Martine Elias, Myeloma Canada
Executive Director
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"Every year in June, it's my great pleasure to present to you our review of the previous year. This tradition and time of year has become particularly special for me and for the entire team at Myeloma Canada. Things move so quickly that we rarely have the time to look back at all that we've done...and this holds even more true for the past two years.
So, every June, we take the time to revisit the projects we've launched and programs we've developed for and with you and present them to you in our Year in Review."
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12th Annual Myeloma Canada Scientific Roundtable
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The purpose of the Myeloma Canada Scientific Roundtable is to bring together myeloma researchers from the major myeloma treatment and research centres across Canada, along with representatives from pharmaceutical companies and patient representatives, to:
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exchange highlights of recent myeloma research and treatment development work;
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review new myeloma drugs in the research pipeline;
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facilitate planning and collaboration of future Canadian myeloma research.
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12th Annual Myeloma Canada Scientific Roundtable, May 12 - 14, 2022 (Montreal, QC)
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I - New hospitals in Manitoba: Manitobans, your opinion is needed! |
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Patients, healthcare workers and local community members are being encouraged to provide their input as health system planners continue design work for new hospitals in Portage la Prairie and Neepawa. |
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Current opportunities for engagement are focused on early capital planning efforts, with an emphasis on seeking feedback and input on physical and environmental features including cultural spaces, way-finding, proximity between outpatient clinics, and parking accessibility.
Residents living and accessing care in Portage la Prairie, Neepawa and surrounding communities are invited to complete the first survey to provide input on the design of each hospital:
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II - Myeloma Canada's Ontario advocacy campaign
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Thank you to Myeloma Canada's Ontario community members who participated in our advocacy campaign ahead of the June 2 election in Ontario. More than 200 letters were sent to electoral candidates asking for their formal commitment to fight for increased funding for cancer care to improve the quality and length of life of people with myeloma.
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Your participation mattered! We hope to see the elected government in Ontario show leadership and seize this opportunity to rebuild a stronger cancer care system.
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III - Cancer Action Now campaign
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Myeloma Canada took part in the Cancer Action Now campaign, an alliance of 30 health care organizations that have come together to urge governments across the country to make cancer a priority as we re-build our healthcare systems in the wake of COVID-19.
If nothing else, the pandemic has shown us the power of coming together and fighting a common cause.
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Before the Ontario election, Cancer Action Now called for the next Ontario government to set an example for other provinces and make a cancer action plan to address the delays in screening and treatment for cancer patients. Together, we can drastically improve cancer outcomes for Canadians.
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What's new at Myeloma Canada |
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I - New! Myeloma Canada's 2021 Year in Review |
To download your copy, simply click on the button, or visit the About Us section on myeloma.ca.
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II - Now accepting applications for the 2nd Annual Health eMatters Conference!
Myeloma Canada’s unique and exciting empowerment initiative for online cancer advocates
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This event, brought to you by Myeloma Canada, is designed specifically to help online cancer advocates hone their skills, master new tools, network, and increase their impact in Canada.
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Photos from the 1st Annual Health eMatters Conference last spring
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The Health eMatters Conference is free however, places are limited so you must apply before August 15 to be considered for participation.
Join us October 27-29, 2022 in Toronto, Ontario!
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III - Back for its 3rd year…the Multiple Myeloma March Personal Distance Tracker (PDT)!
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2021 Saskatoon Multiple Myeloma March |
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It's time to set your Personal Distance Tracker (PDT) goal!
Enjoy yourself and stay motivated to reach your goal in time for the 14th Annual Multiple Myeloma March in your community! Be sure to choose an activity that you really enjoy and that matches your interests, needs and objectives so it’ll be easier to integrate into your daily or weekly routine.
Don’t forget to keep recording the kilometres you travel in your Personal Distance Tracker calculator so we can add them to our virtual journey across Canada. Travel with us (virtually of course) across our beautiful country!
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To make registering for a Multiple Myeloma March near you easier, just click on the city where you'd like to participate. |
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No March? No problem!
Register for the Virtual Multiple Myeloma March and get started today. Simply click on “Find a city” and select the “Virtual” option or click on the link above.
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IV - Farewells and welcomes: recent changes in Myeloma Canada’s Board of Directors
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As with any Board of Directors, new members join as existing members resign once their tenures are over.
