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Empowering Through Information and the Fostering of Connections
Acceptance. Intervention. Civil Rights. May 25, 2017

In This Issue

Autism signature found in trio of blood-borne proteins

Transition A Struggle For Young Man With Autism

Self-harm, suicidal thoughts common in people with autism

Kids and OCD: The Parents' Role in Treatment

Parents and Others Looking for Help!!!

Toilet Training Tips!

The Circus Is Coming!

New Autism Blog by Teenager

N. Jennifer Oke, PhD., Specializing in the Diagnosis and Treatment of Children with ASDs

Participate in a Survey!

No Wait for RDI!!!

Face Your Fears! For Children 9-12 with ASD

2017 SUMMER SOCIAL PROGRAM

Special Education Legal Advocacy and Representation

11 Tips for a Great Vacation With Your Special Needs Child

Save the Date!!! Love and Autism Conference!

7 Tips to Help Kids with Autism Build Flexibility and Resilience


 


VALERIESLIST SPONSORS





Want to learn more about Relationship Development Intervention (RDI) for your child on the spectrum?

Relationship Development Intervention (RDI®) is a unique treatment approach that empowers parents to guide their child to succeed in a truly dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities (problems and situations that are just beyond their level of competence), develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their Guides. The program has no defined length. It is designed to accommodate parents and children with a wide range of obstacles and handicapping conditions. Therefore participation may range anywhere from one to several years. Have specific questions? See the RDI FAQs for answers!





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  • Autism signature found in trio of blood-borne proteins

  • The activity of a set of proteins in the blood may distinguish people with autism from those without the condition. The unpublished results were presented yesterday at the 2017 International Meeting for Autism Research in San Francisco, California.

    Blood levels of the proteins could constitute a biological marker for autism that flags the condition before features emerge. The three proteins are involved in molecular pathways that are often disrupted in the condition.

    "It's admittedly preliminary," says lead investigator Elliott Sherr, co-director of the Comprehensive Center for Brain Development at the University of California, San Francisco, who presented the findings. "But it's robust and reproducible." Read on...

  • Transition A Struggle For Young Man With Autism
  • Holt Priest was in the prime of his life at Parkway West High School.

    In school, his days were measured in high-fives with friends and the football games in which he played and volunteered. In school, he was well-known and valued. He was voted Mr. Spirit for homecoming and won a big award for embodying inclusion and respect.

    The story of his blossoming from a lonely student with autism to one of the most popular kids at school captivated the St. Louis region last year. Read on...

  • Self-harm, suicidal thoughts common in people with autism

  • People with autism are more than four times as likely as their typical peers to be admitted to the hospital after harming themselves. And many people with autism frequently entertain thoughts about suicide.

    Two sets of researchers presented the unpublished results today at the 2017 International Meeting for Autism Research in San Francisco, California.

    A diagnosis of both autism and attention deficit hyperactivity disorder (ADHD) puts people at an even higher risk of hospitalization than autism alone, the first study found. Read on...

  • Kids and OCD: The Parents' Role in Treatment
  • Teaching families how to help kids fight back

    When you're the parent of an anxious child, you assume that your role is to provide reassurance, comfort, and a sense of safety. Of course you want to support and protect a child who is distressed and, as much as possible, avert her suffering. But in fact, when it comes to a child with an anxiety disorder like obsessive compulsive disorder, trying to shield her from things that trigger her fears can be counterproductive for the child. By doing what comes naturally to a parent, you are inadvertently accommodating the disorder, and allowing it to take over your child's life.

    That's why parents have a surprisingly important role in treating anxiety disorders in children. The gold standard in pediatric OCD treatment is a form of cognitive-behavioral therapy called exposure and response prevention. The therapy involves "exposing" the child to her anxieties in a gradual and systematic way, so she no longer fears and avoids those objects or situations; "response prevention" means she is not allowed to perform a ritual to manage fears. Because parents become so involved in their children's OCD, research has shown that including parents in treatment and assigning them as "co-therapists" improves effectiveness. Read on...

  • Parents and Others Looking for Help!!!


