Bir
thdays are s
upposed to be a milestone, a celebration of growth and change, but since Jett's
diagnosis, his birthda
y has become a bittersweet
reminder of how each passing day is a decline in strength and indepe
ndence.
However, this year was very different from the last. For the first time, I didn't have that bittersweet feelin
g. I have never seen Jett as strong and stable while celebrating with friends and
blowing out his candles
. AND just days after his birthday, the best present arrived - Jett received his first in-home infusion of Exondys51!
November is a time to reflect on our blessings. As a mom
and as a member of the Duchenne community, I have so many things to be thankful for, including
the love and support of family, friends, supporters, fellow advocates, industry partners, and the healthcare providers in the Duchenne community.
You can see that your support over the years has had a direct impact on Jett's life and I thank you from the bottom of my heart. We must continue to work together to ensure that every patient diagnosed with Duchenne has the opportunity to live as full and fulfillin
g of a life as possible
.
