Updates and News on Congenital Cardiac Care

The Pulse - July 2020

The Pulse is a summary of relevant news and articles for Congenital Heart Professionals and highlights:

What's Been Happening?

Congenital Cardiology Today Latest Issue

ACHA Webinar

CHIP Network Partner Organizations

What's Been Happening?

COVID-19

COVID-19 in Congenital Heart Disease: Ten Points to Remember

American College of Cardiology

Seven Things to Consider When Transitioning to Telemedicine During COVID-19

Cardiology Advisor

Worsened ADHD Behaviors Reported for Children During COVID-19

Medical Bag

Knowledge and Practices Regarding Safe Household Cleaning and Disinfection for COVID-19 Prevention — United States, May 2020

Google Alerts: CDC

COVID-19 Drug Remdesivir Could Cost Up to $3,120 Per Patient

Medical Bag

CVD, Non-CVD Mortality Increased With Azithromycin Use

Medical Bag

Caring for adults with congenital heart disease in the era of Covid-19 pandemic

Google Alerts: Cambridge University Press

Adult congenital heart disease and the COVID-19 pandemic

Heart

General Interest Links

The Remarkable Story of Vivien Thomas, the Black Man Who Helped Invent Heart Surgery

Google Alerts: Washingtonian

The Democratic Order Cannot Exist Without Vaccines | Opinion

Feedly: Newsweek

Down Syndrome (Review article)

Feedly: NEJM

The Impact of Disparities on Children’s Health

Feedly: The New York Times

US News & World Report for American Hospitals Links

U.S. News Releases the 2020 - 2021 Best Children’s Hospitals and New “Hospital Heroes” Series

Feedly: U.S. News & World Report

Boston Children's Hospital Tops Honor Roll, US News Says

Google Alerts: Medscape

Texas Children's Hospital ranked No. 1 for pediatric cardiology and heart surgery

Google Alerts: Healio

2020-21 Best Children's Hospitals Specialty Rankings

Google Alerts: Yahoo News

10 best pediatric cardiology hospitals

Google Alerts: Becker's ASC Review

US News says it erred in children's hospital specialty rankings

Feedly: Becker’s Hospital Review

10 best children's hospitals, ranked by US News

Feedly: Becker’s Hospital Review

The Honor Roll of U.S. News Best Children's Hospitals 2020-21

Feedly: Yahoo News

Pediatric Cardiology Links

Changes in REVEAL risk score in patients with pulmonary arterial hypertension treated with macitentan in clinical practice: Results from the PRACMA study

Google Alerts: MD Linx

Health Care Transition Perceptions Among Parents of Adolescents with Congenital Heart Defects in Georgia and New York

Google Alerts: SpringerLink

The Original Heart Failure Syndrome - PubMed

Google Alerts: PubMed - NIH

Congenital heart surgery may affect long-term social outcomes

Google Alerts: 2 Minute Medicine

Abdominal Vessel Cannulation Before Resternotomy in Complex Congenital Heart Surgery

Google Alerts: PubMed

Mezzion Announces Submission of New Drug Application for its Orphan Drug Udenafil to Treat Patients who have undergone the Fontan Operation for Single Ventricle Heart Disease

Google Alerts: PRNewswire (press release)

Strategies for High-Risk Reoperations in Congenital Heart Disease

Google Alerts: PubMed

Training programs in the United States in adult cardiology, pediatric cardiology and cardiothoracic surgery

Google Alerts: JACC

Promotion of Physical Activity for Children and Adults With Congenital Heart Disease

Google Alerts: PubMed

Congenital Heart Disease-Associated PAH vs Idiopathic PAH Survival Rates

Google Alerts: Pulmonology Advisor

Consensus-based Method for Risk Adjustment for Surgery for Congenital Heart Disease

