Our 20th annual Phantom Tea raised over
$85,000
in 2015 for Chromosome 18
 Research! As our largest and most important fundraiser of the year, this is a time that you can get involved to make an impact on families through research, education and just helping families come together. Thank you to all that have participated by donating and raising funds and it's just as easy to help again this year. Our achievable goal for this year is $120,000 and with one exciting addition we believe we can make this happen.
Each December, we have hosted our annual, year-end fundraiser called "Phantom Tea." This is a virtual tea party that allows members, friends, and family to join together and raise funds for chromosome 18 research in hopes of "making
chromosome 18 conditions the first treatable chromosome abnormalities." This year we're excited to present something new as we're celebrating our 21st year of
The Phantom Tea.
We are "Coming of Age" on this 21st
and proud to announce the addition of
The Phantom Wine.
During this time, we ask our members to invite their family and friends to a tea or wine party (virtual or actual). On Sunday, December 4th
, people around the world will sip tea or wine in honor of those we care about with a chromosome 18 condition.
Why Participate?
The vast majority of our funding comes directly from Chromosome 18 families and their friends and families who want to make a difference in the lives of every affected person and their loved ones.
The success of Phantom Tea & Wine is
dependent
on US as Registry members.
How to Participate?
All U.S. Chromosome 18 Registry members will receive a Phantom Tea and Wine invitation packet sent to their address in early November. Upon special request, packets can be sent to addresses in Canada and Mexico. Invitations, wine labels, and instructions can be printed or you may participate virtually (see links below).
If you would like additional supplies sent, please contact
[email protected]
or call (210) 657-4968 and we will send you out additional invitations and supplies.
Even one invitation sent
WILL make a difference!
Want to print your own invitations?
Wine labels may be viewed and printed
here.
Want to participate virtually?
What Does Your Involvement Mean To the Registry?
By being involved in the Phantom Events, you help fund vital clinical research and support for families around the world.
$10
buys the liquid Nitrogen for 1 tank for 1 week
$25
buys the forms for 1 participant's annual update
$50
buys enrollment (including blood) for a US family
$100
buys enrollment for an international family
$500
buys establishing cell lines for 1 family
$1000
buys 1 person's microarray
$10,000
buys one comprehensive clinical evaluation
$100,000
buys 1 mouse model project
$1 million
funds the whole Research Center for a year.
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