BDSRA is on the Road
This Fall BDSRA has been traveling the nation advocating for families, spreading awareness, and learning about policy changes that affect the Batten community. Listed below are some of our recent and upcoming trips.
National Society of Genetic Counselors Conference - Columbus, OH
The National Institute of Neurological Disorders and Stroke (NINDS) - Washington, DC
Invited Panel Session: Drug Development Success Stories
Child Neurology Society Conference - Kansas City, MO
National Organization of Rare Diseases (NORD) Patient Advocacy Summit - Washington, DC
Strategic Planning Committee Meeting - Chicago, IL
NY/NJ Metro Chapter's 17
th Annual Bowl-a-Thon - Staten Island, NY
ALD Connect Family Meeting - Washington, DC
Invited Panel Session: Best Practices for Patient Engagement
2018 Family Conference Planning Meeting - Nashville, TN
Update of Translational Research for Management of INCL/LINCL - Bethesda, MD
American Epilepsy Society (AES) Conference - Washington, DC
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