Welcome to MOCHA's Fall 2018 ENews!
|
|
Have You Checked Out the New MOCHA Website Yet?
Same site. New look! We’ve updated our website to make it more user-friendly and packed it with tons of food allergy content. New to the food allergy community? Visit our What Do I Do Now? page. Looking for helpful links? Check out our Resources page. Be sure to sign up for our ENews!
|
|
|
|
|
We are thrilled that Allergy & Asthma Network, American Partnership for Eosinophilic Disorders, Asthma and Allergy Foundation of America, CURED Foundation, End Allergies Together, Food Allergy & Anaphylaxis Connection Team, Food Allergy Fund, International FPIES Association, the FPIES Foundation, and Red Sneakers for Oakley
are all working together to support the
Teal Pumpkin Project!
The entire Food Allergy Community wins when we ALL work together!
|
|
Tricks to Help You Treat Your Child With Food Allergies This Halloween
When you are a food allergy parent, Halloween involves a lot of advance planning. The thought of it can be overwhelming. To make Halloween safer, less stressful and more fun, Kids With Food Allergies has created some allergy-friendly resources. Check it out below!
|
|
|
|
FARE Chicago Heroes Walk
for Food Allergy
Montrose Harbor - Chicago, IL
Saturday, October 13
Check-In and Activities: 10:00 AM
Walk Starts: 11:30 AM
Food Allergy Heroes Walks exist to recognize the courage and determination of food allergy families, and to empower these everyday heroes to end food allergy fears for good. Through widespread fundraising and walks across the country, thousands of families come together to unite behind their commitment to FARE’s mission and raise funds that will change their children’s lives through research, education, advocacy and broad awareness. The Chicago FARE Food Allergy Heroes Walk is scheduled for Saturday, October 13, 2018 in Montrose Harbor. Please note this is a new location!
|
|
|
|
FARECon Featuring Teen Summit
Washington DC
Friday, November 2 - Sunday, November 4, 2018
This NEW event from FARE combines the best of the Annual Conference with the very popular Teen Summit. As it has for the past 12 years, Teen Summit will offer tweens, teens, young adults and their parents the chance to come together for a weekend of education, support and new friendships. With the addition of new educational programming for parents and adults managing food allergies and registered dietitians serving the food allergy community, this event will serve people in all stages of the food allergy journey.
MOCHA Co-Founders Anne & Denise will also be speakers at this event!
|
|
|
|
FARE 2nd Annual
Connecticut Fall Luncheon
Greenwich, CT
Wednesday, November 7, 2018
Join us for the FARE 2nd Annual Connecticut Spring Luncheon in Greenwich on Wednesday, November 7, 2018 from 11:30 AM to 1:30 PM at the Greenwich Country Club.
|
|
|
|
Food Allergy Ball
New York, NY
Monday, December 3, 2018
Join FARE for an evening to support Food Allergy Research & Education’s mission of bringing LIFE, HEALTH and HOPE to 15 million Americans with food allergies. Guests will enjoy a cocktail reception, unique dinner and a musical performance by Broadway and Recording Star, Jessica Vosk. The evening’s program will recognize our gala honorees for their tenacious work on behalf of those affected by food allergies. In addition, FARE will announce a transformative course of action for the awareness, safety and inclusion of our community.
|
|
|
|
FARE Chicago Spring Luncheon
Chicago, IL
Friday, April 5, 2019
Join us for the FARE Chicago Spring Luncheon in Chicago on Friday, April 5th, 2019 at The Standard Club. Expect more details soon.
|
|
|
|
Mary H. Weiser Food Allergy Center Luncheon
West Bloomfield, MI
Tuesday, April 30, 2019
The 5th Annual Mary H. Weiser Food Allergy Center Spring Luncheon will take place on Tuesday, April 30, 2019 at Knollwood Country Club in West Bloomfield, Michigan.
|
|
|
|
FARE New York Spring Luncheon
New York, NY
Thursday, May 9, 2019
Join us for the FARE New York Spring Luncheon in NYC on Thursday, May 9, 2019 at Cipriani 42nd Street. Expect more details soon.
