January 2019 eNewsletter

This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.

Clinical Trials   |  FOP Registry | Quality of L.I.F.E. Awards

Six New FOP Grants Funded – A Research Investment of Nearly $283,000  We are pleased to announce that through the Million Dollar Bike Ride Pilot Grant Program and ACT (Accelerating Cures and Treatments) for FOP Grant Program, six new FOP research grants have been funded; funding totaling nearly $283,000.

Read about the 2018 Million Dollar Bike Ride and ACT for FOP Research Grant Awardees and learn about the special funders of these critical grant programs. The ACT for FOP Grant Program was launched in 2015 and has funded 14 FOP grants totaling nearly $690,000.    2018 was the first year for the IFOPA's participation in the Million Dollar Bike Ride . We will be participating again in 2019. FOP supporters can take part in the actual bike ride in Philadelphia or ride virtually from wherever they live. Find out how you can ride! Learn about FOP research grant funding >

Announcing the 2019 FOP Family Gathering Dates and Location  We are excited to share the dates and location for the 2019 FOP Family Gathering! If you have questions about this year's Family Gathering, please send us an email at  familygathering@ifopa.org . Get all the details >

Register Now for the Medical Cannabis Webinar  Medical cannabis and hemp can be a valuable tool in managing chronic pain. Please join us on  February 18  for an IFOPA webinar with more information about medical cannabis and hemp. The webinar will be presented by Ellen Lenox Smith, Co-Director for Medical Cannabis Advocacy at the U.S. Pain Foundation. Learn more and register >

Get Rid of an Old Car and Help #cureFOP  The IFOPA's vehicle donation program has a brand-new look and name. Cars2CureFOP lets you turn your great ride into a great gift for the IFOPA. Donating a vehicle funds research to #cureFOP, provides support programs for those affected by FOP, and helps you clear out some space in your garage. In just a few weeks, four cars have already been donated to the IFOPA. Donating is easy and tax deductible. To give, complete the online donation form or call (855) 500-RIDE and a donor representative will arrange for your FREE vehicle pick up. Learn more >

You Can Fundraise... And the IFOPA is Here to Help! Whether you’re new to fundraising or want to put a new spin on your fundraising event for 2019, the IFOPA and Team #cureFOP can lend a hand.  Learn more >

From the Ground Up – Learn More from the IFOPA's Founder, Jeannie Peeper Hear from the visionary leader who launched the IFOPA. Jeannie Peeper shares her reflections upon 30 years of connections made and milestones achieved in FOP research. Read Jeannie's story >

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