Since 2014 your donations came in a wide range of amounts. Every penny is a blessing fin launching this "new disease model." You keep the website up and allow us to create conferences, fly doctors to events, and assist with “micro grants” for research whose results ripple out to affect change.
Your gifts helped allow doctors attend the first meeting of the Consortium in 2014. We know there are a lot of unmet needs. We receive these calls and email daily BUT REFLECT on how far we have come in 3 years.
We are determined to go into ORGANIZED HYPERSPEED in 2018 and pull in more consensus, awareness and, yes, research funding.
Here is a small list of areas your money helped fund (for more info see our website
link here
):
How Epigenetics (our DNA) shifts with mood & infection
How M-1 Strep Ignites Misbehaving Autoimmune Cells (t-cell 17) and crosses into the BBB
Potential Genetics of PANDAS & Sydenham Chorea
How Dopamine 1 & 2 auto-antibodies are activated by infection in the brain
Cunningham Panel results analysis
Tonsil bacteriology and its impact on the BBB
Survey of 700 families and the impact of PANDAS-PANS treatment on lives (pending publication)
Since 2014 we have spent $85K on conferences - flying doctors here and there, staffing, literature, renting of conference spaces, etc. We always make our money back but we need funds to initiate these events. Thank YOU!
Researchers, doctors and parents reach out to us continually for grant funding. WE HEAR YOU! and in 2018 WE DETERMINE TO HAVE COURAGE, BE STEADY LIKE FLOWING WATER and DO MORE to Ensure a Solid Future for Our Chidlren!
