March 2017
"Who's Got It Better Than Us?" 

It's a 10 year anniversary for Special Kids Crusade and it's also a 10 year anniversary for SKC's management of REACH Basketball. Formerly known as V.I.P. Basketball, Special Kids Crusade took the reigns of this existing community program back in 2007, when SKC's nonprofit status was granted.  Today, REACH Basketball is hosted in two locations: Boys & Girls Club of Monterey County, Seaside Clubhouse and the Salinas Community YMCA.  

We love our kids, of course.  But, this program wouldn't have legs if it weren't for the passion, integrity and downright awesomeness of the people and community partners who make this happen. Huge thanks this season go to our program sponsors: Bruce Haase Photography, Law Office of Lorna J. Drope, Special Needs Planning Attorney, Monterey Bay Officers' Spouses Club, MYO Frozen Yogurt, and the  Salinas Valley Business Women's Network

Our volunteers are the BEST!  And, we are grateful to the parents and family members of our players who are the most enthusiastic cheerleaders around.   Seaside Coach Tim Jensen is a REACH Basketball icon while Salinas Coach Jose Hernandez is finishing up his rookie year as coach and we are already begging for him to come back and coach again, next year! Coordinators Eliana Coronel and Laura Camberos not only make the program run smoothly, they make all of our players feel included and welcomed.  

At the end of every practice In
Photo credit: Bruce Haase
Seaside, Coach Tim sits in the middle of the court, gathers all of the players together and, in his soft but booming voice, asks the group, "Who's got it better than us?" 

The answer is always the same: "Noooooobody!  Nobody's got it better than we do!"   So true.
Voice Options

Pilot program lends iPads with speech applications to children & adults
by Brenda Cardoza, Services Coordinator
Central Coast Center for Independent Living (CCCIL) 

Central Coast Center for Independent Living (CCCIL) is excited to introduce the  Voice Options Pilot Project, California Speech Technology Program to the Central Coast.

The Voice Options is a statewide pilot program offering iPads with speech applications to children and adults with disabilities for demonstration, short and long-term loan via ten demonstration centers throughout the state.  CCCIL, located in Salinas, is excited to be one of these centers. 

If you, or your child, is not able to speak or has difficulty speaking, you may borrow an iPad with speech applications to determine if it increases you or your child's ability to communicate.  All program iPads are equipped with the following speech apps:  Go Talk NOW Plus, LAMP words for Life, Predictable, Proloquo4Text, and TouchChat.

Families may borrow an iPad for up to 30 days. If it is determined that a speech app on the iPad works well for the borrower, they may apply for a long-term loan of the device and favorite speech app.  Long-term loans require verification of disability status by a designated professional (Licensed Medical Doctor, Department of Rehabilitation Counselor, Licensed Speech-Language Pathologist, and Licensed Physician Assistant).

To learn more or to participate, families in Monterey, Santa Cruz and, San Benito Counties can contact CCCIL at (831) 757-2968.
Visit  www.SpecialKidsCrusade.org for registration information or call  (831) 372-2730.
Mark your calendars!
CLICK on the links, below, for event details.
Monterey Area Autism and SPD Families Play Date with the Kids at Monterey Lanes Bowling - Saturday, March 4
Accidental Social Skills Comedy Improv Program - Begins Saturday, March 4
First 5 Express: Inspiring Families to Talk, Read & Sing Event at Tatum's Garden - Monday, March 6
Chartwell School Open House - Tuesday, March 7
EFMP Women's Support Group - Tuesday, March 7
Exceptional Family Member Program (EFMP) Support Group - Thursday, March 9 
Pony Champions Baseball Opening Day at Pacific Grove Ball Park - Friday, March 10
Positive Program Planning and Effective Negotiation Workshop (Watsonville)  - Saturday, March 11
Special Kids Crusade's Mom's Night Out at Chili's Grill & Bar in Seaside - Monday, March 13 
Parents of Special Needs Children Support Group at the San Andreas Regional Center in Salinas (Spanish) - Thursday, March 16
Point Lobos Easy Access Adventures - Saturday, March 18
"Autism Moms" Networking Lunch at Elli's in Salinas - Saturday, March 18
3rd Annual Special Needs Talent Showcase at the Santa Clara Convention Center - Sat. March 18
"CalABLE: What You Need to Know" presentation at SARC in Salinas - Monday, March 20
"A Silent Epidemic: Fetal Alcohol Spectrum Disorders Two-Day Conference at UCSF Children's Hospital in Oakland - Thursday & Friday, March 23 & 24
Limited Conservatorship Workshop sponsored by Special Kids Crusade at the SARC Salinas office  - Saturday, March 25
Autism through the Life Span Conference at Stanford University - Saturday, March 25
REACH Theatre Spring 2017 Program at ARIEL Theatrical begins -  Saturday, April 1
Behavioral Concerns at School
Is it okay for a school to continually request that a child be picked up early for misbehaving? 
Jennifer Lucas, Advocate with the California State Council on
Developmental Disabilities, Central Coast Office

Dear Advocate:  I am often called by the school district to pick up my son with special needs from school because he misbehaves.  I work and leaving my job in the middle of the day to pick him up is very difficult.  What should I do? 
 Signed, Concerned & Weary
 
Dear Concerned & Weary: I hear this same issue come up time and time again and I really empathize with you!  It's one thing if the school calls you once or twice to pick up your son, but if they are calling you daily, weekly and/or monthly, that is not acceptable.  When you get that phone call from the school, there are two key questions to ask.  First, is your son being suspended?  And second, has your son been injured or harmed?  If the answer is no to both questions, then you are not required to rush over and pick up your son. 
 
It's important to recognize that your son is not able to access his education if he is repeatedly leaving early.  Not only does this potentially reinforce your son's inappropriate behaviors (let's face it, he wouldn't be the first child who would rather be at home than at school!) but the statutory requirement the school has to your son to provide the necessary services and supports which would allow him to access his education aren't being met and this is a disservice to your son. 
 
When behavioral concerns are present and interfering with a student's ability to receive educational benefit, which generally refers to making progress on the IEP goals (Note: Keep in mind IEP goals should reflect the needs of the student - if they don't, they need to be changed.), the district should conduct a behavioral assessment in order to determine appropriate services and supports.  If the district doesn't initiate this, then you should submit a written request for assessment. Make sure to include what the  behaviors are, what you have heard from the teachers/school about your son's behaviors, how often you are being called to pick up your son because of this and the toll this is taking on your son (emotionally, academically, socially, etc). 
 
Once the assessment is complete, the IEP team meets to discuss the results and recommendations and makes a determination as to how to proceed.  Typically this will consist of implementing a behavior plan through training appropriate school staff.  If a behavior plan fails to be effective, it's often the result of an inaccurate and/or incomplete plan (possibly due to a flawed assessment) or lack of adequate staff training on how to implement the plan.  Regardless of the reason, should the inappropriate behaviors persist, the IEP team needs to revisit the plan and determine what changes need to be made.  The sooner your son's behaviors are being effectively addressed at school, the sooner he will be able to receive educational benefit!