  • Seeking parent experiences in the Poway Unified School District IEP process.
    As a parent of two special needs adopted children I have had some seriously difficult experiences with Poway Unified School District. Having been inexperienced in raising children, much less special needs children, I was very naive in the process. I am hoping to learn more through hearing about other special needs parent experiences, good and bad. I will not share any personal stories.
    Please email me at [email protected]. Thanks so much.



    Hi! We have two energetic boys. I'm looking for a reliable respite worker who is fun loving and understands Aspie kids. Boys are 11 and 13.
    Legoland, parks, bike riding, basketball, Yugio, board games, and Minecraft are in your future.
    Please contact me for more info. Ideally, after school 2-3x a week with younger kiddo and a weekend afternoon/early evening 2x a month. Summer schedule will shift a bit.
    Please Contact me if you are interested - [email protected] Carmel Valley area-thank you!



    I am looking for a half day kindergarten program in San Diego county. Currently my daughter is in preschool in the Chula Vista Elementary School District. CVESD does not have any half day programs or EAK programs for the 2017-2018 school year. My daughter turns five in July, is autistic and epileptic, and has an IEP. We feel she would be better served in a half day program for one additional year. If anyone has any information they can share with me I can be reached at [email protected]. Thank you!



    Our son is 12, about to turn 13. He was diagnosed with high functioning autism, apraxia, and academic disabilities (cannot read or write independently). However, he is very artistic, loves to draw, loves movies of all kinds (comedies: Lego Batman, Boss Baby, anything by Pixar/Dreamworks and adventure movies: Star Wars, Indiana Jones, Pirates of the Caribbean, etc). He also loves nerf guns, zombies, video games, building legos (so so soooo many legos), watching Youtube about building Legos, and also likes to create Lego brick films. Most recently he has been talking about wanting to create his own movies with friends.

    The problem is, we have struggled with finding friends similar to our son's abilities. His one best friend moved away and the other few friends he does have don't share the same interests. We thought by posting here we might be able to reach a few families with children who are either typical developing or with special needs that have similar interests. I know other parents have to struggle with the same problem for their kids!?

    Are there any families with kids out there looking to find a friend with similar interests like our son? If so, we would love to meet you!

    We have also started looking into group therapy sessions through ABA companies and also speech to see if we can make new friendships. Does anyone have any recommendations for groups they participate in?
    Jennifer & Derek Thomas
    [email protected]



    We need some serious Psychiatry help for our son. He is 18 and mild/moderate autistic. But now we believe he is dealing with a secondary mental health issue. Where can we get help?
    Thanks Laura [email protected]



    I am seeking in-home and field-based social therapy for my 7 year old with high-functioning ASD, ADHD and significant behavior/attitude challenges. We are struggling with the social behavior and emotional relationship blockades and need real-time help. Any suggestions in the Del Mar and Carmel Valley area would be very much appreciated!
    Many thanks,
    Annie Brown
    773-320-9605



    Residential supportive living opportunity in families home in Encinitas. Room and board in exchange for part time (after school and some weekends shifts) support and companion for our healthy, 17 yr old, high functioning ASD son who attends LCC High school. Support with meal prep, self-help skills, independence building, home work, IEP goals social outings and companionship. Son will have a newly remodeled 2nd floor studio space in our home. Private bedroom/bath suite provided with balcony for IHSL person in our beautiful, spacious home.

    References and autism experience required as well as back ground check. Ideal candidate between 20-30 years, single and on a special education career path, with positive, outgoing nature and flexibility to possibly travel with family or be companion for son 24/7 for paid income when parents travel occasionally for business. Legal drivers license, proof of current insurance, good driving record, and must own reliable car. Available to begin in June or July, 2017. Contact Kalli for more info and send resume to: [email protected]



    Job Coach
    Life Works has a career opportunity for you! We are looking for an outgoing, dependable full-time job coach working with a young, Autistic male who lives in the SDSU area. The job coach primary role is to assist the individual in performing his work duties at 3 different places of employment. Other tasks include: administering medication, assistance with morning routine, daily note documentation, and behavioral support. Experience working with people with Autism is required. Behavioral support experience is preferred. The hours are Monday thru Friday 8-3p.m. To review more about our agency, please visit us at www.lifeworks-sls.com. For all serious inquiries, please submit a cover page, resume, and three professional references.



