NET NEWS
CONNECTING THE CANADIAN NET COMMUNITY
ISSUE 2 - OCTOBER 2017
  • Message From The President
  • 2017 Fundraising Events
  • 2017 National NET Conference
  • 2017 NET Awareness Day
  • 2017 NET Research Grant Recipients
  • NET Treatment Access Updates
  • 2017 Maureen Coleman Award
  • Upcoming Patient Education Days
 
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MESSAGE FROM THE PRESIDENT
Fall is upon us and like many of you I am asking myself where has the time gone? We are entering one of the busiest times of the year for CNETS Canada with our upcoming October fundraising event and NET cancer day awareness around the corner, on top of our already bustling schedule.

A personal thank you everyone who has participated or contributed to fundraising initiatives so far this year. We are so incredibly appreciative of your time, effort and contributions and thanks just does not seem sufficient! We would not be where we are today without the incredible support of this community. I encourage those of you who have not yet had a chance to please support our efforts to raise funds for NET cancer research. Our confidence in the new research framework/approach we have taken is buoyed by the excellent response to our call for research applications from our Canadian clinicians/researchers and the quality of projects that have been submitted these past two years. We have come so far in just a few short years and our goal is to keep the momentum going and support our incredible Canadian NET medical community in their support of NET patients. As we all know NET cancer is killing patients every day. It is CNETS Canada’s goal to have a meaningful impact on the longevity and quality of life of Canadian NET patients through our support of these research initiatives. TOGETHER we can accomplish this. We will be engaging the community in the months ahead to hear your views on research projects you think should be of highest priority for 2018.
2017 FUNDRAISING EVENTS
Fundraising events are critical for CNETS Canada to be able to support research initiatives specific to neuroendocrine cancer.  We need to raise a further $58,000  this year to be able to fund two more NET research projects in 2018 and we NEED YOUR HELP TO DO IT! 

Please consider joining us on  October 22, 2017 , when  TEAM ZEBRA TORONTO  will be participating in the Scotiabank Toronto Waterfront Marathon and the 5K Run/Walk in support of CNETS Canada.  
 
This is our last major fundraiser for the year and 100% of funds raised through this event are directed to research. If you cannot make it out to the event PLEASE DONATE HERE ! We cannot do this without YOU!

As Scotiabank’s #1 fundraiser, over the last several years Jackie Herman was given the opportunity to toot the start horn for the 5k event. However last year she declined this honour and asked instead for exposure for NET cancer and the charity she fundraises for, CNETS Canada. We are delighted that STWM has taken this feedback seriously and as Scotiabanks’s #1 fundraiser again this year the STWM/Canada Running Series have featured Jackie’s story  via social media  – a fabulous opportunity for raising awareness of NET cancer!!
  
A HUGE thank you and congratulations to the amazing  TEAM ZEBRA OTTAWA - 5th TOP TEAM  at the Tamarack Ottawa Race Weekend on May 27-28.  They kicked off our fundraising events this year and   did a phenomenal job raising $14,000 towards our annual $80,000 goal!   Way to go Team Zebra Ottawa!!
TEAM ZEBRA OTTAWA
2017 TEAM ZEBRA OTTAWA
2016 TEAM ZEBRA TORONTO
WORLD NET CANCER AWARENESS DAY
On Friday, November 10 th , 2017 – World NET Cancer Day, businesses and coffee shops around the world will be raising awareness about NETs using special coffee cups designed for that day.

CNETS Canada is hoping to make the 2017 World NET Cancer Awareness Day and “Let’s Talk About NETs” campaign even bigger, by distributing 20,000 “Let’s Talk About NETs” cups across Canada!
 
Do you have a local Tim Horton’s, Second Cup, Starbucks or other favourite coffee shop who would be interested in participating in NET Cancer Day Awareness? We are looking for volunteers to help identify and enlist coffee shops (or other businesses that would have use for coffee cups) across Canada, to use our “Let’s Talk About NETs” coffee cups on November 10, 2017. 

We’re taking the grass roots approach to this campaign and need your help to get the word out there! Thanks so much to the volunteers who have come forward already. We can’t wait to update the community on your plans, which we will do in the weeks leading up November 10, 2017. If you can help us in this awareness effort please email Enrico Mandarino at  info@cnetscanada.org .
2017 NATIONAL NET PATIENT CONFERENCE
I n April 2017, CNETS Canada hosted a national NET Patient Conference in partnership with the Canadian Association of Nuclear Medicine (CANM). The conference theme was “A Time of HOPE” and showcased the latest diagnostics and treatments, with presentations from Canada’s top multidisciplinary NET specialists and two international experts. The event was a resounding success with over 200 NET patients, caregivers and their families from across Canada in attendance.

A very important aspect of the conference was the inclusion of three NET patients who spoke about their NET cancer experience, treatments and advocating for themselves. Their personal stories were truly inspirational and a highlight of the event.

Recordings of presentations from the day can be found by clicking on the link to the right .
2017 NET RESEARCH GRANT RECIPIENTS
CNETS Canada is committed to improving the quality of life and survival for NET patients across Canada and in support of this vision introduced a new Research Funding Framework in 2016. The CNETS Canada Neuroendocrine Tumour Research Grant, provides grant-in-aid for two projects up to a maximum of $40,000 per project, per calendar year.

We were delighted with the incredible interest the CNETS Canada grant garnered. As a result, we had many excellent applications to choose from. Our sincere congratulations to the CNETS Canada 2017 NET Research Grant Recipients!

Dr. Philippe Joubert
Comprehensive clinical and molecular characterization of diffuse idiopathic pulmonary neuroendocrine cells hyperplasia (DIPNECH)

Dr. Simron Singh  
Predicting response to immunotherapy in neuroendocrine carcinoma
NET TREATMENT ACCESS UPDATES
As many of you may know, in Canada the path to getting new drugs approved or a drug indication expanded and added to provincial drug plans can be a long and arduous one. The following are important access updates related to drugs indicated for NET cancers. 




2017 MAUREEN COLEMAN AWARD NOMINATIONS
One way that CNETS Canada honours those individuals who have made an outstanding commitment and contribution to the NET cancer patient community is through our annual Maureen Coleman award.

Nominations are now open for the 2017 Maureen Coleman Award.

Nomination deadline: October 30th, 2017
2016 Maureen Coleman Award Recipients
Natalie Mezey & Sherry O'Grady Fox
UPCOMING PATIENT EDUCATION DAYS
Edmonton, Alberta
October 14th, 2017
Vancouver, British Columbia
October 14th, 2017
CNETS CANADA | 1-844-628-6788 | info@cnetscanada.org | www.cnetscanada.org