We’d like to take this opportunity to extend a huge and heartfelt farewell and thank you to Johanne Mullen (Chair), Eric Low (Vice-Chair), Antoinette Bozac (Secretary), and Donna Reece, MD (Director), for their invaluable guidance and contributions over the years.
Best wishes and congratulations also go out to Melanie Martel for her new position of Chair, Bill Paine for that of Vice-Chair, and David Niebach, as Secretary. Both Melanie and Bill are past Directors; David is new to our Board.
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From top left to bottom right:
Johanne Mullen, Eric Low, Antoinette Bozac
Donna Reece, MD
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Finally, we’re thrilled to introduce you to the newest members of Myeloma Canada’s Board of Directors: Joyce Chehade, Adrian Craciun, David Niebach, and Sandor Sajnovics.
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Sandor Sajnovics
Director
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Between them, Joyce, Adrian, David, and Sandor have tremendous passion and leadership experience in profit and non-profit sectors as well as impressive professional expertise in law, accounting, finance, strategy, project management, enterprise risk management, medical marketing, sales management and market access in specialty therapeutics and rare diseases. We can't wait to be working together! |
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Spotlight on Natalie Kononenko:
Introducing myself
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"I was born in a refugee camp in Germany. They were called DP, or displaced persons camps in those days and that is where my parents ended up when they escaped the Soviet Union during the Second World War.
Access to food was terrible and I developed bone issues that have plagued me my whole life and likely contributed to the multiple myeloma that I was diagnosed with three years ago."
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InfoSessions
Each year Myeloma Canada hosts InfoSessions for patients, their families and healthcare professionals, featuring guest speakers from the medical community in cities across Canada. InfoSessions are generally half-day events covering many aspects of living with, and managing myeloma.
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Windsor (ON)
Tuesday, July 19, 2022
3:30 - 8:00 pm EST
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Langley (BC)
Tuesday,.July 26, 2022
Save the date!
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Vaudreuil (QC)
Tuesday, August 30, 2022
Save the date!
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Join us online from the comfort of your own home!
All you need is a computer, tablet or smart phone and an internet connection.
Full information on upcoming webinars is available in our 'News & Events' section, or by clicking here.
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“Have You Met Your Pharmacist Yet?”
Wednesday, July 13, 2022
5:00-6:00 PM
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All webinars are available for free viewing on Myeloma Canada's YouTube channel.
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Click on the image to access Myeloma Canada's
YouTube channel.
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Past webinars
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Kelowna Patient & Caregiver Education Conference |
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This past June 15 and 16, we were pleased to host the myeloma community in Kelowna, BC for a patient and caregiver education conference filled with amazing presentations such as understanding clinical trials, new research in myeloma, cannabis and its uses in symptom management, myeloma and the kidney, and more.
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There was lots of networking, learning and exchanging! We were thrilled to be part of this enriching and fulfilling event and extend a huge thank you to all who participated. |
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Our website includes a section dedicated to COVID-19 and its impact on our community. Please visit it often for regular updates and resources you can trust.
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COVID-19 related articles:
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COVID-19 related webinars |
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All webinars are available for
free viewing on Myeloma Canada's YouTube channel.
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Click on the image to access Myeloma Canada's
YouTube channel.
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Past COVID-19 webinars:
Click on the title to view the recording:
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There are so many exciting community events that we just couldn't fit them all here. Please click on the button to find out more! |
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Myeloma Canada is here to support you along every phase
of your myeloma journey.
Please consult our website at myeloma.ca for up-to-date news and information,
as well as the following helpful links:
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In these difficult times, you, our community, remain our number one priority.
Now more than ever, we appreciate your support. Your donation enables us to continue
providing you with the best information, resources, programs and services - across as many
technology platforms as possible - to stay empowered, informed and connected, while funding
research to help find a cure for this disease.
Thank you for your generosity and for helping us help you.
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Follow us on social media for the most up-to-date information and resources: |
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Si vous préférez recevoir cette Infolettre en français, écrivez-nous à contact@myelome.ca.
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Myeloma Canada's mission: To improve the lives of Canadians impacted by myeloma through awareness-building, educational efforts, advocacy, fostering an empowered myeloma community and support of clinical research so that a cure may be found.
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