Care Coordination Infographic, Family Surveys & More!

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Infographic: Care Coordination for CYSHCN

The Catalyst Center has created a one-page infographic illustrating important elements of care coordination for children and youth with special health care needs (CYSHCN). This infographic provides an overview of what care coordination can look like and why it's crucial for CYSHCN.

This is part of a series of infographics exploring key focus areas in the world of health care financing and coverage for CYSHCN. These one-pagers are a visually appealing and easy way to share information about the system of care for CYSHCN with stakeholders. Resources for further exploration about care coordination for CYSHCN are listed at the bottom of the infographic.

View the Infographic

We Are Hiring!

Job Opening: Catalyst Center Senior Program Manager

The BU School of Social Work is looking for a full-time Senior Program Manager to work in the Center for Innovation in Social Work and Health on The Catalyst Center project. Under the direction of the Project PI and using the annual work-plan as a guide, the Senior Program Manager ensures achievement of major goals and objectives within the scope and time frame of the projects through day-to-day administration of and direction for the project, as well as coordination of subcontractor's technical assistance training and coaching to state teams. This person has four core responsibilities: 1) day-to-day coordination of the project team including staff and subcontractors, 2) supports and monitors subcontractor progress and performance, 3) directs on-going assessment and project evaluation and 4) coordinate with project partners to develop and deliver technical assistance and training. This person will be expected to travel within the United States.

Apply Here

News you can use...

American Academy Of Pediatrics Reaffirms Care Coordination Policy Statement And Offers Implementation Resource For Pediatric Clinicians

The American Academy of Pediatrics (AAP) recently reaffirmed its policy statement on care coordination. For pediatric clinicians, care coordination is an important component of the medical home model and has been shown to improve family and provider satisfaction, facilitate a child's access to services, and improve health care outcomes. The policy statement has laid the foundation for various care coordination tools and resources developed collaboratively by the National Center for Care Coordination Technical Assistance (NCCCTA) and the National Center for Medical Home Implementation.

These free resources include:

Pediatric Care Coordination Curriculum which demonstrates the principles, key concepts and activities that are necessary to successfully provide care coordination to patients and families
Care coordination Webinar Series that showcases real-world experiences from diverse health care providers with the common goal of capturing the value of care coordination using the Care Coordination Measurement Tool (CCMT) and Adaptation and Implementation Guide
Promising Practices that demonstrate the practical application of care coordination to enhance the care provided to patients/families.

View the Policy Statement

Webinar: A Conversation On Ethical Considerations For A Fair And Effective Health Care System

What ethical considerations should guide the design and evaluation of systems of care for children with medical complexity? There are inevitable trade offs that any complex health care system must confront when attempting to achieve multiple worthy goals, from benefiting individual patients and families and securing fair distribution of benefits across populations, to operating in a manner that is transparent and free from conflicts and interests.

On Wednesday, Oct 24th from 1:00 PM - 2:00 PM (EDT), join the Lucile Packard Foundation for Children's Health for a lively discussion on the article, Ethical Framework for Risk Stratification and Mitigation Programs for Children With Medical Complexity. In this conversation the lead author and experts in the field will share recommendations that help ensure programs for children with medical complexity avoid potentially ethically problematic situations and practices.

Learn More & Register

New Report On Value-Based Payment For Health Care Transition For Pediatric And Adult Health Systems

Pediatric-to-adult transitional care is the subject of increased national attention as evidence mounts that structured processes to ensure a planned and coordinated transition from pediatric to adult care are seldom in place in the US. Without a structured process, evaluation studies find poorer health outcomes, consumer dissatisfaction and worry, and increased emergency room and hospital costs. Data from the 2016 National Survey of Children's Health reveal that 85% of youth with and without chronic conditions have not received guidance about HCT from their health care providers.

A major barrier impeding adoption of recommended transition services is lack of payment incentives for both pediatric and adult clinicians. To address this gap, the Lucile Packard Foundation for Children's Health funded The National Alliance to Advance Adolescent Health to convene a multidisciplinary group of stakeholders to develop recommendations for pediatric-to-adult transition value-based payment (VBP) strategies and quality measures. Results and recommendations from this roundtable meeting are presented in a new report, Recommendations for Value-Based Transition Payment for Pediatric and Adult Health Care Systems. Meg Comeau, Catalyst Center Principal Investigator, was one of the round table participants.

View the Report

Seeking Your Input...

The Council On Medical Student Education In Pediatrics Is Seeking Family Input On What Doctors Should Know In Caring For Children

The Council on Medical Student Education in Pediatrics (COMSEP) is revising its General Pediatric Curriculum. The curriculum includes "The skills, attitudes, and knowledge that every doctor must know and do to safely and compassionately care for children." The Council is asking for input from parents/caregivers who have int eracted with physicians caring for children on what caregivers feel are the crucial components all physicians needs to know to care for children. It will take approximately 5 minute s to complete the survey.

View the Survey

Disaster Preparedness Survey For Parents And Caregivers

Families with children with special health care needs may be at-risk for severe outcomes during disasters, including severe storms and pandemic disease threats. Making sure that families get the information they need, in the right ways, is important.

The Center for Public Health Readiness and Communication at Drexel University's Dornsife School of Public Health is studying the disaster communication needs of families with unique preparedness and communication challenges. The results of this study will be used to develop tools for doctors, medical practices, and for emergency response agencies to improve their ability to communicate with families with special health challenges during emergencies and disasters.

They are conducting a survey of families with children who have health challenges to learn more about the information they need to prepare for and get through emergencies and disasters. It will take no more than 10-15 minutes to complete. Please complete this survey only once. Your responses to this survey will remain private.

If you have questions or concerns, please to contact

Renee Turchi, MD

View the Survey