Throughout the year we are frequently asked where HH families and friends can get our cool HH t-shirts. Now through October 16, you can buy t-shirts, hoodies and v-necks and help raise funds for the DC Family Forum. So don't delay, buy one for yourself and all of the members of your family today! Even better, if you order yours now, you will have it in time for November Epilepsy Awareness month so you can show your HH pride!

Apologies if we sound like a broken record but we are SO EXCITED for the Family Forum planned in DC this December. Have you reserved your tickets? Please do so soon! We have families traveling from all over the US and abroad. East Coasters - don't miss this chance to connect with other HH'ers driving distance from your home. 

Hoping your Autumn is bright, 
Hope for HH Board of Directors


BUY A HOPE T SHIRT & SUPPORT HH!

Buy a cool new Hope for HH t-shirt and show your support for the DC Family Forum.  Check out our hoodies (a Board fav), long and short sleeve shirts, and v-necks for the ladies in all sizes S-XXL. Buy one for yourself and your spouse, your kids, your grandparents, your whole family. 

All proceeds will help underwrite the cost of the 2017 DC Family Forum bringing families together and presenting top docs on HH as well as cognition, behavior, endocrinology and more. 

The sale ends October 16 - so show your Hope &   BUY YOURS TODAY!

PS November is Epilepsy Awareness month ... what better way to help us raise awareness of HH


2 MONTHS TIL HH'ers GATHER in DC!

Do you have burning questions on cognition, behavior, memory, transitions, endocrine, family dynamics, and alternative therapies? Experts at the DC Family Forum are excited to dialogue and find answers.   

If you need a little help to attend the forum, learn more about Financial Assistance here



FIRST 5K IS A HUGE SUCCESS!





More than 130 runners came together for the first OrthoBethesda Great Strides 5k for Hope for HH on Sept 24.  It was a beautiful day in Bethesda, MD and our runners shared it was a fantastic, albeit a bit hilly, course. Thanks to OrthoBethesda doctors and staff for a terrific event and to our community that came out to support this inaugural event. Even more pics can be viewed here


SHARE THANKS WITH DR. REKATE!

Dr. Rekate is retiring after a lifetime spent helping
Thank you  rasterized version.
HH families. 

Send a note, card or letter to wish him well by Oct. 31s t to:  Lisa Soeby, 20609 W. Canyon Dr. Buckeye, AZ 85396 or Lisa Soeby
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?