Google Alerts: PubMed - NIH

Residual Shunt After PFO Closure and Long-Term Stroke Recurrence

American College of Cardiology

Iatrogenic Atrial Septal Defect Causing Position-Dependent Hypoxemia

American College of Cardiology

HPV Vaccine Toolkit Increases Vaccination Rates in Primary Care

Medical Bag

High Potency Cannabis Linked to Anxiety Disorder, More Serious Cannabis Use

Medical Bag

WPSI Advises Screening for Anxiety in Women, Teen Girls

Medical Bag

Starting a Transition Program

Congenital Cardiology Today July 2020

Seven Things to Consider When Transitioning to Telemedicine During COVID-19

Cardiology Advisor

Discontinuing Medication Slightly Decreases Quality of Life in Youths with ADHD

Medical Bag

Can an ADHD Diagnosis Actually Harm Academic Performance?

Medical Bag

USPSTF Report Finds Counseling Does Not Reduce Illicit Drug Use in Pediatric, Young Adults

Medical Bag

Association of Isolated Congenital Heart Disease with Fetal Brain Maturation

American Journal of Neuroradiology

Stakeholders update newborn screening guidelines for critical congenital heart disease

Google Alerts: Sciencemag

First‐Trimester Maternal Folic Acid Supplementation Reduced Risks of Severe and Most Congenital Heart Disease in Offspring: A Large Case-Control Study

Google Alerts: AHA Journals

Berlin Heart Completes Post Approval Surveillance; Report Details Improved Outcomes for Pediatric Heart Failure Patients Supported with EXCOR® Pediatric

Google Alerts: Olean Times Herald

Percutaneous Closure of the Patent Ductus Arteriosus in Very-Low-Weight Infants

Google Alerts: AAP News

Blood Pressure, Retinal Vessel Diameters Connected in Children

The Cardiology Advisor

Changes Proposed for Newborn Congenital Heart Disease Screen

Google Alerts: Physician's Weekly

Preterm Infants With Congenital Heart Disease and Bronchopulmonary Dysplasia

Google Alerts: PubMed

FDA Clears Video Game-Based Therapy for Pediatric ADHD

Medical Bag

Risks Associated With Loss of Ventricular Pre-excitation in Children With Wolff-Parkinson-White Syndrome

The Cardiology Advisor

Familial hypercholesterolemia in children and adolescents

PACE-CME

Oral Selexipag Safe, Effective in Children With Pulmonary Arterial Hypertension

Cardiology Advisor

Unexplained Fever in a Child

American College of Cardiology

Bertram Lubin, ex-CEO of UCSF Benioff Children’s Hospital Oakland, dies

Feedly: San Francisco Chronicle

Telemedicine in Pediatrics: Possibilities and Pitfalls

Feedly: AAP News

How Complex Heart Disease Impacts Children's Development, Quality of Life, Over Time

Google Alerts: Michigan Medicine (blog)

Pediatricians worry as vaccine rates plummet nationwide

Feedly: The Cincinnati Enquirer

Children’s Hospital of Philadelphia’s 24th Annual Fetal Surgery Family Reunion Connects Thousands Online

Feedly: Mirage News

Clinical Auscultation Skills in Pediatric Residents

Google Alerts: PubMed

Trial Finds No Harm in Leaving Preemies' PDA Alone

Google Alerts: MedPage Today

Early Childhood Sleep Problems Tied to Later Mental Health Issues

Medical Bag

Children’s Hospitals Links

Children's hospitals using social media to educate parents about MIS-C

Feedly: The Denver Channel

Panama- Spanish company to build $614 million Children's Hospital

Feedly: MENAFN

Bertram Lubin, ex-CEO of UCSF Benioff Children’s Hospital Oakland, dies

Feedly: San Francisco Chronicle

Science Links

Noncoding De Novo Mutations Contribute to Congenital Heart Disease, Sequencing Study Finds

Google Alerts: GenomeWeb

Unpacking the mystery of MIS-C

Google Alerts: Texas Medical Center News

The FUEL Trial

American College of Cardiology

A joint scientific statement outlining venous thromboembolism research priorities

