|
Missouri Cures Education Foundation is a statewide non-profit alliance working to promote & protect medical advances to improve the health of Missourians and stimulate the economy in our state. Donations are tax-deductible & support education and outreach programs.
|
|
|
Missouri Advances:
Washington University in St. Louis:
|
|
|
National & International Advances:
|
|
|
Upcoming Missouri Cures Events:
|
|
|
Please join us at one of our Women in Science and Entrepreneurship [WISE] events this fall. Accomplished women in the fields of science, technology and business share their experiences and challenges in a lively and inspired conversation. The events are great networking opportunities to meet women in the STEM field. Follow WISE on Twitter:
@WISE_Missouri
WISE St. Louis
Fri., Sept. 8, 2017 - St. Louis Union Station, 1820 Market Street, St. Louis, MO 63103
Click to Register Now!
1:00-1:30 p.m. registration
1:30-4:30 p.m. program
4:30-5:30 p.m. cocktail networking reception
WISE Columbia
Thurs., Sept. 14, 2017 - Missouri Innovation Center, 1601 S. Providence Road, Columbia, MO 65211-3460
Click to Register Now!
7:30-8:00 a.m. networking breakfast
8:00-9:00 a.m. program
WISE Kansas City
Tues., Oct. 10, 2017 - Kauffman Foundation Conference Center - Details to Come!
|
|
I encounter many advocates around the state who care about medical research and want to move cures and therapies forward. I would like to introduce you to two Missourians who are making a difference:
Darlene Shelton, Dexter, started Danny’s Dose. Its goal is to provide prompt and proper treatment for those with rare diseases and special medical needs in an emergency, specialized education for paramedics and emergency preparedness for affected families. In 2015, a local story that aired on Danny’s Dose went nationwide and soon Darlene was working with groups, individuals and legislators on the state level and national level. By working with others around state, Darlene recently helped passSB503 and was on hand to see Governor Greitens sign the legislation into law. Coming up in Rolla on September 3, Darlene has organized a family education and celebration event for Missouri families affected by rare diseases. To learn more about this special day and the organization go to
www.dannysdose.com.
St. Louis advocate Stephanie Snow Gebel knew when her family was affected by Wolfram Syndrome, and she discovered there were no cures or therapies, she had to do something. Along with her brother, J.T. Snow, she started The Snow Foundation to increase awareness of Wolfram Syndrome and to raise money to help find a cure. Now, The Snow Foundation is the single largest supporter of Wolfram Syndrome research in the world and plays a central role in supporting and coordinating international collaborative research efforts. The Snow Foundation also provides valuable insight, resources, and support to the patients and their families. Go to
www.thesnowfoundation.org to learn more about their important work and upcoming events.
I recently had the pleasure of meeting the Nicole Boice, Founder & CEO of Global Genes, whose mission is to promote the needs of the rare disease community. Global Genes builds awareness, educates the global community, and provides critical connections and resources that equip advocates to become activists for their disease. Check out their website
www.globalgenes.org.
|
|
|
Missouri Cures Education Foundation | PO Box 16580 | St. Louis, MO 63105 |
Website
|
|
|
|
|
|
|
