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210.657.4968
7155 Oakridge Drive
San Antonio, Texas 78229
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Chromosome 18 - October News
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Starfish Scramble - Swinging "Fore" Research
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On a beautiful Fall evening in San Antonio our first
Starfish Scramble
was held at Topgolf, bringing together just under 40 people for a fun evening to raise funds and awareness for Chromosome 18.
You don't have to be able to play golf to enjoy this fun event and participants at all different levels played for just under three hours.
Congratulations
to our 1st place winner Brad Gurwitz, our 2nd place winner Adrian Solis, and our 3rd place winner Daniel Gonzalez! (pictured bottom right)
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Chromosome 18 Clinical Research Center
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October Research Center Tour.
We were very pleased to host some staff from
Grande Communications that recently awarded a grant to Chromsome 18. They came to visit to see exactly what the funds were going towards and a huge thank you for their support
In case you missed the last Facebook Live broadcast on October 18th at 16:00 CST you can see Courtney Sebold talking about your top 10 genetic questions -
here.
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2017 Director's Election - Nominations Now Open
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The following positions are open for nominations or self-nominations to serve two-year terms beginning January 1, 2017:
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Executive Board
Positions
Vice President for Member Relations
Secretary
Regional Coordinator Positions
Great Plains
Northeast
Rocky Mountain
Southeast
Texas Area
Great Lakes
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Syndrome Coordinator Positions
Tetrasomy
18p
18q-
Trisomy 18
Other Coordinator Positions
Sibling Coordinator
Bereavement Coordinator
Self-Advocate Coordinator
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Click on
Syndrome /
Regional
for coordinator expectations.
Nominations will be accepted until
November 30, 2017.
More election information can be found
here.
For questions, nominations or self-nominations, please email
office@chromosome18.org
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Phantom Tea & Wine - Pouring Soon
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Sunday, December 3rd is the
Official Chromosome 18 Phantom Tea & Phantom Wine Celebration Day. People around the world will sip tea or wine in honor of those we care about with a chromosome 18 condition
on this special day or any day they wish. The vast majority of our funding comes directly from Chromosome 18 families and their friends and families who want to make a difference in the lives of every affected person and their loved ones.
Please look for your Phantom Tea & Phantom Wine invitations to
arrive in the mail early in November. If you need additional invitations, or would like an electronic version, please contact us at (210) 657-4968 or
office@chromosome18.org
In the San Antonio area? Invite a friend and join us at our
22nd Annual Phantom Tea Event on Sunday, November 5th and en
joy an afternoon of tea and cake. Proceeds of the event will directly benefit chromosome 18 research.
To learn more about Chromosome 18 Phantom Tea & Phantom Wine click
here.
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Regional Events & Fundraisers
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On Sunday, October 1st, staff and community partners from the Chromosome 18 and the Chromosome 18 Research Center gathered for a wonderful afternoon.
Delicious dishes were shared and everyone enjoyed some great brisket and chicken from Juniors BarBQ. It was a beautiful and sunny - a perfect day to meet the family and friends of our staff, partners, volunteers and interns.
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On August 5th, Brayden's Trail of Strength celebrated it's 6th year of raising money and awareness in honor of Brayden Blackwell.
A must read
The Chromosome 18 Great Lakes Picnic took place on Saturday, August 13th in New Haven, Indiana. It was the perfect day for a picnic!
See full story
Chrom
osome 18 was represented by Neale Parker at a luncheon earlier this month where
a 10-year extension of Valero's sponsorship of the Valero Texas Open in San Antonio was announced.
Read more
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Have a fundraiser to share? We'd love to help you get the word out!
Send
us the details and we'll feature your fundraiser in our monthly newsletter and via our social media channels.
Want to host a fundraiser but not sure where to start?
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We encourage people around the country to organize your own Starfish Series event, like a Starfish Scramble at your local Topgolf where everything you need has already been negotiated for you.
Chromosome 18
Starfish Series
events are not limited to golf. Our unique series offers other popular and fun opportunities such as
bowling, quilting, running, walking, swimming and tennis
to raise awareness and funds for Chromosome 18. Starfish Series Fundraisers can be held once or as an annual fundraising opportunity that builds on the previous year's success. Our hope is to develop a unique brand for Chromosome 18 in which everyone can participate, regardless of location, to
help raise funds, awareness, and be part of an enjoyable and fun event
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Simply contact the
office
and we can set up your personalized fundraising page for whichever event you would like to host! The office can supply flyers, banners, and can help with the promotion of your event on social media. Additional information an be found
here
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December 2nd & 3rd - Texas Area Regional Fundraiser -
Starfish Dash
(San Antonio - Rock n Roll) -
Contact
Neale Parker
for more information.
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Warm Regards,
Neale Parker
Executive Director
The Chromosome 18 Registry & Research Society
(210) 657-4968
parkern@chromosome18.org
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