Feedly: American Heart Association

Health Academics and Politics Links

Sharp rise in Northern Ireland children having heart surgery in Dublin

Google Alerts: Belfast Telegraph

ACP: US Response to COVID-19 Identifies Inequalities in Health Care System

Google Alerts: American College of Physicians

CHOP to lead $75M project to study health disparities in racial minorities

Feedly: Philadelphia Business Journal

Cardiomyopathy Links

Towbin receives National Institutes of Health research project grant

Feedly: AAAS/EurekAlert

Marfan Links

COzaar in Marfan PAtients Reduces aortic Enlargement - COMPARE

American College of Cardiology

Adult Congenital Heart Disease Links

Changes in REVEAL risk score in patients with pulmonary arterial hypertension treated with macitentan in clinical practice: Results from the PRACMA study

Google Alerts: MD Linx

Health Care Transition Perceptions Among Parents of Adolescents with Congenital Heart Defects in Georgia and New York

Google Alerts: SpringerLink

The Original Heart Failure Syndrome - PubMed

Google Alerts: PubMed - NIH

Congenital heart surgery may affect long-term social outcomes

Google Alerts: 2 Minute Medicine

Abdominal Vessel Cannulation Before Resternotomy in Complex Congenital Heart Surgery

Google Alerts: PubMed

Mezzion Announces Submission of New Drug Application for its Orphan Drug Udenafil to Treat Patients who have undergone the Fontan Operation for Single Ventricle Heart Disease

Google Alerts: PRNewswire (press release)

Strategies for High-Risk Reoperations in Congenital Heart Disease

Google Alerts: PubMed

Training programs in the United States in adult cardiology, pediatric cardiology and cardiothoracic surgery

Google Alerts: JACC

Promotion of Physical Activity for Children and Adults With Congenital Heart Disease

Google Alerts: PubMed

Congenital Heart Disease-Associated PAH vs Idiopathic PAH Survival Rates

Google Alerts: Pulmonology Advisor

Consensus-based Method for Risk Adjustment for Surgery for Congenital Heart Disease

Google Alerts: PubMed - NIH

Residual Shunt After PFO Closure and Long-Term Stroke Recurrence

American College of Cardiology

Iatrogenic Atrial Septal Defect Causing Position-Dependent Hypoxemia

American College of Cardiology

HPV Vaccine Toolkit Increases Vaccination Rates in Primary Care

Medical Bag

High Potency Cannabis Linked to Anxiety Disorder, More Serious Cannabis Use

Medical Bag

WPSI Advises Screening for Anxiety in Women, Teen Girls

Medical Bag

Starting a Transition Program

Congenital Cardiology Today July 2020

Discontinuing Medication Slightly Decreases Quality of Life in Youths with ADHD

Medical Bag

Can an ADHD Diagnosis Actually Harm Academic Performance?

Medical Bag

USPSTF Report Finds Counseling Does Not Reduce Illicit Drug Use in Pediatric, Young Adults

Medical Bag

Neurohormonal Activation and the Chronic Heart Failure Syndrome in Adults With Congenital Heart Disease

Google Alerts: PubMed - NIH

Caring for adults with congenital heart disease in the era of Covid-19 pandemic

Google Alerts: Cambridge University Press

Employment in Adults With Congenital Heart Disease

Google Alerts: PubMed

Facts about the General Medical Care of Adults with Congenital Heart Defects

Google Alerts: MDPI

Diagnosis and Treatment for embolic stroke of undetermined source: Consensus statement from the Taiwan Stroke Society and Taiwan Society of Cardiology

Google Alerts: Physician's Weekly

Multi-Society Guidelines on the Use of Multimodality CV Imaging in Competitive Athletes

The Cardiology Advisor

Adult congenital heart disease and the COVID-19 pandemic

Heart

Impacting COPD Care: Addressing Alpha-1 Antitrypsin Deficiency

Medical Bag

AHA Statement on Managing Pregnant Women With CVD

The Cardiology Advisor

Characteristics of Adults With Congenital Heart Defects

American College of Cardiology

General Interest Links

Minnesota bans toxic chemical TCE; EPA twiddles thumbs

Google Alerts: Safer Chemicals, Healthy Families (press release) (blog)

