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Issue: March 2013
Welcome to Epilepsy News brought to you by the Epilepsy Foundation of New Jersey. We pride ourselves in sending you the most up-to-date information about epilepsy events, conferences, and issues that are important to you.
Be sure to check this email, our website and thetrainingcalendar.org for information on rescheduled events.
You may also find an archive of past issues and additional information at www.efnj.com | |
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Family Resource Network to Host "New World" Tour
How much do you know about this "new world" of DDD, DCF, DDS and Medicaid?
The Family Resource Network's New World Tour 2013 is set to kick off in April with a series of events to bring you information about, Medicaid Eligibility, Changes to the DDD system and accessing the Children's System of Care (CSOC) for people with intellectual and developmental disabilities. On site information sessions will be held statewide.
Learn what services FRN and its affiliates have to offer.
See what changes we are making in response to government reorganization and what you will need to know.
Share ideas and needs for new services.
Click here for dates and locations to learn about the next steps in to understanding the Children's System of Care (CSOC). For Children with Intellectual and Developmental Disabilities.
Click here for dates ad locations to learn about the next steps to understanding Medicaid Eligibility and DDD Services. For adults with Intellectual and Developmental Disablities.
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Epilepsy Foundation of NJ
is a state-wide, non-profit charitable agency dedicated to helping to improve the quality of life for people affected by epilepsy and their loved ones. More "About Us"
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Our affiliates:
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Medicaid Eligibility for Adults Age 21 and Over
Effective January 22, 2013, the Division of Developmental Disabilities (Division) eligibility regulations have changed to require Medicaid eligibility as a condition of receiving Division-funded services. As a result of this change:
- Individuals who are new to the Division will be required to both meet functional criteria and have Medicaid eligibility before they can begin receiving any services from the Division.
- Individuals already receiving Division-funded services who are not already Medicaid eligible will have to become Medicaid eligible before receiving any new services and will have 60 days (until March 23, 2013) to become Medicaid eligible in order to ensure continuation of current services.
- In some cases, the Division will extend this 60 day requirement, where the individual is working to obtain Medicaid eligibility but experiencing delays from DDD or the State or County Medicaid offices.
- The Division is already working to identify individuals who are receiving services but are not currently Medicaid eligible and work with them to obtain Medicaid eligibility. There are different ways to initiate the Medicaid eligibility process, depending on the type of services being received, as well as other factors. Click here for additional information about the different ways to become Medicaid eligible, depending on an individual s needs and current services
- This important reform is necessary to ensure that the State can maximize the receipt of federal revenue and preserve and enhance community-based supports for individuals with developmental disabilities system-wide.
click here to continue reading.
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Paint the Pony Purple Doubles Funds Raised Last Year
On Sunday, March 24, over 300 people filled the historic Stone Pony in Asbury Park to participate in 2nd Annual Paint the Pony Purple.
Proceeds from the day directly benefited the programs and services offered by the Epilepsy Foundation of New Jersey. The day long event featured live musical entertainment by: Gary Hoey, Jann Close, Almost Easy, THE ROCKNROLL CHORUS, Michael Brett & Deirdre Forrest, Patrick Stoner, One by One, & Edge Kat.
Live and silent auction items included guitars signed by Steven Tyler, Willie Nelson, Les Paul, and Vince Martel, tickets to a PNC Bank Arts Center show, and Rolling Stones and Beatles posters.
Staying with the theme, purple baked goods including, cookies, cupcakes and lollipops were available for attendees. The Stone Pony even provided purple beer!!
Thank you to sponsors Lundbeck and Northeast Regional Epilepsy Group
Thank you to The Stone Pony, the performers, the emcee Danny Coleman
Live Auction Items:
Silent Auction Items:
- David Beck
- Laurie Adamkiewicz
- Salon by the Sea - Sea Girt
- Confections of a Rock$tar
- Bob Jones
- Old Man Rafferty's
- Gary Hoey
- Abby Taylor
Baked Goods:
- Cameo Cakes
- Elisa's Bakery, Lakewood
- DelPonte's- Bradley Beach
- Pastry Chef- Tinton Falls
- Chocolate Carousel- Belmar
- Frosted Bakery - Manalapan
- Simona's Bakery - Sea Girt
- Sarah Dau
- Cathy Rapsas
- EFNJ staff - Jillian Daidone, Melanie McGackin, Lauren McAllister
The Paint the Pony Purple event is held in honor of Purple Day. Purple Day is celebrated on March 26th and was founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, with the help of the Epilepsy Association of Nova Scotia (EANS)
This year's Paint the Pony Purple was also a participant of the 50 Concerts 50 States initiative started by Eric Miller. Thank you to Eric for asking us to participate!
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EFNJ Scholarship Program Celebrates 20 Years!