    Hi, we're looking to teach our 6 year old boy to swim. He has receptive and expressive delays, as well as sensory and motor delays. We're looking for someone who could teach him in his swimming pool, as our community's one is very small and usually overcrowded. If you can help, please contact us at [email protected]



    I have 6 different GeoTrax train sets that we would like to sell. We know many kiddos on the spectrum enjoy trains very much.

    Please give our email to have people contact us if interested in buying them. They are in very good condition. We have had them stored in plastic containers inside. They are the older style, but they all fit together. Laura [email protected]



    If you have a question or request for this newsletter group, please send your email request to [email protected]. People who can help you will email you directly with their responses.

  • Toilet Training Tips!
  • June 14th 2017, 6:00-7:30pm
    Shay Realtors Community Hub, 4S Ranch
    10550 Craftsman Way #184, San Diego, CA 92127

    www.facebook.com/ParentsAdvocatingTogether

    RSVP to April email [email protected] or call (858)213-8620

  • The Circus Is Coming!
  • Step Right up to the Greatest Gala on Earth!

    Meet us under the big top for the 43rd Annual HGH Fundraising Gala at the historic US Grant Hotel on June 24! Astonishing auction items, magical entertainment, dazzling three course plated dinner and much, much more! All proceeds benefit more than 1,900 infants, adolescent and adults with developmental and intellectual disabilities.

    Click here to purchase your tickets!

  • New Autism Blog by Teenager
  • Hello everyone, my name is Ethan and I'm fifteen years old. I was diagnosed with high functioning Autism at age two. I recently started a blog called The Journey Through Autism. I share my experiences and insight through my posts. Check my blog out at www.thejourneythroughautism.com. Also, follow me on Facebook and Instagram at @thejourneythroughautism.

  • N. Jennifer Oke, PhD., Specializing in the Diagnosis and Treatment of Children with ASDs
  • N. Jennifer Oke, Ph.D.
    5677 Oberlin Drive, Suite 214
    San Diego, CA 92121
    (858) 452-9596
    http://drjenniferoke.com

  • Participate in a Survey!
  • We are still looking for participants!
    We are currently recruiting for the Parenting on the Spectrum Study, a brief study with mothers of children between the ages of 3 and 7 who have been diagnosed with Autism Spectrum Disorder. The study is completed online, with the option (for participants living in the Greater Los Angeles Area and Orange County) of conducting additional sessions in the home. We will ask parents about their experiences of parenthood. You will be entered into a raffle for your time.

    Please use this link to participate: https://goo.gl/Jg8MsF

    If you have questions, please email Gerin Gaskin at [email protected] Thank you for your time and consideration!!

  • No Wait for RDI!!!
  • Relationship Development Intervention (RDI®)
    Our primary approach for treatment of autism spectrum is a developmental program called Relationship Development Intervention (RDI®). RDI® is a unique treatment approach that empowers parents to guide their child to succeed in our dynamic world. Children who learn to actively engage with the support of their parents in safe but challenging learning opportunities develop a strong motivation to explore and expand their world, as well as develop competence and trust in themselves and their guides.

    Why RDI®?
    Foundations of the adult mind are developed in the first years of life through the "Guiding Relationship". From the middle of the first year of life, hour-by-hour, day-by-day, in every culture on earth, children interact with parents and other important adults in deceptively simple encounters, with a very serious underlying agenda; constructing the architecture of the child's mind and brain.
    Click here for all the info!!!

    The Family Guidance and Therapy Center of Southern California
    3575 Kenyon Street, Suite 102 San Diego, CA 92110
    10731 Treena Street, Suite 105 San Diego, CA 92131
    619-600-0683
    http://familyguidanceandtherapy.com

  • Face Your Fears! For Children 9-12 with ASD
  • The "Face Your Fears" program provides your child the skills to more effectively manage their behavior in anxious situations and enhances your child's ability to cope with anxiety that negatively affect their daily lives. Face Your Fears is provided to kids in a small safe group and at the same time, parents participate in a separate group, so they can support what their child learns. Face Your Fears is a cognitive-behavioral evidence-based intervention with over a decade of funded research support.

