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7155 Oakridge Drive
San Antonio, Texas 78229
Chromosome 18 - September News

Syndrome Facebook Groups - Be part of the Conversation!
You asked for them and here they are!

We had so many members who asked us that we are pleased to announce the roll out of
Chromosome 18 Syndrome Facebook Groups (see right). These are for Chromosome 18 members only and are a way of being able to communicate directly with other families within your syndrome, to share your pictures, questions, support, and insight.  Get on and start the conversation today!

These conversations had been taking place on Ryver, but after many requests, we are moving this over to the much more accessible Facebook pages.  





New from the Research Center!

Curious about what the Chromosome 18 Clinical Research Center has been up to? Check out some of there most recent updates!


Community Superstars
We have some amazing members and community partners that proudly support Chromosome 18. Here is just a sampling of what our Superstars have been up to.

The 17th Annual Botello Lumber Co. Charity Golf Tournament was held on  in Sandwich, MA benefiting the Chromosome 18 Registry.  Learn more


A $20,000 grant check was issued to Chromosome 18 at the  Valero Texas Open's Benefit for Children Charity Awards on September 15th.  Read more

Grande Communications of San Antonio presented Chromosome 18 as the official Charity of the Grande Cares Grant.  Get the full scoop here

The great members of the Texas Young Professionals welcomed Chromosome 18 and featured the organization at their September Event.  See full story

The Martel family found a way to help fund chromosome 18 research one cup at a time at their Lemonade Stand Fundraiser.   Check out this adorable story

Rachel Sorensen held a garage sale to benefit the Registry and donated the proceeds on behalf of her nephew, Lucas Santiago. A must read

The Chromosome 18 Starfish Dash - Philadelphia was a great day for community outreach, spending time with Chromosome 18 friends and raising money for the Chromosome 18.  Read more

How Can You Help?
 
As you can see, it just takes a small amount of time, some ingenuity and heart and 
anyone can raise funds to help programs and research for Chromosome 18 Registry & Research Society.   Have a fundraiser to share?  We'd love to help you get the word out!    Send  us the details and we'll feature your fundraiser in our monthly newsletter and via our social media channels.  Want to host a fundraiser but not sure where to start? 
Contact us  for ideas.

Chromosome 18 Champions
Want to become a C18 Champion? Join those that are committed to support the Registry with a monthly donation and be a Chromosome 18 Champion.  Become a "DNA Donor" with just a monthly $18 contribution or a "Genome Donor" with a monthly $360 pledge.  Setting up a monthly donation is fast, easy, tax-deductible and ensures invaluable chromosome 18 research! 


Chromosome 18 
Champion Levels

DNA - $18
Base Pair - $36
Gene - $100
Chromosome - $180
Genome - $360


Click  here  to set up your monthly donation, select monthly and your desired amount.
Check out our members who have been donating monthly through Corporate Giving partners:

- Nathan Bock
- Eugene Filipop
 - Michael Gonzales
- Stephaney Hincy
- Lee Mabie 
- Denise Moon
- Norma Ramos
- Scott Waidelich

Thank you for your continued support! For more information on Corporate Giving partners, please contact the office at office@chromosome18.org.
Important Dates & Happenings
September 30th  - Great Lakes Regional Picnic - New Haven (Fort Wayne), Indiana-  Contact  Melanie Gorrell to RSVP .  Clink links for Melanie's welcome letter and event details. 

October 12th - Chromosome 18 Clinical Research Center Tour - San Antonio, TX - Contact Neale Parker for more information. 

October 14th & 15th  - Rocky  Mountain Regional Fundraiser - Starfish Dash (Denver - Rock n Roll) - Contact Angie Moss for more information. 

October 17 - Birdies for Charity Kick Off Breakfast 

October 18th - Facebook Live - 18:00 (6:00 p.m.) CST - Chromosome 18 Facebook

October 25th - Starfish Scramble - Top Golf San Antonio, San Antonio, TX - 6:00 - 9:00 p.m. - Contact office@chromosome18.org for more information. 

December 1st & 2nd
- Texas Area Regional Fundraiser - Starfish Dash (San Antonio - Rock n Roll) - Contact  Neale Parker   for more information.
 
Warm Regards,
 
Neale Parker 
Executive Director
The Chromosome 18 Registry & Research Society
(210) 657-4968 
parkern@chromosome18.org   
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