One of the special treasures of this holiday season is the opportunity to say thank you and to wish you the very best for the New Year. We extend our deepest gratitude to our families, friends, partners, and supporters, for helping us to be the preeminent organization in the SADS community. Because of you, 2017 will mark our 25th Anniversary Celebration of supporting families and saving lives of individuals with SADS conditions!
At this time, we would like to extend our deepest appreciation to some of our special volunteers that include our Board of Trustees led by President Dr. Michael Ackerman, our Scientific Advisors with members from all over the world, our Family Support Committee, Medical Education Committee, Research Committee, International Conference Committee, and Take Steps to Stop SADS Event committee. Each of the members of these committees devoted their time and talents to helping the SADS Foundation to reach new levels of knowledge, capacity and services as we lead the way in the SADS community.
We also would like to thank all of you who held a volunteer fundraising event or an awareness event, led the way in earning a Heart Safe School Accreditation in your community, participated in the SADS Safe School campaign as children returned to school, and reached out on behalf of SADS and the SADS Foundation in numerous individual ways throughout the year. All of these efforts put together are moving the mission to save the lives and support the families of children and adults who are genetically predisposed to sudden death due to heart rhythm abnormalities significantly forward.
This upcoming year will continue to bring the expansion of existing services, new solutions to current needs, our 10th Annual International SADS Foundation Conference, and a 25th anniversary celebration! We enthusiastically renew our dedication to the next 25 years as we work with you to spread awareness, support families, educate health care professionals, and advocate for the best care and research to save young lives with SADS conditions.
Peace, love, and abundant life from all of us at the SADS Foundation!
Alice, William, Lynn, Jan, Corinne, Chelsey, and Brandon
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Friendship Begins
at Conference 2016
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 The Arruda family from Rhode Island and the Bevington family from the DC Area met at the 9th Annual International SADS Foundation Conference held in San Diego, California. "We stayed in touch," says Ray Arruda, "and invited the Bevington's 12-year-old son to join my son and me at a recent Patriots game."
Everyone had a great time going to the game, visiting the Patriots Hall of Fame, and meeting players and cheerleaders. "The boys made some great memories and we owe some kudos to the SADS Foundation for bringing us together." concluded Ray Arruda.
All of us at the SADS Foundation are thrilled to hear about these new friendships and invite all of you to make new friends at the 10th Annual International SADS Foundation Conference that we are co-hosting with SADS Canada this upcoming September 22-24, 2017, in Toronto, Ontario, Canada. Be watching for further details in the very near future.
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7-year-old with LQTS
Wins Contest
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 Cecily Fortunato from Rochester, NY, was recently in the news because she is representing the City of Rochester in Make-A-Wish's second annual Wish Star Battle against the City of Buffalo. Cecily is a fun, bright almost seven-year-old who has LQTS. She loves to swim and play with her Golden-doodle puppy, Clover.
Cecily will be going to Disney World with her family in January. Click here for full story.
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SADS Foundation Sponsors Forum at Harvard Medical School
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 The SADS Foundation spon¬sored an educational forum focused on Inherited Arrhythmia Syndromes at Harvard University Medical School. Hosted by Dr. Dominic Abrams and the Inherited Cardiac Arrhythmia Program at Boston Children's Hospital, the forum brought together clinical experts to present a complete overview of different SADS conditions and provide recent findings and new avenues of research and disease management.
The forum's first session focused on up¬dates for inherited arrhythmic disorders including long QT syndrome, CPVT, Brugada syndrome, and arrhythmogenic cardiomyopathy. The second session provided case discussions with an expert panel from Brigham and Women's Hospital, Massachusetts General Hospital, and Boston Children's Hospital.
The forum was such a great success, that the SADS Foundation and Boston Children's Hospital are looking forward to doing it again in 2017!
We extend our thanks to corporate sponsors: Invitae and Medtronic. And also extend thanks to our expert speakers: Dominic Abrams (Boston Children's Hospital), Calum MacRae (Brigham & Women's Hospital, David Milan (Massachusetts General Hospital), John Triedman (Boston Children's Hospital), Neal Lakdawala (Brigham & Women's Hospital), Steven Lubitz (Massachusetts General Hospital), Robert Padera (Brigham & Women's Hospital), Elizabeth DeWitt (Boston Children's Hospital), Robyn Hylind (Boston Children's Hospital), Shannon Hourigan (Boston Children's Hospital), Virginie Beausejour Ladouceur (Boston Children's Hospital).
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December 2016 - In This Issue
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Editor: Jan Schiller
Contributors: Alice Lara, Lynn Johnson, William Shiflett
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January 20-21, 2017
Anaheim, CA
February 10, 2017
SADS Medical Education Symposium
Phoenix, AZ
March 17-19, 2017
Washington, DC
May 1, 2017
New York, NY
May 10-13, 2017
Chicago, IL
September 22- 24, 2017
Toronto, Ontario, Canada
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