    Center for Thoughtful Lasting Change, Inc.
    9606 Tierra Grande St, Suite 203
    San Diego, CA 92126
    619-807-7410
    [email protected]
    http://www.drsherrycasper.com

  • 2017 SUMMER SOCIAL PROGRAM
  • Social learning programs for kinder through young adults. Innovative methods and fun activities including Lego Based therapy, SCS Film Festival and an executive functioning bootcamp for teens! Click here for group descriptions, dates and registration info.

    Social Communication Specialists
    5703 Oberlin Dr, Ste 207
    San Diego, CA 92121
    (858) 558-9552
    http://socialcommunicationspecialists.com

  • Special Education Legal Advocacy and Representation
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    As special education attorneys we're here to help answer questions and find solutions to the difficult issues facing children with special needs. From legal advocacy to representation in court, the Law Offices of Schwartz & Storey works to secure the best possible outcome in the shortest amount of time. Please feel free to reach out if you're looking for information or would like to stop by and discuss a particular concern.

    Law Offices of Schwartz & Storey
    2247 San Diego Ave. Suite #237
    San Diego, CA 92110
    858-430-8166
    http://www.dorightlaw.com

  • 11 Tips for a Great Vacation With Your Special Needs Child
  • It Takes a Little Extra Work, But It's Worth It!

    Summer vacations are a great change of pace. You can sleep in, eat different foods, see new places, visit people you haven't seen in ages (or spend quality time with people while sharing living quarters). Unfortunately, while change is refreshing for most people, it can be overwhelming for kids with special needs. The result: Time that should be fun and relaxing can become stressful and even emotionally exhausting.

    Fortunately, however, it really is possible to plan a terrific vacation with your special needs child. You'll need to put in a little extra work (especially ahead of time), but in the long run, both you and your child will benefit. Not just this year, but for years to come! Read on...

  • Save the Date!!! Love and Autism Conference!
  • September 30-October 1, 2017 Click here for all the info!!!

  • 7 Tips to Help Kids with Autism Build Flexibility and Resilience
  • One of the hallmarks of autism is a preference for a predictable routine. Many people on the spectrum have unusually consistent lives. They eat the same foods at the same time each day... go to bed at the same time each night... wear the same clothes summer or winter... and take part in the same activities, in the same order, over and over again. Routines lessen anxiety, which can be a serious problem for many people on the spectrum.

    While there's nothing wrong with an orderly and predictable lifestyle, it can become difficult to maintain when even the smallest thing goes awry. What happens if the refrigerator breaks down? The bus is late? Your shoelace snaps? While these relatively small "catastrophes" may be mere road bumps to a neurotypical person, they can feel overwhelming to a person with autism. Read on...

  • ASD Mornings at theNAT


  • Please visit http://www.sdnhm.org/visit/accessibility/asd-mornings/ for more information.

  • Autism Accessibility Morning at the Fleet!


  • In February we began our, Autism Accessibility Mornings at the Fleet (http://rhfleet.org/events/autism-accessibility-mornings), program. This morning is dedicated to the ASD community to come and enjoy the Fleet in a quieter setting and catch an IMAX film! Our film showings are presented with raised house lights and a lowered soundtrack volume, to provide a more comforting environment. Our goal is to provide an enriching experience for the ASD community

  • SIBSHOP 2016-2017 Schedule


  • October 2016 - August 2017

    WANTED: Siblings who have a brother/sister with special needs
    AGES: 7 - 12 years old
    Older siblings are welcome to attend as "Junior Leaders"

    WHAT: A fun-filled opportunity geared to the specific needs of siblings with brothers/sisters with special needs. Join us for games, crafts, hikes, cooking, and art. Meet other sibs - lunch provided

    TIME: 9:00 a.m. - 1:00 p.m.

    DATES:
    May 21: Mission Trails Regional Park Visitor Center

    July 9: Day at Mission Bay, family picnic **

    August 13: Santee Lakes, 9310 Fanita Pkwy, Santee, CA 92071**

    DONATION: $5.00 - $10.00 per meeting per family for craft materials, supplies & lunch for the kids

    REGISTRATION: Pre-registration requested (if possible) the Thursday before the event.
    CONTACT: Email [email protected] for a registration form and / or additional information.

