FACTS N' FACTORS
APRIL 2018
World Hemophilia Day Banner Image
April 17th Marks the 28th WFH World Hemophilia Day
Kelly Waters | VHF Executive Director

The World Federation of Hemophilia (WFH) is an international nonprofit organization dedicated to improving the lives of people with hemophilia and other genetic bleeding disorders. The WFH was established by Frank Schnabel in 1963 and has member organizations in over 100 countries with official recognition from the World Health Organization.
Science Museum of VA
Light it Up Red!
We are pleased to announce that the Science Museum of Virginia , located in Richmond, will be lit red in honor of World Hemophilia Day the evening of Tuesday, April 17th!

Come show your support: Join VHF for a group photo in front of the museum, email Heather@vahemophilia.org if you are interested.
Hope Blooms Banner Image
Hope Blooms
Join us for Hope Blooms, our signature spring fundraiser! This afternoon of celebration and inspiration will be held at the beautiful Boathouse at Rockett's Landing in Richmond on Sunday, April 22nd . Attendees will enjoy delicious food, drinks, an amazing live and silent auction, fun games and raffles.

Auction Highlights Include: Race Tickets to RIR, Diamonds Direct Diamond Floral Pendant Necklace, Orlando Fun Fest! One Week Stay in Kitty Hawk , Chef's In-Home Catered Dinner, Elton John Concert Tickets, Brewery Tour Extravaganza and more!

Tickets are going fast so be sure to buy yours today! $40 for a Single and $75 for a Couple. This event is open to those age 21 and older.
VHF Annual Meeting Group Image
Annual Education Meeting
Join us in Newport News, June 8 - 9 at the Marriott at City Center for VHF’s Annual Education Meeting! This event brings together the inherited bleeding disorder community to share information on a wide variety of topics, from the basics of diagnosis to the most relevant developments in treatment. It is a great opportunity for networking and support for individuals and families.  
Upcoming Events
April
11:00 am - 1:00 pm at Nauticus
THIS EVENT IS NOW FULL. Email campisgood@campholidaytrails.org to be placed on the waiting list.

May
May 1 - APPLICATION DUE: Teen/Young Adult Scholarship to Attend NHF Annual Meeting This scholarship is for a qualified individual, ages 16 to 24, to attend the NHF Annual Meeting in Orlando, FL October 11-13, 2018.
6:30 pm - 8:30 pm at Maggiano’s Short Pump Town Center
10:30 am - 1:30 pm at Maggie McFly’s and Build-A-Bear
4:15 pm - 9:00 pm at Harbor Park Hits at the Park Restaurant
6:30 pm - 8:30 pm at Vito’s Italian Kitchen
Novo Nordisk Rebinyn Ad
March is Now BD Awareness Month in VA!
March is Now Bleeding Disorders Awareness Month in Virginia!
Becky Bowers-Lanier | VHF and HACA Advocacy Consultant

On the night of her election, Del. Dawn Adams agreed to patron our resolution, her first piece of legislation as a delegate! She also sought co-patrons in Delegates Patrick Hope,Debra Rodman, and Kathy Tran building a broad geographic range of support. HJR 16 was born! The resolution passed both houses of the General Assembly with unanimous votes, and beginning in March 2019, Virginia will designate March officially as Bleeding Disorders Month.
Bleeding Disorders Awareness Month Collage
Bleeding Disorders Month Wrap-Up
Megan Schowengerdt | VHF Development Director

March was an incredible month here at VHF—full of activities to spread awareness, raise funds for our mission, and provide tons of education and social activities for our constituents. Here are just a few highlights:
Quinn Nowlan and Family at Community Event
Event Wrap-Up: Educational Lunch and Community Event Marvel Universe Live!
Quinn Nowlan | VHF Member

The Virginia Hemophilia Foundation’s (VHF) event to see the Marvel Universe Live show was a great success. The day started with a scrumptious lunch and lecture “My Factor My Body” with guest speaker, Jean Marandola. She was very engaging with the kids and parents alike, so the lunch proved to be a great success.
Don and Beth Smith at Adult Retreat
Event Wrap-Up: Adult Retreat
Don Smith | VHF Member

Beth and I were fortunate to be able to attend the VHF Adult Retreat held March 24 - 25 in Virginia Beach. The first speaker on Saturday was Georgia Panopoulos, PhD, LP who presented wonderful information on pain, anxiety, and depression. So much good dialogue occurred that she altered her focus to the needs of those present. The next "session" was an hour of adaptive yoga which was challenging but also relaxing.
HTC Investigators Look at UDC Data on Females with Bleeding Disorders 
The Hemophilia Treatment Centers (HTCs) Network Investigators, a group of researchers from several U.S. HTCs, recently published a study on disparities associated with bleeding symptoms, age at diagnosis and provider interventions for females with bleeding disorders. Females living with an undiagnosed bleeding disorder are unwittingly foregoing the care and resources that can have real world implication for their quality of life, including appropriate treatment, education and psychosocial support.