"If you are not at the table,
you are on the menu..."
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Martine Elias, Executive Director
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"When we met, Aldo had recently been diagnosed with myeloma and was on a one-man crusade to develop a strong Canadian myeloma patient support group, starting in Montreal. Our paths crossed and from that point on, we developed a strong bond and respect for each other’s objectives of looking after the “little one”."
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What's New at Myeloma Canada
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Multiple Myeloma March: Help Us Reach our Fundraising Goal!
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We really can't say it enough - so we'll say it again! It’s thanks to the generous supporters and volunteers like you that we are able to continue to drive our mission of making myeloma matter.
Participate in The Multiple Myeloma March and help us improve outcomes for Canadians impacted by myeloma. Register today!
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Multiple Myeloma March event in your area.
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New Video Online
Click on the thumbnail below to view this month’s InfoVideo.
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InfoVideo Series
"If a clinical trial site is different from where I'm being treated, how can I access the trial?"
Answered by Dr Anette Hay - Hematologist, Associate Professor and Senior Investigator, Department of Medicine, Queen's University, Kingston, ON
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Follow us on
Facebook
and
Twitter
to be amongst the first to see our videos!
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Congratulations to Michelle Oana, Our Newly Appointed Director, Development and Community Relations!
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We’re thrilled to announce that Michelle Oana has been promoted from Associate Director, Development and Community Relations to Director, Development and Community Relations.
Michelle first joined Myeloma Canada in 2016 as Manager of Community Events and Fundraising, but she was already active with the organization before then.
Having been a caregiver to her father - who was an esteemed member of our Board of Directors prior to his passing away from myeloma in 2015 – Michelle’s passion and dedication to our cause were tremendous.
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Special Edition of Sam's Monte Carlo Casino Night
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This year, the 4
th
annual Sam’s Monte Carlo Casino Night in honour of Richard Oana
- who passed away from myeloma in 2015 -
will also be honouring the memory of Aldo Del Col, Co-founder of Myeloma Canada
, who passed away on August 6, 2019.
Richard's and Aldo's passion for scientific advancement brought them together on Myeloma Canada’s Board of Directors. Both were determined to fight myeloma, raise awareness for the disease and support research that will one day lead to a cure.
Join us
to celebrate the lives and unwavering courage of these 2 men. T
ogether, let's turn their dream into a reality.
When:
Saturday, October 26, 2019
Where:
Auberge des Gallant - Rigaud, QC
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Extend the fun and stay the night at
Auberge des Gallant.
Discounted room rates end August 31
st
...book now and save!
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Leger Survey – Help us Help You!
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Whether you’re living with myeloma or caring for someone who is, having the information and resources you need to be active participants in your healthcare is extremely important. That’s why we’ve been working with Leger - Canada’s largest market research and analytics company - to create the Myeloma Canada Patient and Caregiver Survey.
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Leger will be re-emailing the survey on August 22
nd
. We’re kindly asking those who did not have a chance to participate in June, to do so now – you’ll have until September 9
th
to submit your answers.
(If you’ve already completed the survey, you won’t be able to do it again.)
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Have You Visited our Award-Winning
My Life. My Myeloma Online Resource Centre
?
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When was the last time you checked
out Myeloma Canada's award-winning
The
My Life. My Myeloma web page - also known as
mymyeloma.ca
- was created to be a centralized resource that helps you have, and share in, meaningful discussions with your healthcare team on managing your myeloma.
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Here you’ll find specifically designed, invaluable tools and materials like a medical visit Discussion Guide, a comprehensive and helpful Decision-Making Guide, the Myeloma Monitor - a unique, interactive application for tracking and managing your myeloma, tips and information on exploring treatment options, a unique platform for walking you through decision-making, uplifting patient journey videos, educational videos, and so much more.
Be an active participant in your healthcare journey. It’s your life, and your myeloma.
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Spotlight on Jean-François Couture:
Never Give Up
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"Before my diagnosis, I had never heard of myeloma.
I was very surprised to learn that, since April 2016, multiple myeloma is recognized by the Commission des normes, de l'équité (CNESST) - the Quebec government's body entrusted to promote labour rights and ensure respect for Quebec workers and employers - as an occupational illness for firefighers.
To qualify, firefighters must have a set number of years of seniority and have had exposure to a minimum number of fires."
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Montreal (West Island), QC
Tuesday, August 27, 2019
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Saguenay-Lac-Saint-Jean, QC
Thursday, August 29, 2019
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Thunder Bay, ON
Friday, September 27, 2019
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Webinar: Latest Myeloma Research Updates from the
ASCO* & EHA* 2019 Meetings
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When:
Wednesday, September 4, 2019
7 p.m. (ET)
Presented by
:
Dr Rami Kotb, Hematologist and Medical Oncologist
CancerCare Manitoba
University of Manitoba, Winnipeg, MB
All you need is a computer, tablet or smart phone and an internet connection.
*American Society of Clinical Oncology
**European Hematology Association
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Support Myeloma Canada’s mission in accelerating access to better care for
Canadians impacted by myeloma. Your support and generous donations help to further important medical research and advancements currently taking place in the myeloma field. Moreover, your contributions enable us to provide essential information, programs and services to our Canadian myeloma community.
Find out how you can help by clicking on the button below or by calling us, toll-free at
1-888-798-5771.
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Follow us on social media for the most up-to-date information and resources:
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