
- Woman Testifies About Chronic Pain, Opioids From Cot, The Fix, Feb. 15.
- D.C. Week: Revision in CDC Opioid Guidelines Demanded, MedPage Today, Feb. 15.
- A conversation about pain management is long overdue, ProHealth.com, Feb. 20.
- U.S. Pain Foundation patient turned advocate speaks to Senate, Practical Pain Management, Feb. 21.
- HHS Inter-Agency Task Force Urges New Ways to Limit Opioid Use and Addiction, Practical Pain Management, Feb. 21.
- 60 Minutes Segment on Opioids Draws Ire of Chronic Pain Community, National Pain Report.
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Upcoming Events
- March 5: Support group in Tucson, AZ (Pascua Yaqui Tribe); held weekly on Tuesdays
- March 6: Support group in Tucson, AZ (Natural Healing Care Center)
- March 7: Afternoon Pain Connection Live call
- March 8: Support group in Arlington, MA
- March 10: "Age is just a number" Facebook Live event
- March 11: Support group in Rockville, MD
- March 12: Support groups in Concord, NH, and Detroit, MI
- March 13: Support group in Thousand Oaks, CA
- March 14: Evening Pain Connection Live call
- March 16-17: Support group leader training in San Francisco, CA
- March 19: "Navigating employment challenges and when to apply for Social Security Disability" webinar
- March 20: Support groups in Middletown, CT
- March 30: Saturday Pain Connection Live call
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