|
|
Newsletters, Webinars, Articles, Books
|
|
NEWS FROM FARE’s CEO:
In October, FARE’s CEO, Lisa Gable, shared the first issue of FARE + Well, a new newsletter that amplifies the voices in our community and provides you with updates on the various ways in which FARE is working for the food allergy community. Here are some of the highlights.
|
|
FARE Patient Registry
Take part in life-changing research! Create a free, confidential profile and join our research studies.
|
|
FARE Clinical Trial Opportunities
With more than 100 clinical trials now available, FARE launched the Clinical Trial
Finder. This user-friendly interface makes it easier to explore food allergy studies listed by the National Institutes of Health.
|
|
FARE's Centers of Excellence
Check out FARE’s outstanding institutions that are members of the FARE Clinical Network, which is a nationwide network of leading research and clinical care facilities with a common goal of ensuring that patients with food allergies have access to state-of-the-art diagnosis, care, research and clinical trials. There are now 31 centers of excellence located in 17 states!
|
|
|
|
FARE Online Course - Save a Life:
Recognizing and Responding to Anaphylaxis
Food Allergy Research & Education (FARE) is pleased to announce “Save a Life: Recognizing and Responding to Anaphylaxis,” a free online course available on FARE's website! This 15-minute course covers a number of important topics including the definition and causes of anaphylaxis, how to recognize signs of anaphylaxis, what to do if someone is having an anaphylactic reaction, and how to safely use an epinephrine auto-injector. Individuals will take a quiz following the course and may print out a certificate of completion.
|
|
APFED Webinar - featuring MOCHA's Denise Bunning!
MOCHA co-founder, Denise Bunning, recently hosted a webinar in partnership with APFED, "Finding the Perfect College: A Dummies Guide for Parents of Food-Allergic High Schoolers *The EoE Edition." You can view a recording of the webinar on YouTube!
|
|
|
APFED
The American Partnership for Eosinophilic Disorders (APFED) mission is to passionately embrace, support, an improve the lives of patients and families affected by
eosinophilic-associated diseases through education and awareness, research, support, and advocacy.
|
|
Inspire
Inspire connects patients, families, friends, caregivers, and health professionals for health and wellness support. Connect with others who know what you're going through.
|
|
|
|
Come SOAAR With Us!
Science and Outcomes of Allergy and Asthma Research (SOAAR) is a research program based out of Northwestern University Feinberg School of Medicine and Lurie Children’s Hospital of Chicago. Led by Ruchi Gupta, MD, MPH, the SOAAR team aims to find answers and shape policies surrounding food allergy and asthma.
|
|
|
|
Allergic Living Magazine: Aimmune Theraputics
Allergic Living Magazine has recently reported on the successful peanut OIT therapy clinical trial conducted by Aimmune Therapeutics. “For the first time in the history of food allergy, a large-scale, late-stage clinical trial has shown that oral immunotherapy, done with our investigational medicine, AR101, significantly increased the amount of peanut protein that a patient could consume with no more than mild symptoms,” CEO Stephen Dilly said on a call to investors on Feb. 20. At the end of the one-year study, about two-thirds of peanut-allergic patients were able to eat 600 mg, or approximately two peanuts, which was considerably more than the placebo group. An impressive number were able to tolerate even more at one sitting.
|
|
|
|
The Food Allergy Experience
Written by Dr. Ruchi Gupta and Denise Bunning, “The Food Allergy Experience” provides a reliable source of information and advice in simple, easy-to-read terms. For those contending with food allergies, the book offers guidance and invaluable perspective. For friends, relatives, health care providers, teachers, and caregivers, the book will instill a better understanding of how food allergies impact life at home, at school, and in the community, helping them to more effectively assist children with food allergies.
