July 2020
ALS Emergency Relief Fund
Learn more about how we're adapting our
services to meet the needs of people living
with ALS during the COVID - 19 crisis.
2020 Walk to Defeat ALS ®
"This year, instead of walking, we're rolling!"
Event:  Greater Sacramento Walk to Defeat ALS
Date:  Saturday, October 3, 2020
Location:  Sutter Health Park car lot, West Sacramento
Times:  9:00am to 12:30pm

2020 has been a year of the unexpected, but we are inspired by how our ALS family has continued to show up and help those we love weather the storm, together.
 
For 20 years, the Greater Sacramento Walk to Defeat ALS has been our opportunity to honor all of you, celebrate the tenacity of our community, commemorate our heroes, and spread ALS awareness far and wide.
 
We're not letting 2020 stand in our way.
 
On October 3rd, we will celebrate the 20th Anniversary of our Walk to Defeat ALS... with a twist! We hope you'll join us for a socially-distanced, good ole' fashioned car hop in the Sutter Health Park car lot. The world and our Walk might look a little different this year, but we promise the same sense of community, fun, and--of course--hope.
 
Register your team today to stay up-to-date on the latest Walk details and surprises. We can't wait to see you there!

When This is Over
For the last three and half decades, The ALS Association has been the only national nonprofit fighting ALS on every front. Our work has driven progress in global research, advanced care, raised awareness through public education, and empowered people affected by ALS to live their lives to the fullest.
But despite these gains, ALS remains a fatal disease. Help us find a cure. We can’t wait until this is over.
Saturday, July 4th marks the 81st Anniversary of Lou Gehrig’s
retirement from baseball
On Independence Day 1939, Gehrig recited these memorable words: "Fans, for the past two weeks you have been reading about the bad break I got. Yet today I consider myself the luckiest man on the face of this earth.”

Gehrig's speech brought national attention to ALS and embodies the bravery and determination of those touched by this awful disease. Just two years after he addressed fans, friends, and family from that field in the Bronx, Gehrig died at the age of 37.
Smart Home Technology and ALS

Patti Lydiard works in hospitality. She is also the primary caregiver to her husband Alan, who is living with ALS. When she shared her story on a recent episode of Connecting ALS, Patti talked about the increased risk of exposure to the coronavirus she would face as New England begins to draw summer vacationers. She also talked about the added stress of simply leaving the house at a time when the use of outside caregivers is made difficult by the coronavirus.
ALS Association Commends NIH for New Funding Commitment of $25 Million for ALS Research

The National Institutes of Health on Wednesday announced plans to spend an additional $25 million to create a new program that will speed up ALS research and support cutting-edge approaches to understanding the disease and developing treatments. The money is scheduled to be spent over five years targeting innovative research through a program called Accelerating Leading-edge Science in ALS – or ALS2.
Call 916-979-9265 or email nrichards@alssac.org to register
How Access to Telehealth is Changing

When the Centers for Medicare and Medicaid Services moved to expand access to telehealth services earlier this year – a response to the social distancing put into place during the early days of the COVID-19 outbreak – it marked a significant step forward in the use of digital technology to deliver health care.
How to Avoid Misleading Claims About Off-Label Prescription Drug Use

ALSUntangled, an award-winning website dedicated to helping people with ALS figure out whether alternative and off-label treatments are effective and appropriate, has created a list of 10 red flags people with ALS should be aware of when considering off-label treatments they read about on the Internet.
COVID-19
Frequently Asked Questions
The ALS Association has compiled a list of Frequently Asked Questions about living with ALS and the potential risks of contracting COVID-19. Click here to read responses from our professional medical and care services team.

Special thanks to Flying Cross Ranch, Stocking Real Estate Team and Button Trans, Inc. for supporting our Emergency Relief Fund!
Thank you to our national sponsors!
Thank you to our local sponsors!
The ALS Association
Greater Sacramento Chapter
5701 Sunrise Blvd
Citrus Heights, CA 95610
916-979-9265
www.alssac.org
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