Raising awareness of those most severely affected within our community
Today is Rare Disease Day – an important day for those living with homozygous familial hypercholesterolemia (HoFH). HoFH is the rare and most severe form of the otherwise common familial hypercholesterolemia, affecting 1 in 300,000 people worldwide. HoFH can lead to significantly accelerated heart disease.
HoFH is life-threatening. Early diagnosis and treatment of HoFH are critical. Serious heart valve narrowing can cause heart attacks in people under the age of 10! This is one of the reasons the FH Foundation is embarking on an exciting journey to accelerate the diagnosis of HoFH through our FIND FH program.
Our HoFH Community is growing! A few months ago we hosted the first-ever HoFH Community Forum that brought together both adults and children living with HoFH. Over 30 individuals with HoFH and family members joined experts and the FH Foundation team to learn, share and support each other. Our closed HoFH Facebook group provides a safe and private place for those living with HoFH and their caregivers to connect.
We are grateful to the FH Advocates for Awareness who appeared on Capitol Hill this week to raise awareness of HoFH as part of #RareDiseaseWeek. 
We can each take our part by sharing one of several resources to increase awareness of #HoFH.
Raise awareness of HoFH by sharing this video! Tag #HoFH and #RareDiseaseDay

Educate others through our HoFH infographic. Share with your community.

Read frequent blogs by community member and FH Advocate for Awareness, Alina Wilson.

Connect with others through our private HoFH Facebook discussion group.

Join us in our work: Your tax-deductible financial contribution will help strengthen the FH Foundation community of resources for greater impact.