Waive the Five Month SSDI Waiting Period
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Today marks the beginning of the process to reintroduce the ALS Disability Insurance Access Act. This bill would waive the five-month Social Security Disability (SSDI) waiting period before people with ALS receive access to SSDI benefits. In the Senate, Sheldon Whitehouse (D-RI) and Tom Cotton (R-AR) began circulating a letter requesting original sponsors, while Reps. Seth Moulton (D-MA) and Peter King (R-NY) did the same in the House.
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We are so excited to invite all of our pALS, cALS, family, friends and corporate partners to join us for the 2019 Walk to Defeat ALS®, held on Saturday, October 5th, 2019 at Raley Field in West Sacramento. The Walk is The ALS Association Greater Sacramento Chapters biggest fundraiser of the year; a time and place for us to come together and stand in solidarity to honor the courageous souls who are affected by ALS, to remember those who have passed, and to show support for the cause. When you Walk to Defeat ALS©, you help expand the programs and services that benefit people living with the disease across the nation and in our community.
Register your team by clicking the link below and join us in our quest to END ALS!
Please do not hesitate to reach out to Stefanie Daniels at sdaniels@alssac.org for any questions you may have or for support along the way!
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Team Challenge ALS
Grab a friend and join Team Challenge ALS in 2019! Combine your passion and commitment to finding a cure for ALS while achieving physical challenges through athletic events, such as marathons, triathlons, long-distance rides, swimming, and other endurance activities. You will get fit, make new friends, and change lives!
Contact Fundraising & Special Events Manager Stefanie Daniels at sdaniels@alssac.org or 916-979-9265 for more info
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Help us Combat ALS!
One of our annual initiatives 'COMBAT ALS' needs your support! We're looking for you, your friends, and your family to join us in the fight against ALS. It's simple, pledge to support the ALS Association with a monthly gift of $25 or more (less than .83 cents per day), and you will become a sustaining member of the COMBAT ALS Club. Your gift will support all aspects of the associations programs and services including global ALS Research, Public Policy, and Care Services. You can be a part of the solution and help us combat ALS by becoming a sustaining member today by clicking below.
For more information in this program and how you can become a member contact Stefanie Daniels at sdaniels@alssac.org
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Legacy Society- Have you Thought About Planned Giving?
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Your Footprints, Your Legacy
Everyone leaves footprints on the sands of time. Our prints are made of many things – our character, marks of accomplishment, acts of kindness, compassion, personal warmth, generosity and values.
Thoughtful estate planning is one means of making a print in the sand. Consider the effect of a plan that not only includes provisions for family members, but resources for charitable organizations like the ALS Association:
An estate gift instills philanthropy.
When you include the ALS Association as a beneficiary of your estate, you declare that services for people with ALS and finding a cure are two of your greatest values. What a way to leave your mark, while showing the importance of giving back to others.
An estate gift encourages imitation.
Your gift may unlock gifts from other estates. As friends and family members witness what is accomplished because of your generosity, they may do the same as they plan their own estates.
An estate gift provides needed funding.
Estate gifts are unplanned revenue and can provide that extra boost to the budget that can make the difference between program/research advancement and retrenchment.
Many estate gifts can provide you with income and tax saving benefits.
A gift planning professional from the ALS Association can show you creative ways to make a gift and in return receive lifelong income and tax benefits. There are many IRS approved options to explore. Depending on your age, return rates can be as high as 9%. This service is provided without cost or obligation to ALS Association supporters.
Contact Executive Director Amy Sugimoto for more information at
asugimoto@alssac.org or
916-979-9265
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How Durable Medical Equipment Assists Caregivers
Speaker: Alisa Brownlee, ATP, CAPS
ALS Multidisciplinary Clinic
Monday, February 11, 2019
11:00am PST
We easily recognize the benefits of Durable Medical Equipment for people diagnosed with ALS. However, have you thought of how the use of appropriate Durable Medical Equipment assists caregivers? Join us as Alisa Brownlee, ATP, CAPS shares how equipment and technology supports caregivers.
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Emergency Preparedness Considerations for People with ALS and their Caregivers
Speakers:
Sara M. Feldman, PT, DPT, ATP, Temple Neurosciences & Alisa Brownlee, ATP, CAPS, The ALS Association, Greater Philadelphia Chapter and National Office
Thursday, February 21, 2019
10:00am PST
For the thousands of Americans with ALS, emergencies such as fires, floods and acts of terrorism present a real challenge.
It is important that people with ALS and their family members make plans to protect themselves in the event of disasters....
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The ALS Association and The Tow Foundation Commit Additional $6 Million to New York Genome Center
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The ALS Association and The Tow Foundation are pleased to announce their continuing support of the New York Genome Center’s (NYGC)
Center for Genomics of Neurodegenerative Disease
(CGND), in recognition of the substantial genomic research being carried out by NYGC scientists. The ALS Association has committed an additional $3.5 million to the NYGC’s CGND, including a $1 million commitment from the Association’s
Greater New York Chapter
.
The Tow Foundation
in New Canaan, CT, has contributed an additional $2.5 million gift.
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A Look Back: Our Largest-Ever Clinical Conference Re-Confirms We're 'All in this Together'
Every two years, hundreds of ALS health care professionals come together to discuss new trends, share best practices and guidelines, exchange ideas and successes, and talk about challenges and potential solutions.
To capture the collaborative power of the 2018 event in Fort Worth, Texas....
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Fran McClellan Awarded the Lawrence A. Rand Prize
At our most recent
clinical conference
, we honored Frances (Fran) McClellan with the Lawrence A. Rand Prize. The award recognizes the courage, passion, integrity, and commitment of people serving the ALS community as volunteers, health care professionals, educators, communicators, or in other ways contributing to the quality of life of people living with ALS.
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