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2019 Events
February 7
Tampa, Florida
April 12
Dallas, Texas
New York City, NY
Pediatric MPN Program
May 17
New York City, NY
September 6
Boston, MA
Women & MPN Conference
November 8
Brisbane, Australia
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Coming in February's Issue
In the Trenches:
Dr. Mark Heaney
Columbia University Medical Center
Updates from the
Tampa Bay Area MPN Patient Educational Program
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Upcoming Support Group Meetings
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February 7
New York City, NY
February 9
Houston, TX
February 10
Shizuoka City, Japan
February 21
Pittsburgh, Pennsylvania
March 2
Martinsville, Indiana
Early March
Grand Rapids, Michigan
March 30
Izu Nagaoka, Japan.
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Start Your Morning with this Smoothie
1/2 cup blueberries
1/2 cup chopped strawberries
1 whole banana
1/2 cup chopped kale
Handful unsalted almonds
1 tsp. honey
1 tsp. hemp powder
1/3 tsp. cinnamon
1/3 tsp. turmeric
optional: small container of greek yogurt
Add crushed ice and enough cold water to cover the fruit. Blend until smooth
This recipe and others will be featured in our upcoming videos to help promote blood flow
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Dealing with Neuropathy During the Cold Months
Tips to lessen the pain and lower your risk of further nerve damage during the cold winter months:
Wear warm, dry clothing in cold weather.
Protect your hands and feet by wearing thick socks, thick mittens or gloves.
Take intermittent breaks from the cold to reduce your exposure to extreme temperatures.
Limit or avoid caffeine before an outing as it can temporarily cause blood vessels to narrow.
Do not smoke as cigarette smoke can slow circulation.
Limit alcohol use since excessive consumption can lead to vitamin deficiency which can, in turn, damage peripheral nerves.
Incorporate exercise into your routine to improve overall circulation.
Explore comfort measures
like massage or use of flexible splints for support.
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What Women Want to Know: Insights from a Gynecologist with an MPN
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| Dr. Michele Couri |
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Women with Myeloproliferative Neoplasms (MPNs) face a unique set of challenges due to the symptoms that these diseases commonly cause. I can speak firsthand of these challenges because not only am I an OB/GYN but I also have an MPN. I am 48 years old and was diagnosed with Polycythemia Vera in January 2011.
I am grateful to have well-managed, stable PV that allows me to still live life to the fullest, enjoy watching my children grow, and remain working full-time in a very busy private practice. However, I no longer take life for granted, knowing that my disease may progress at any time.
MPNs can complicate a variety of female functions- menstruation, sexuality, pregnancy, childbirth, and menopause. Menopause can be a particularly troublesome time for women because of the disruption in quality of life that frequently accompanies it. Women with MPNs may have a more difficult time navigating menopause because one of the most successful treatment options for menopause, hormone replacement therapy (HRT), is usually contraindicated due to both HRT and MPNs posing a higher risk of blood clots and strokes.
Read more
Meet Dr. Couri at our 5th Annual Women & MPN Conference in Boston, MA on September 7
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Dr. Taigi Nishihori, MD
Moffitt Cancer Center
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| Dr. Nishihori, MD |
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Dr. Nishihori is an assistant member in the Blood and Marrow Transplantation Department at Moffitt Cancer Center and an assistant professor in the Department of Onocologic Sciences at the University of South Florida. Dr. Nishihori's clinical interests include autologous and allogeneic hematopoietic cell transplantation as well as immunotherapeutic approaches for multiple myeloma, plasma cell dyscrasias, amyloidosis, malignant lymphoma, acute and chronic leukemias, myelodysplastic syndrome, myelofibrosis and myeloproliferative neoplasms.
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Meet Our MPN Experts in these Cities in 2019
Tampa-February 7
Dr. Andrew Kuykendall
Moffitt Cancer Center
Dr. Naveen Pemmaraju
MD Anderson Cancer Center
Dr. Kristen Pettit
University of Michigan Medicine
Dr. Taiga Nishihori
Moffitt Cancer Center
Dallas-April 12
UT Health San Antonio
Dr. Jean Palmer
Mayo Clinic
Dr. David Snyder
City of Hope
Additional speakers to be announced
New York-May 16
Dr. Nicole Kucine
Weill Cornell Medicine
Dr. Linda Smith-Resar
Johns Hopkins Medicine
Additional speakers to be announced
New York-May 17
Dr. Ronald Hoffman
Icahn School of Med
Dr. John Mascarenhas
Icahn School of Med
Dr. Raajit Rampal
Memorial Sloan Kettering
Dr. Ellen Ritchie
Weill Cornell Medicine
Dr. Mark Heaney
Columbia University
Dr. Marina Kremyanskaya
Icahn School of Med
Boston-September 6
Dr. Laura Michaelis
Med. School of Wisconsin
Mass. General
Weill Cornell Med.
Dr. Robyn Scherber
UT Health San Antonio
Additional speakers to be announced
Brisbane, Australia-November 8
Speakers to be announced
For updates, details and registration go to mpnadvocacy.com/events
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Clinical Trials-News Updates
MPN Advocacy and Education International's website provides a comprehensive list of current clinical trials and research projects, as well as up-to-date news related to myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET).
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