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A Chapter of the United Spinal Association
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Thanks to everyone who attended our SCIA Seminar: A Day In Life With Spinal Cord Injury, on October 1, 2016. It was a wonderful program.
Special thanks to our
seminar vendors!
National Seating and Mobility
Brightstar
The Standing Company
Livingston Products
NuMotion
Coloplast
Medtronic
RespirTech
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My Kinda Party
Saturday, February 18, 2017
If you are interested in sponsoring our country themed event, please contact us at sciinjury@aol.com
Hope to see you there!
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Bank of America Chicago Marathon
October 8, 2017
We are already looking for runners for the 2017 Bank of America Chicago Marathon. We have guaranteed entry spots available for those interested in running for our charity and committing to fundraising a minimum of $1,000 for SCIA. Registration begins October 25-November 29. Contact us at sciinjury@aol.com for more information about joining our team.
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12th Annual Golf Outing
Thank you to all our golfers and sponsors for making our golf outing a BIG success!
Our Sponsors
Associates in Rehab Medicine
Elite Care Management
M & O Insulation
National Seating and Mobility
NuMotion
Strellis & Field Law Offices
Thank you!!
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Interested in getting
more involved with
SCIA?
Become a member of our association!
Are you Spinal Cord
injured?
Membership is
free to those who are
spinal cord injured.
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SAVE THE DATE!
Saturday, February 18, 2016:
Crystal Grand Banquets, Lemont, IL
Winter Benefit:
My Kinda Party
More details to follow!!
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2003 Dodge Lift Equipped Van
90,000 miles
Located in Western Suburbs
Contact Mike 630-790-2082
Fully Accessible House For Sale
Beautiful Accessible home in Batavia, IL with accessible bathrooms, kitchen sink, closets, and elevator
Accessible Condo For Sale
Chicago condo for sale
Mobility Scooter For Sale
Drive Medical Scout Compact Travel Power Scooter, 4 Wheel + Large Rear Basket Mobility Scooter
Less than one year of use, good condition!
Scooter price $500
Revo Mobility Scooter
$400 in Palos Heights
Call Carole at 708-897-8111
Invacare Stand up Lift
model rps250-1
asking $2,000.00
contact John Hajek
Hospital Bed For Sale
MOTOmed cycle For Sale
Standing Frame For Sale
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You Can Support SCIA, and it won't cost you a penny!
Are you an Amazon shopper? Amazon will donate 0.5% of the price of your purchases to Spinal Cord Injury Association of Illinois whenever you shop
AmazonSmile. Visit
www.smile.amazon.com/ch/36-3149036 and select SCIA as your charity of choice. Its easy and won't cost you a penny!
SCIA is a member of the Combined Federal Campaign, an employee giving program. Campaigns are currently going on, so ask anyone you know who works for the federal government, including your mail carrier or anyone in the military, to consider designating SCIA as the recipient of their contributions. Our ID number for federal government employees is 48552.
*Remember SCIA when making any memorial contributions or honoring birthdays, weddings, graduations, or other special occasions. Contact us for memorial contribution envelopes.
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New Children's Book Helps Explain Why Dad Is In A Wheelchair
Author Leslie Johnson wrote a book when his son asked him why he was in a wheelchair. Check it out below!
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RIC SCI Research Study
RIC Research Assistant Weena Dee is recruiting for a SCI research study with Dr. Ming Wu that involves body weight treadmill training with a chronic incomplete spinal cord injury. The study will be one day short term study for 3 hour testing session (compensated $40) and the long term study which will start in mid October. Training sessions are compensated $10 each.
Inclusion criteria:
- Incomplete SCI: ASIA levels C or D.
- Ages 16-65
- Medically stable with medical clearance to participate
- Level of SCI: C1-T10 *Needs to be an UMN injury (spasticity present)
- Chronic: > 12 months from initial injury
- Passive ROM WFL of ambulation (ankle DF = neutral; knee flexion: 0-120; hip flexion: 90 deg; hip extension: 10 deg.
