Myeloma Canada Update: Moving Forward
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Martine Elias, Executive Director
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“In the weeks and months ahead, we will be sending out many emails and communications announcing these events and providing updates. This means that lots are happening and positively impacting our patients and their loved ones.”
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Multiple Myeloma March: Only 11 Marches Left!
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Our community is doing well! Twelve cities across Canada have already taken part in the Multiple Myeloma March fundraising campaign, and eleven other Marches will soon be taking place. We are halfway through our campaign and need your help to meet our fundraising goal!
If you were unable to take part in the Multiple Myeloma March in your city, remember that it is not too late to donate!
Visit
myelomamarch.ca
.
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Still haven’t registered? Don’t put it off any longer! You can still register for the March taking place in the following cities:
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Whether you’re walking, running, rolling, or cheerleading, we’ll be with you every step of the way! Friends and families of all ages are welcome, including your furry family members.
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Myeloma Canada Co-founder Aldo Del Col Addresses Karyopharm Meeting in Boston
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On the occasion of its New Drug Application (NDA) for selinexor to the US Food and Drug Administration (FDA), Karyopharm a clinical-stage pharmaceutical company based in Newton, Massachusetts, invited our co-founder to address an all-employee meeting to share his personal journey and insights as a long-term myeloma survivor. The key messages were that new drugs have enabled myeloma patients to live longer, productive lives but that innovative approaches are needed to overcome relapses resulting from the myeloma cells becoming resistant (non-responsive) over time.
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Our co-founder, Aldo Del Col with Michael G Kauffman, MD, PhD, Chief Executive Officer and Sharon Shacham, PhD, MBA, Founder, President and Chief Scientific Officer.
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Get involved! Myeloma patients and families can help. The Quebec election campaign is in full swing with the provincial voting day scheduled for October 1, 2018. The campaign period is the perfect opportunity for the myeloma community to get vocal and reach out to the various party candidates.
The numerous hurdles in our province pertaining to access to research and new drugs in myeloma gives us the opportunity to raise our voices and bring awareness to the various issues patients and caregivers are facing.
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Your opinion matters when it comes to
drug access
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Governments are making decisions about myeloma drug access, be sure your voice is heard by completing one or both of the short surveys below—based on your treatment history, you may qualify for both surveys.
Share your opinion by filling out the patient and caregiver surveys.
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We invite you to try Myeloma Canada’s clinical trial personalized search tool! This simplified user-friendly tool allows you to receive email alerts on upcoming trials based on the stage of your disease, your place of residence, and the clinical trial phase you are interested in.
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Spotlight on Bonnie Korbely:
Living Life Positively
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"When I look back at my life and the challenges I’ve faced over the past few years, I know it has made me stronger than I ever thought I could be. Positivity is a must for me and I am thankful more than ever for all the blessings in my life. I really cherish my friends, family, incredible boyfriend as well as my amazing son and daughter.
Always remember that no matter what cards you are dealt, you only have one life to live. If you want something, go for it because life can change in a heartbeat.”
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Meet & Greet in Kitchener
A brand new support group was created in Ontario last weekend at the Meet & Greet organized for the Kitchener-Waterloo community. Thanks to our newest Co-leaders, Susan McDowell and Juliette (Jules) Royer, patients from the area had the chance to attend to the presentations of Dr Martha Louzada, Hematologist from London Health Sciences Centre and Michael Collins, oncology pharmacist from the Grand River Hospital.
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Prince George InfoSession
This very interesting InfoSession allowed locals and people from Northern British Columbia to learn more about the disease and its management. It was a successful event that led to the creation of a new support group. More details to come!
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Friday Night Fish Fry
More than $300 was raised for the Windsor-Essex County Multiple Myeloma March. Thank you to all participants, the McGregor Columbian Club, and the entire community for your involvement!
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Whitehorse
InfoSession
Octobre 19, 2018
Whitehorse (Yukon)
For patients, caregivers, healthcare professionals and the myeloma community.
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Rimouski InfoSession
November 16, 2018
HĂ´tels Gouverneur Rimouski
Rimouski (Quebec)
For patients, caregivers and
the myeloma community.
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Statistics show that as of 2017, more than one million Canadians have survived cancer for more than 10 years. Yet, the physical rehabilitation needs of cancer survivors in Canada have received little attention and few services. Join the Canadian Cancer Survivor Network for an overview of the Cancer Rehabilitation & Survivorship Program at the Princess Margaret Cancer Centre in Toronto program and discussion on the current national landscape.
Can't attend? Be sure to register anyway. The slides and a link to the webinar will be sent to you.
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Leading International Myeloma Expert
in Montreal
September 27, 2018
HĂ´tel Omni Mont-Royal
Montreal (Quebec)
Guest Speaker
:
Xavier Leleu MD, PhD,
Centre hospitalier universitaire de Poitiers
in France
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3
rd
Annual Sam's Monte Carlo Casino Night
October 27, 2018
Montreal (Quebec)
Early Bird Rate Available
Until September 30: Save $25 per Ticket!
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