$3 million for congenital heart disease research

Google Alerts: Mirage News

Heart disease & stroke research receives $12.4 million federal funding boost

Google Alerts: News - The University of Sydney (press release)

Thousands of heart procedures delayed during pandemic

Google Alerts: About Manchester (press release) (blog)

Govt tags $29m for heart, stroke research

Google Alerts: Herald Sun

Heart disease & stroke research receives $12.4 million federal funding boost

Google Alerts: News - The University of Sydney (press release)

Extracorporeal Membrane Oxygenation in Congenital Heart Disease

Google Alerts: PubMed

Australia's first Indigenous cardiologist researching the 'why' in health inequities

Google Alerts: National Indigenous Times

Good news and bad news: Changing trends in cardiovascular disease in Canada

Google Alerts: EurekAlert

Preterm Deliveries Linked to Increased Risk of Ischemic Heart Disease

Google Alerts: MD Magazine

Carag Receives US FDA IDE Approval to Conduct Clinical Study of First Transcatheter Septal with Bioresorbable

Google Alerts: Cardiology2.0

What is e-Health?

European Society of Cardiology

Extracellular Matrix (ECM) Patches Market Challenges On Upcoming Trends 2025 | Aziyo Biologics, Baxter, DSM

Google Alerts: Cole of Duty

Community Suicide Prevention Program for Black Teens

Medical Bag

Huge Saharan Dust Plume Will Affect Americans’ Health

Medical Bag

Videoconference Coaching Sessions for Distance Caregivers

Medical Bag

Researcher involved in retracted Lancet study has faculty appointment terminated, as details in scandal emerge

Google Alerts: STAT

Spectroscopy approach poised to improve treatment for serious heart arrhythmia

Feedly: The Optical Society

New app helps doctors to check patients' jugular venous pressure remotely

Feedly: UT Southwestern Medical Center

East and West Germany exhibit health disparities 30 years after reunification

Feedly: European Society of Cardiology

Both cardiovascular and non-cardiovascular mortality increased with azithromycin use

Feedly: Medical Xpress

30 Years Ago, Romania Deprived Thousands of Babies of Human Contact

Feedly: The Atlantic

International Links

Sunil Gavaskar to sponsor heart surgery for 35 kids in Navi Mumbai hospital: Report

Scroll.in

Nearly 13000 children screened for congenital heart diseases in Vinh Phuc

Google Alerts: http://en.vietnamplus.vn/ (press release)

Jadeja Scores Century in Partnership with Gavaskar

Google Alerts: Business Wire (press release)

Punjab govt earmarks Rs284.20bn for health

Google Alerts: Business Recorder

Improvements made in NICVD over the years

Google Alerts: The News International

QRCS to deploy 26 medical convoy to treat 14,000 poor patients in 10 countries

Feedly: Gulf Times

Congenital Cardiology Today - Latest Issue

July 2020 Issue North American Edition

ACHA Webinars for Patients and Families

Pulmonary Arterial Hypertension: A Roadmap for ACHD Patients

Wednesday, July 22, 2020, 7 p.m. – 8 p.m. EDT

Presenter: Ian Harris, MD

To view previous webinars and see full schedule click here.

Congenital Cardiac Nurses Association

The Congenital Heart Assessment Tool

The Congenital Heart Assessment Tool (CHAT) is an early warning tool for parents to use at home with their infant between first and second stage of surgery for complex congenital heart disease; enabling identification of normal infant behavior and detection of signs of clinical deterioration. CHAT provides parents with information about when and who to call for management advice and support, enabling a structured system for articulation of concerns and potentially earlier intervention from the clinical team. This e-learning resource is aimed at healthcare professionals wishing to implement the CHAT within a package of parent preparation before discharge home with their infant.

Learn more

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