    Sibshop Leaders: Jody BonDurant-Strong, Administrator Gina Clifton, ECSE Medically-Fragile Teacher, Special Education
    Pat Moulton, Retired

    **Information for family / community locations will be emailed.

  • Participate in Research: Survey About Access to Services
  • HTTPS://WWW.SURVEYMONKEY.COM/R/ACCESS_TO_SERVICES_AUTISM

    FOR MORE INFORMATION CONTACT: JENNIFER BRESLIN - [email protected]

  • Developmental Factors Survey
  • business_finance_research.jpg


    Do you live in the USA and have a biological child between 3 and 12 years old? If so, we would be grateful if you would take a short research survey.

    The goal of this research is to examine whether certain factors are associated with Autism Spectrum Disorders. If none of your children have an Autism Spectrum Disorder, we still would be very grateful if you participate as it is important to have results for all groups.

    Participants may also choose to be entered into a raffle for a $50 Amazon gift card.

    http://www.devsurvey.org

    After completing the survey, if you want to help us more, and if you have previously shared the developmental status of your children with your friends, please share this link with your friends and consider asking a friend or friends whose children do not appear to have Autism Spectrum Disorders to take this survey as well as we anticipate needing more participants from this group.

    If you have questions or comments, please feel free to contact Seth Bittker, the principal consultant, at [email protected] or 212-203-6550. Thank you.

  • Autism Effects on Attentional Blink
  • For more information, please contact Sofia Schugar at the Cognitive Neuroscience Lab: 858-353-4929 (feel free to leave voicemail) or via email at [email protected]

  • Seeking Research Participants for Autistic Sibling Study
  • business_finance_research.jpg

    Seeking individuals over the age of 18 who grew up with an autistic sibling to participate in a study exploring the experiences of growing up in a family with an autistic brother or sister.

    Participation will involve an in-depth interview, lasting between 1 to 1.5 hours about your autistic sibling experiences and a brief follow-up meeting about six weeks later.

    The purpose of the study is to provide an in-depth retrospective exploration of the experiences of adults who grew up with an autistic sibling.

    Eligibility requirements for participation in the study include:
    • Must have lived with autistic sibling for at least 8 years
    • Sibling must have been diagnosed with autism during childhood
    • Interested participant must be at least 18 years of age
    Participants will be provided a $100 Amazon gift card following the interview.

    Interested participants can email Barbara Tierney at: [email protected]

  • 2017 Edition of Flourishing Families


  • The Special Needs Resource Foundation of San Diego is excited to present the 2017 edition of Flourishing Families, San Diego's resource guide for parents of children with special needs.

    This year's issue contains more than 950 resources including service providers, research institutes, specialized doctors, resource providers, camps, therapists, advocates, associations and so much more.

    Visit https://issuu.com/sandiegofamilymagazine/docs/flourishing_families_2017-digital_i to see the digital issue now!

  • San Diego Regional Center's Recreation Resource Page
  • sdrc


    Recreation is important in promoting inclusion and quality of life. Studies have shown that it increases self-esteem and confidence, leads to improved communication, social interaction, and friendship skills.

    The San Diego Regional Center supports clients having time to recreate and believes it is essential to a healthy and well-balanced life. Below are links to some popular recreation activities in the San Diego and Imperial Counties. However, SDRC does not endorse, nor provide funding for any recreation activity. SDRC is not liable for anything occurring while participating in any of the recreational activities. Click here for all the info!!!

  • Special Needs Law Center: Insights 2017 Directory


  • The San Diego Special Needs Law Center has put together a great magazine for the special needs community here in San Diego. Great articles and a resource guide. Available in a print edition and also on their website. Click here to view the magazine!!!

     
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    Disclaimer

    I never endorse anyone or anything. Opinions expressed in what I send out, may not be shared by me. Everything is for informational purposes only.
    People who "advertise" through this newsletter have never been checked out by me. Same goes for the "Sponsors". This includes professionals and even people who are interested in babysitting, etc. So, please take the time to thoroughly check out anyone and everyone who will be working with or caring for your child/adult. We are all sadly aware, through news stories and word of mouth, of people who prey upon special needs children and adults because of their extra vulnerability.

    Valerie Dodd-Saraf
    President, Foggy Coast Ventures, Inc.
    Owner/Editor ValeriesList.com

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