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210.657.4968
7155 Oakridge Drive
San Antonio, Texas 78229
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Chromosome 18 - April News
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24th Annual Chromosome 18 Conference
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registration is now open! Check out the tentative schedule - great session topics and lots to see and do!
Thank you to Jim Salicrup, for designing this year's conference artwork design. Jim is the co-founder of Papercutz, publishing company of many young reader favorites, such as The Smurfs, Geronimo Stilton, Disney Fairies and LEGO Legends of Chima. To learn more about Jim, check out his full bio.
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You can book your room now
here
or call +1-630-505-4900 and be sure to let them know you'll be staying for the Chromosome 18 Conference.
For conference or registration questions, please contact the Regsitry office at
[email protected] or 210.657.4968
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2017 Australia Conference
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The 2017 Chromosome 18 Registry & Research Society Australasian Conference was held on the Sunshine Coast at the Novotel Twin Waters Resort, Twin Waters Queensland Australia during April 21-23.
The conference provided an opportunity for parents, affected individuals, family, friends, caregivers, health professionals and doctors to come together to network and share their Chromosome 18 experiences.
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We're Celebrating 27 Years!
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Happy Birthday to Us!
The Chromosome 18 Registry & Research Society celebrated its 27th birthday on April 6. That's 27 years of helping those with chromosome 18 conditions live
overcome the obstacles they face so they may lead happy, healthy, and productive lives. We are so proud of our great organization and look forward to many more years of support, research and hope!
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Volunteer Appreciation Week
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We would like to take this time during National Volunteer Week to thank all of our wonderful volunteers - Syndrome & Regional Coordinators, member volunteers, event volunteers, volunteer Executive Board, volunteer staff, and virtual volunteers. We are a strong, successful organization because of your dedication and support!
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| Team Run4Caroline |
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Current
George Dunham, along with friends and family of his daughter, Caroline have raised almost $24,000 over the last couple of years while participating in obstacle course races. This year they are tackling the Gol
iathon in Mullica Hill, NJ on June 3rd.
The Goliathon is a 3 mile run with 10-15 obstacles. Each obstacle has three ways to attack - easy, moderate and impossible. It's a fun run for all ages and fitness levels.
For more information or to join, email George at [email protected]. Can't join in but would like to sponsor Run4Caroline and support Chromosome 18? Donations are welcome here.
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Kathy & Hannah Borello are hosting an online Yankee Candle fundraiser. Of course, Yankee Candle offers candles but you can also shop for magazines, flameless candles, gourmet popcorn, car fresheners, gift wrap and more!
Please shop and share this
link
- 40% of every purchase is donated back to Chromosome 18. Last day to order online is May 31st.
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How Can You Help?
As you can see, it just takes a small amount of time, some ingenuity and heart and anyone can raise funds to help programs and research for Chromosome 18 Registry & Research Society.
Have a fundraiser to share? We'd love to help you get the word out!
Send us the details and we'll feature your fundraiser in our monthly newsletter and via our social media channels.
Want to host a fundraiser but not sure where to start?
Contact us for ideas.
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Chromosome 18 Clinical Research
Center Tours
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In the San Antonio area?
Come tour The Chromosome 18
Clinical Research Center!
On the second Thursday of the month, from 11:30 am to 12:30 pm, the Research Center will be opening its doors to registered participants who will meet the staff and researchers, learn what current studies the team is working on and experience a hands-on tour of the facilities.
Upcoming tour dates are
May 11 & June 8.
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For more information or to register for an upcoming tour, contact Neale Parker, Executive Director at
[email protected]
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Best Regards,
Leah Gransbery
Director of Operations
The Chromosome 18 Registry & Research Society
(210) 657-4968
gransberyl@chromosome18.org
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