- Able to ambulate overground with assistive devices as needed
- Orthotics that do not cross the knee (AFO's only)
- Gait speed between 0.2 m/s and 1.0 m/s
Exclusion criteria:
- Unhealed decubitus ulcers
- Infections
- Severe CV or pulmonary disease
- Concomitant central or peripheral neurological injury (i.e. TBI or peripheral nerve damage of LE's)
- Hx of recurrent fx's and/or known orthopedic problems in LE's.
- Undergoing current PT
- Unable to tolerate 45 min of treadmill walking with PBWS
- Unable to provide informed consent.
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News From New Mobility
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A recently published study reports partial neurological recovery in eight complete paraplegics with injuries ranging from three to 13 years. The study combined movement, immersive virtual reality training and an EEG-controlled lower limb exoskeleton that provided tactile feedback to participants. All eight people experienced significant improvement in their ability to perceive sensation and exert voluntary motor control below the original SCI.
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One of our most popular Facebook posts this month was a
photo of an illegally parked motorcycle toppled by a van deploying its lift. After all the "likes" and LOLs cheering this moment of swift justice, some commenters wondered what can really be done about all those jerks who park in disabled spots "for just two minutes." We found seven impressive answers, including a Russian initiative that plays a talking hologram of a wheelchair user if your
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The best hemorrhoid is the one you never get, and you can reduce your risk of this troublesome SCI complication.
Prevention starts with a diet high in fiber and rich in flavonoids. Treatment is more complex, ranging from changes in your bowel program to surgery. As always, check with your doc if you have rectal bleeding, chronic constipation or dysreflexia related to hemorrhoids, but first - read this article.
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Apply for the 2017 AAPD Summer Internship Program
AAPD is now accepting applications for our 2017 Summer Internship Program. The program places college students, graduate students, law students, and recent graduates with all types of disabilities in paid 10 week summer internships in Congressional offices, federal agencies, non-profit, and for-profit organizations in the Washington, DC area. DEADLINE TO APPLY: November 7, 2016 5pm ET
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Help Stop Medicare Cuts to Complex Rehab Technology Critical to People with Disabilities
Medicare is planning to cut funding on January 1, 2017 for specialized wheelchair systems needed by people with complex disabilities. There is legislation in Congress, H.R. 3229 and S. 2196, with strong bipartisan support that will prevent these funding cuts and thereby protect access for the people who rely on this specialized equipment each day. Congress must take action now to stop these Medicare cuts. Read more HERE.
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Youth in International Development and Foreign Affairs internship program
The summer 2016 internship program will bring a group of talented U.S. citizen graduate students, recent graduates, and rising college juniors and seniors with disabilities from across the U.S. to Washington, DC, for nine weeks. This will include a one-week training and orientation program followed by an eight-week internship at an international organization in the Washington, DC, area.
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Tele-Health
United Spinal wants to better understand how SCI persons utilizes Tele-health applications. They are interested in very general information such as:
- How often you have used Telehealth in the past year
- What your experience has been (good, bad, or indifferent)
- Any examples of how it contributed to your health improvement
United Spinal would like to use this information in a roundtable discussion with the members of our Corporate Advisory Council to illustrate the importance of this technology for our community.
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November is Bladder Health Month
Bladder health is an important public health issue that deserves greater visibility and public discourse. Bladder diseases and conditions such as urinary incontinence, overactive bladder, interstitial cystitis, urinary tract infections, urotrauma and bladder cancer - significantly reduce health status and quality of life for tens of millions of Americans who are affected. These complex health conditions result in U.S. costs that are estimated to exceed $70 billion each year. They also can contribute to decreased physical activity, depression, social isolation, falls, sexual dysfunction, loss of self-esteem, hospitalizations, nursing home admissions and even death.
