University College o
f London (UCL) and Hope for HH are pleased to organize the 3rd Annual International Symposium for Hypothalamic Hamartomas Sept. 15-16 in London, UK where the world's foremost experts on HH neurosurgery, neurology, endocrinology, neuroradiology, genetics, and basic research will join together to create a 5-10 year research roadmap for HH.

The timing is prescient with new genetic discoveries and new interventions including focused ultrasound on the horizon.

And on Sept. 17, UCL and Hope for HH will present a Professional Symposium targeting UK and European neurologists, pediatricians, nurses, neurosurgeons and other healthcare professionals who treat p atients with hypothalamic Hamartomas to provide information concerning diagnosis, treatment and management.  


UK  & EU families - please share the  Symposium information  with your healthcare  p rofessionals 
and encourage them to register and attend! 

How long Do Run Down Seizures Last Post Surgery?
Please join the Rare Epilepsy Network - a database where all patients and caregivers can input answers to critical questions like "run down" seizures frequency following surgery. Then researchers can access the information to identify patterns. We are standing by to help you - contact us here . 
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Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

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