The Declaration was created by patient groups in an effort to build consensus on personal health data rights. Learn about the 11 data ownership rights identified in the Declaration here:

In Quebec, the Act respecting health and social services information and amending various legislative provisions (PL-19) was tabled on December 3, 2021. Although this bill includes several recommendations that we had endorsed via a brief created with the Coalition Priorité Cancer in July 2021, some articles concern us. As such, we will be continuing our advocacy work with our partners for clarifications.

To ensure your well-being, it's important to eat well, exercise, take care of your emotional and physical health, and relax while learning to live with the effects and stresses associated with myeloma. In order to help you improve your well-being, Myeloma Canada is proud to announce the official launch of our new Wellness program on our website, myeloma.ca. Throughout the year, you'll find new resources designed to help you feel better, take better care and achieve better overall wellness.

We're launching the program with our very first recipe! Thanks to Gill Compton, Certified Naturopathic Nutrition / Natural Chef, we're now adding downloadable nutritious recipes to our website for you.

Since then, Myeloma Canada has evolved into an innovative and internationally respected charitable organization with over 44 local support groups across Canada, and 4 secure online/Facebook support groups. We remain as committed to our Canadian myeloma community today as Aldo and John were 17 years ago. With you fuelling our momentum, we will continue to do all we can so that each and every Canadian impacted by this disease has the information, support and access to medical treatment they need to live longer and fuller lives, and to fund important research so that a cure may be found.

Visit the About Us section on our website to learn more.

"I was very young when my mother got her diagnosis. For her and our whole family, it was devastating news. Later, when she recovered and was in remission, it still had a hold on all of our lives, in big and small ways. I watched my mother worry after each blood test, and I worried for her as well.

Even from a young age, I felt a different level of concern for my mother than I saw in my peers and friends. An illness like myeloma can really put things into perspective, and I have seen this with my whole family. Each of us learnt to treasure each moment with my mom, and to focus on what’s most important. ”

If you’ve changed your physical and/or email address, don’t forget to let us know. We’d hate for you to miss out on any news updates, programs or announcements we have to share.

Our database is updated on a continuous basis, so please be sure to send your new – or corrected - contact information to contact@myeloma.ca. We do our best to get it right, but mistakes may happen (for which we apologize!).