Patients, physicians, and caregivers have a deep understanding for how increased awareness can foster open communication and reduce stigma while empowering providers and patients to have critical conversations about bladder health. Currently, our community is working to overcome awareness barriers by seeking a Senate companion measure to House Resolution 703, expressing support for the designation of November 2016 as "National Bladder Health Month." https://www.congress.gov/114/bills/hres703/BILLS-114hres703ih.pdf
With this increased recognition, our goal is to reduce the stigma associated with bladder conditions, and start conversations between consumers, patients and their physicians that will lead to treatments and an improved quality of life.
https://www.unitedspinal.org/action-center/
Find Your Senator here and add your personal story
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Camping and Outdoor Activities
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Chicagoland Adaptive Climbing Club
Learn to climb or improve your skills. This program is open to anyone with a primary physical disability. Adaptive equipment, instruction and support are available to make your climb a success. All skills levels are welcome!
Vertical Endeavors
246 Windy Point Drive
Glendale Heights, IL
6:00-9:00 pm
1st and 3rd Mondays of each month
Maggie Daley Park Chicago
337 E. Randolph Street, Chicago
6:00-9:00 pm
2nd and 4th Mondays of each month (Starting June 13)
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SportsAbilities
SportsAbilities is all about getting relevant information to people with disabilities whether that means access to resources, events to help people stay active, or news articles. There national calendar has events from all over the country but you can find out about specific events in your area by visiting the website and clicking on your state under the calendars tab.
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IZ Collection: Clothing to make wheelchair users feel amazing
Make sure you use the coupon code IZFIRST20 at checkout!
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RIC Adaptive Sports Program
The RIC Adaptive Sports Program offers eleven different sports programs. They offer Archery, Boccia, Cycling/Road Racing, Wheelchair Basketball, Golf, Sled Hockey, Wheelchair Softball, Wheelchair Rugby, Military Sports Program, Caring for Kids, Junior Competitive Sports and Rock Climbing.
These programs are open to anyone with a disability.
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SCI Support Groups:
For those who are injured and their families.
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Advocate Christ Medical Center
Spinal Cord Injury Peer Support Group
4440 W. 95th Street
Oak Lawn, IL 60453
Tuesday, October 25, 2016 5:00 pm
Refreshments served
Community Room- Rm 0111B
Ground Floor of Outpatient Pavilion
next to
Guest Services
Contact Mercedes Rauen at SCIA
Marianjoy Rehabilitation Hosptial
Lives In Motion
26W171 Roosevelt Road
3rd Floor Gym
Wheaton, IL 60187
Brookfield Zoo Outing!
Contact Monica Blaauw for meeting dates and locations
Rehabilitation Institute of Chicago at Homewood
1055 W. 175th Street, Homewood, IL 60430
Meets 4th Wednesday of the month at 6:00pm
or
Brenda Canning at 312-238-1137
SCI Support Group Rockford IL
Van Matre Rehab Hospital
950 S. Mulford Road
Rockford, IL 61108
Outpatient Gym
Meets the second Wednesday of each month @ 6:00pm
S.C.I.P Support Group
Champaign, IL Area
217-419-8855
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Hope Clinic Support Group
3137 Woodward St
Springfield, IL
Contact Christie Davis for more information
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SCIA Board of Directors
President
Steve Burns
Vice President
Beth Gorman
Secretary
Stacy Berendt
Treasurer
Patricia Genardo
Directors
William Bogden
Patricia Collins
Colleen Glucksmann
Stephanie Krakauer, PT
Annie Krueger
Sarah Milcarek
Patricia Mucia
Jurate Neuman
Mike Pigoni
Chirag Shah, M.D.
Medical/Scientific Advisory Board
Roy Adair, M.D.
William Adair, M.D.
David Chen, M.D.
Michelle Gittler, M.D.
Jeffrey Oken, M.D.
Lawrence Vogel, M.D.
Staff
Mercedes Rauen, Executive Director
Kimberly Houston, Administrative Assistant
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The SCIA newsletter is an informational resource only. SCIA neither endorses nor recommends services provided by any of the sources listed therein.
SCIA Newsletter edited by Kimberly Houston.
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