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210.657.4968
7155 Oakridge Drive
San Antonio, Texas 78229
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Chromosome 18 - November News
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Phantom Tea & Wine - Pouring Soon
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Sunday, December 3rd is the
Official Chromosome 18 Phantom Tea & Phantom Wine Celebration Day.
People around the world will sip tea or wine in honor of those we care about with a chromosome 18 condition
on this special day or any day they wish.
This is the biggest fundraiser of the year for Chromosome 18 and we encourage you to participate! The vast majority of our funding comes directly from Chromosome 18 families and their friends and families who want to make a difference in the lives of every affected person and their loved ones.
By now your Phantom Tea & Phantom Wine package & invitations should have arrived in the mail. If you have not received your package or need additional invitations, please contact us at (210) 657-4968 or
office@chromosome18.org
To learn more about Chromosome 18 Phantom Tea & Phantom Wine click
here
.
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2017 Director's Election - Nominations Closing Soon
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All positions are available for nomination or self-nomination. If you have a particular interest, please contact the
office.
Click on
Syndrome /
Regional
for coordinator expectations.
Nominations will be accepted until
November 30, 2017.
More election information can be found
here.
For questions, nominations or self-nominations, please email
office@chromosome18.org
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Chromosome 18 Clinical Research Center
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Courtney Sebold, Chromosome 18 Clinical Research Center's Genetic Counselor, wrote a wonderful article, "
Gentetic-ese: An Evolving Language",
which
reviews some of the terminology used at the Chromosome 18 Clinical Research Center. See full article here.
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November Research Center Tour
We were very pleased to host some staff from
Bank of America
.
Bonnie Jackson,
Brandi Vitier and
Denise Garcia (pictured right with Dr. Jannine Cody)
enjoyed their visit with the Chromosome 18 Clinical Research Center staff and tour of the facilities.
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Make a Splash & Make a Difference
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Your local indoor or outdoor swimming pools are an ideal location.
Encourage friends and family members to donate a set amount for each lap you swim or to make a one-time donation in support of chromosome 18 research.
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Our Black Friday Sale has been extended! Check out these great Chromosome 18 merchandise deals & steals - up to 80% off. Plus earn FREE shipping with $50 order! Click
here
for order forms. Return to office@chromosome18.org by December 3rd.
Remember to use
Amazon Smile
this holiday season (and all year, too) when shopping online.
It's a simple and automatic way for you to support Chromosome 18 every time you shop, at no extra cost to you.
You'll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com with the added bonus that Amazon will donate a portion of the purchase price directly to Chromosome 18.
Click this direct link
to start shopping Amazon Smile and supporting Chromosome 18 today.
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Regional Events & Fundraisers
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Hot chocolate fundraiser - will add
Kunkle - will add
The Schilly Family is participating in Phantom Tea with this beautiful handmade invitation and lovely letter that just had to be shared. See letter detail here.
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The Stoddard Family raised over $2000, meeting their goal in their annual Holiday Ornament Fundraiser. 126 of these beautiful ornaments were meeting their goal! Thank you to Dave, Kim & Jenna for your wonderful creation and dedication to Chromosome 18!
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Collin Miller - will add
Positive Exposure was in Australia earlier this month for a photo session with some of our Chromosome 18 individuals.
More info
here
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Chromosome 18 Executive Director,
Neale Parker, presented during November's
Live Facebook Broadcast that airs on the
18th of each month at 1800 CST (6:00p.m. CST). Check out the
video and see what's new at Chromosome 18 and be sure to stay tuned in to the end where a surprise
"treat" is presented.
Chromosome 18 held their
22nd Annual Phantom Tea at Madhatters Tea House & Cafe on November 5th. Pictures and details of the event can be found
here.
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Have a fundraiser to share? We'd love to help you get the word out!
Send
us the details and we'll feature your fundraiser in our monthly newsletter and via our social media channels.
Want to host a fundraiser but not sure where to start?
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We encourage people around the country to organize your own
Starfish Series event, like a Starfish Scramble at your local Topgolf where everything you need has already been negotiated for you.
Chromosome 18
Starfish Series
events are not limited to golf. Our unique series offers other popular and fun opportunities such as bowling, quilting, running, walking, swimming and tennis to raise awareness and funds for Chromosome 18. Starfish Series Fundraisers can be held once or as an annual fundraising opportunity that builds on the previous year's success. Our hope is to develop a unique brand for Chromosome 18 in which everyone can participate, regardless of location,
to help raise funds, awareness, and be part of an enjoyable and fun event.
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Welcome to the Chromosome 18 Family
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We are delighted to welcome the following families to Chromosome 18.
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Ayres Family, Mid-Atlantic, 18p-
BrennanFamily, Southwest
Consentino
Family,
International,
18p-
Diehl Family, Canada, 18q-
Foote
Family,
Southwest
Gazzolo Family, Southwest, Ring 18
Hanson Family, South Central
Holly Family, Southwest, Pitt Hopkins
Kantor Family, Southwest
Kennedy Family, Mid-Atlantic, 18q-
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Kwon Family, International,
18q-
Laun Family, International,
18q-
Osuna Family, Great Plains, Trisomy 18
Petuellyová Family, International, 18p-
Shear Family, Texas Area
Sihame Family, International,
18q-
Simond Family, International
Stewart Family, Northwest
Vaissiere Family, International, Tetrasomy, 18p
Warren Family, Canada, 18q-
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We are looking for members to help serve on our Chromosome 18 Grant Committee which will be headed by Kathy Borello. If you would like to help with the planning, preparing and submitting of corporate, foundation and individual grants, please contact the office,
office@chromosome18.org or (210)657-4968
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December 2nd & 3rd - Texas Area Regional Fundraiser -
Starfish Dash
(San Antonio - Rock n Roll) -
Contact
Neale Parker
for more information.
January 6th & 7th -
Starfish Splash - Participate virtually at your local swimming pool.
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Warm Regards,
Neale Parker
Executive Director
The Chromosome 18 Registry & Research Society
(210) 657-4968
parkern@chromosome18.org
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