The Epilepsy Foundation of New Jersey is pleased to announce it is accepting applications for its scholarship program for New Jersey high school seniors who have epilepsy. We anticipate offering a least three $1,000 scholarships. The program was started in 1993.
New Jersey high school seniors with epilepsy who plan to attend a college or university are eligible. Academic achievement, participation in activities and financial need will be considered. The extent of a student's disability(s) will be taken into account as well, so that s/he need not be near the top of her/his class to qualify. Final awards will be made by the Epilepsy Foundation of New Jersey, which reserves the right not to make any awards.
Click here to print or download the 2013 Scholarship Application. Applications and supporting documents are due May 10, 2013. Please call 800.336.5843 or email [email protected] for more information.
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School Nurse Training Program
The School Nurse Training Program is a continuing education training program designed to provide the school nurse with information, strategies and resources that will enable him/her to better manage the student with seizures by: supporting positive treatment outcomes, maximizing educational and developmental opportunities, as well as ensuring a safe and supportive environment. Each training is 3.5 hours long and FREE for all school nurses. Nurses will receive 3.2 continuing education units after completing the training.
To schedule, contact Jenna Andolora to schedule 800.336.5843 or [email protected]
Click here to view our Spring/Summer training dates and locations.
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"Studio E" Art Therapy Program to be Held for 2nd Year in NJ
The Studio E Art Therapy Project will be held again for the second year. Studio E is an art therapy program that is sponsored by Lundbeck pharmaceuticals. Last year we held only one six part session session in Brick for teens. This year we will be holding that session and also another in Parsippany for adults, 18 and older, with Epilepsy. The sessions will be 3 hours once a week for 6 weeks. If you are interested in attending, please contact Jenna Andolora at [email protected] or 800.336.5843. Space is limited.
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Support the Epilepsy Foundation of NJ
Save the Date: Shore Walk for a Brighter Tomorrow
May 11, 2013 at our New Location in Long Branch
Join the Family Resource Network on May 11, 2013 at our NEW LOCATION!!
The Great Lawn, Long Branch, NJ
Walk will take place rain or shine!
10:30-12pm Check in at the Great Lawn
12pm Walk
1-3pm Family Fun Day
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The National Walk is fast approaching! Saturday, April 20, 2013, Washington, D.C.
The National Walk for Epilepsy will continue to bring attention to what Epilepsy is and is not. As we walk together we will be sending a strong message to others across the nation that people with epilepsy are deserving of respect and are strong members of our community. Epilepsy deserves to be better understood!
This year EFNJ would like to get as many New Jersey teams as possible together at the starting line! If you have already created a team or plan to, please contact Andrea Racioppi at [email protected] or 800.336.5843.
If you are interested in creating a team you can go to www.walkforepilepsy.org and click on the create a team tab. Under Team Company, write "Epilepsy Foundation of New Jersey." By typing in EFNJ, the money that you raise will stay in New Jersey and help support the programs and services that benefit people with Epilepsy in New Jersey.
Can't make it to the walk? You can still show your commitment by joining us for the Virtual
Walk for Epilepsy. Donations can be sent via check to National Walk for Epilepsy,8301 Professional Place, Landover, MD 20785.
Please make sure to include Epilepsy Foundation of New Jersey in the memo line of your check.
Hope to see you there!
Thank you to the teams that have already designated their funds to the Epilepsy Foundation of NJ!:
The National Walk will be taking place on April 20th.
-Turn it Purple has already raised $4370.52
-The Andrews family has already raised $835
-Maggies Team- $35
-Team SBK $175
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Seniors and Seizures Program
The Seniors and Seizures training grant wrapped up at the end of February . EFNJ educated 115 individuals including directors, direct support professionals, nurses, and drivers at 8 facilities (2 of which we visited twice) in 6 counties. If you are interested in having your staff trained on recognizing seizures in the senior population, please contact Jenna Andolora at [email protected] or 800.336.5843
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Seizure First Aid Training for Summer Camp Staff
Does your child have epilepsy and will be attending day or overnight camp this summer? If so, the Epilepsy Foundation of New Jersey would like to train the counselors and staff about seizure recognition and first aid. To schedule a training, please contact Jenna Andolora at [email protected] or 800.336.5843.
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Dr. Marcelo Lancman, Medical Director of the Northeast Regional Epilepsy Group (NEREG) of New York and New Jersey Generously Donates Books
Dr. Marcelo Lancman has generously donated 100 copies of his book
What You Need To Know If Epilepsy Has Touched Your Life to EFNJ. The books are $20 each and that money will go towards EFNJ programs.
Thank you Dr. Lancman!
To purchase a copy call or email Andrea Racioppi at 800-336-5843 or [email protected]
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