210.657.4968
7155 Oakridge Drive
San Antonio, Texas 78229
Chromosome 18 - November News


Phantom Tea & Wine Time is Here

On Sunday, December 4th, we ask our members to invite their family and friends to a tea or wine party (virtual or actual), sipping
 tea or wine in  honor of  those we care about with a chromosome 18 condition while raising awareness and funds for Chromosome 18 Registry & Research Society
 

By now your Phantom Tea & Phantom Wine  packet should have arrived in the mail.  If you would like additional invitations or wine labels, from just a couple to a hundred, we are happy to send them out to you.  If you have yet to receive your packet, please contact us at (210) 657-4968 or [email protected]   

Prefer to print your own invitations and wine labels? 
Click on item below to view and print from your home

Visit our fundraising sites to donate directly or to set up your fundraising page to share


Here's what some of our members are doing for Phantom Tea and Wine

Neale Parker and Cynthia Parsons are hosting a wine party event on December 2nd.

Natalie Abreu-Horne is hosting her annual Tea Party on December 10th

As you can see, your Phantom Tea or Wine "party" can be virtual or actual and can take place before, after or on the day of celebration, December 4th.

If you'd like to share your Phantom Tea or Wine festivities and ideas, 
please send details to [email protected] 
 New Director of Social Media
  
We are pleased to announce that Stacey Gallardo has offered to fill the Director of Social Media position as Nichole McVicker, who is also the 2018 Conference Chair, will now be focusing on conference planning for the 2018 Chromosome 18 Conference in Baltimore. Nichole has helped the Registry and has done a fantastic job with her social media and website management.  We thank her for her dedication to our organization.

To learn more about Stacey, click here .
 One-Week Holiday Sale

Stay  tuned to our 
facebook site for amazing 
daily super-sale announcements on Chromosome 18 merchandise 
from December 5th - 12th.


2016 Board Election & Open Positions
Thank you to those that stepped forward to nominate and self-nominate for the open board positions.  We will be announcing the 2017 full board in December.   
 
Open Positions 
We are still in need of a Treasurer for our Executive Board and Director of Individual Fundraising 
   
For inquiries and descriptions, please email  [email protected]

 Past Fundraising Super Stars
   
  Thank you, Kim and Dave Stoddard!   Their successful 2016 Chromosome 18 Ornament fundraiser was  a HUGE success!   123 ornaments were sold.  Along with sales and donations, the total amount raised was a tad over $2,000!

Chromosome 18 Clinical Research  Center Tours 

In the San Antonio area?  
Come tour The Chromosome 18 Clinical Research Center!  

On the second Thursday of the month, from 11:30 am to 12:30 pm, the Research Center will be opening its doors to registered participants who will meet the staff and researchers, learn what current studies the team is working on and experience a hands-on tour of the facilities.   Upcoming tour dates are  December 8, January 12 & February 9

For more information or to register for an upcoming tour, contact Neale Parker, Executive Director at [email protected]

Best Regards,
 
Leah Gransbery
Director of Operations
The Chromosome 18 Registry & Research Society
(210) 657-4968 
gransberyl@chromosome18.org   
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