|
|
30 Things Food Allergy Parents Wish You Knew
|
|
|
Navigating the Emotional Seas of Food Allergies: One Parent's Journey Towards Resilience
|
|
|
No Nut Traveler, Lianne Mandelbaum
|
|
|
Immunotherapy Studies at Lurie Children's Hospital
The Food Allergy Research Team at Lurie is the leading clinical trials team in the Chicagoland area participating in multiple Immunotherapy studies for wheat, peanut, milk, multiple foods and other approaches. The purpose of Immunotherapy studies is to learn whether or not it can lessen the body’s sensitivity or response to an allergen, resulting in less severe or no allergic reactions. They are currently participating in DBV Technologies Epicutaneous (on the skin – via a patch) Immunotherapy studies. They are also participating in Aimmune Therapeutics Oral Immunotherapy (OIT) studies. Studies for Aimmune require ingestion of an allergen (peanut) in small doses that gradually increase over time. The Food Allergy Research Team is excited about the promising results presented for both OIT and Patch studies that are anticipated to be submitted to the FDA for approval later this year. The research team welcomes peoples’ interest in learning about future studies at Lurie Children’s.
|
|
The FASE Program at Lurie Children's Hospital
Food Allergy Support and Education (FASE) hosts monthly Essentials of Food Allergy Workshops, topic-based workshops, and Kids’ Food Allergy Hangouts for patients and friends of Lurie Children's, giving children with food allergy opportunities to be with peers who share their experiences. The FASE Program is led by Sarah Boudreau-Romano, MD, allergist and food allergy mom. Register today for two upcoming Kid Food Allergy Hangouts presented by FASE (Food Allergy Support and Education) Program. Give your kids a chance to meet others going through the same experience.
|
|
|
|
The University of Chicago
Professor Cathryn Nagler, Ph.D. has co-founded a new company,
ClostraBio
, to develop novel microbiome-modulating therapeutics to prevent or treat food allergy. ClostraBio’s business strategy will be refined by support from the expanded
Polsky Center for Innovation and Entrepreneurship
as the company prepares for clinical trials.
|
|
Apps, Food Allergy Friendly Companies, Videos
|
|
Have you tried the Spokin App?
The Spokin platform empowers consumers with food allergies and celiac to live the fullest life possible by connecting them quickly to a wide range of resources. Spokin's app customizes each user’s experience to their allergies, location, and interests. Users can discover and share allergy-friendly foods, restaurants, bakeries, hotels, and more. The platform is designed to be informative, engaging and beautiful.
|
|
|
The Safe and Fair Food Company
Clean ingredients, great taste, and allergy-friendly food that everyone loves. Plus, 3% of their proceeds go to Sean N. Parker Center for Allergy and Asthma Research at Stanford University. Check them out!
|
|
|
Have you tried OWYN yet?
For those looking for a complete protein to boost their body-building and workout benefits, OWYN is a 100% vegan plant-based protein brand that never compromises taste, while always providing superior health benefits.
|
|
|
|
|
Northwestern University: Peer-to-Peer Videos
Dr. Ruchi Gupta and her team have developed peer-to-peer food allergy educational videos that can be shown in classrooms! There are three videos tailored to different grade levels with corresponding FAQ sheets, teacher guides, and discussion questions for use in classrooms. The videos will allow peers to better understand and support their food allergic classmates.
|
|
"How To Stay Alive - Take Two"
|
|
|
New to MOCHA?
Want to be part of our next ENews?
|
|
MOCHA Co-Founders:
Denise Bunning
Anne Thompson
|
|
|
MOCHA is a group of parents sharing information and supporting each other. MOCHA offers support, education, and friendship, to help make managing your child’s food allergies just a little bit easier. Check out our website for the most current news and resources. Click the sign up link above to be added to our email distribution!
|
|
Disclaimer
:
M.O.C.H.A. is not a professional or medical organization. It is a group of parents sharing information and supporting each other. The discussions, meeting minutes, handouts, speakers, agendas, and other products of our support group do not constitute medical and/or legal advice and should not be relied upon as such. Always discuss individual health questions and medical issues with a qualified personal physician.
|
|
|
|
|
|
|
