September 2016 Newsletter II: Bring It Home! Strategies to Work with Your Local Policymakers on Hepatitis B
Sept. 29 Webinar: Bring it Home! Strategies to Work with Your Local Policymakers on Hepatitis B
Please join the  Hepatitis B Foundation  and the  Association of Asian Pacific Community Health Organizations (AAPCHO) on  Thursday, September 29, 2016 from 3:00 PM to 4:00 EDT  for a webinar on Hepatitis B Local Advocacy Strategies!
 
In the United States, up to 2.2 million Americans are living with chronic hepatitis B, a disease that is silent and largely undiagnosed. It is important that advocates, including community organizations, health professionals, and individuals, know about current issues impacting hepatitis B policy and educate their policymakers about hepatitis B-related health disparities.
 
Join us for this interactive session to discuss advocacy strategies at the city and state levels on policies that impact hepatitis B, including best practices from New York City's hepatitis B advocacy initiatives.

* Be sure to register early, space is limited. A confirmation email with information on how to join the webinar will be sent to you after you register.

Be a Part of the Hepatitis B Foundation Storytelling Project!
The Hepatitis B Foundation and the Association of Asian Pacific Community Health Organizations (AAPCHO) are partnering with StoryCenter to launch a Hepatitis B Storytelling Project!
 
We recognize that engaging community members in speaking out about obstacles to hepatitis B screening, prevention, and care is essential to reducing stigma, encouraging screening, and improving services for those living with hepatitis B.

The Hepatitis B Foundation is committed to representing a diversity of people and perspectives with this project. We're looking for women and men 18 or older who are willing to attend a four-day digital storytelling workshop, share a unique, personal story as a short video, and become a champion in their local communities to publicly share the collection of stories.  We're seeking stories that can include:
  • living with HBV - successes, challenges, stigma/discrimination, hopes, fears
     
  • being a family member of someone living with HBV
     
  • adopting a child with HBV (choosing a child with HBV)
     
  • mother-to-child HBV transmission
     
  • HBV-related liver cancer and/or a liver transplant
     
  • vaccine success in preventing HBV (perinatal, child/teen, or adult)
     
  • how HBV has impacted families across generations
     
  • HBV-related treatment success and/or experiences with clinical trials
To learn more about the project or if interested in signing up to participate in the digital storytelling workshop, please visit the project website and complete the storyteller information packet.

Additional information can be found from our webinar

Please feel free to contact Kate Moraras at Kate.Moraras@hepb.org with any questions. 
Update from HHS Office on HIV/AIDS and Infectious Disease Policy
Viral Hepatitis Community Action Webpage

OHAIDP enhanced HHS.gov/hepatitis so that it will include a new Viral Hepatitis Community Action page. You can read the newly released report on the Community Response to Viral Hepatitis, which includes over 70 examples of what partners are doing to address viral hepatitis across the nation. 

Updated National Viral Hepatitis Action Plan 

OHAIDP and the Viral Hepatitis Implementation Group are working to update the national Action Plan to describe goals, strategies, and efforts to be undertaken from 2017 to 2020. The updated plan will be released in October 2016, so stay tuned for more information soon. 
Sept. 27 Webinar: HBV in African Communities: An Overview of HBV Prevalence and Barriers to Addressing the Virus
HRSA Office of Regional Operations/Region X (AK, ID, OR, and WA), International Community Services (ICHS), and the Hepatitis Education Project (HEP) present a webinar on "HBV in African Communities: An Overview of HBV Prevalence and Barriers to Addressing the Virus" on Tuesday, September 27, 2015 from 10:00am-11:30am PST (1:00-2:30pm ET). 

The webinar will include an HBV Overview and discussion on HBV in African Immigrant Communities. 

Join here and enter your name as "guest" 

Great Reads!
Lay Health Worker Improved Compliance with Hepatitis B Vaccination in Asian Americans: Randomized Control Trial
This study evaluated the effect of a lay health worker telephone intervention on foreign-born Asian Americans and the completion of a series of HBV vaccinations in the Baltimore-Washington Metropolitan area. The intervention was a success to increase HBV vaccination rates. the study suggests that a culturally integrated intervention program may be useful to reduce liver cancer disparities from chronic HBV in high risk Asian Americans.



Chronic hepatitis B in Korean Americans: Decreased Prevalence and Poor Linkage to Care
This study focused on HBV prevalence and evaluated linkage to care in Korean Americans to reduce HBV impact in a high risk community. The researchers found that prevalence in Korean Americans is significantly lower than what is currently understood. The findings also suggest that there is poor linkage to care. 



Sliding Down the Cascade of Care for Chronic Hepatitis B Virus Infection
Those who suffer from chronic HBV have a high lifetime risk of developing liver failure, hepatocellular carcinoma (HCC), and liver-related death. HBV is most often symptomatic in people who were infected at birth. In addition, adults with high risk of HBV infection should be screened and vaccinated. It is essential that we provide linkage to care. 


 

1 in 12 Asian Americans

Did you know that 1 in 12 Asian Americans have Hepatitis B? Hepatitis B is common worldwide, especially in many parts of Asia and the Pacific Islands. In the US, Hepatitis B disproportionately affects Asian Americans and Pacific Islanders (AAPIs). While AAPIs make up less than 5% of the U.S. population, they account for more than 50% of Americans living with Hepatitis B. 

For the full infographic, click here or here for more Know Hepatitis B. 
Hep B United Coalition Partners Across the Country
Hep B United Partners
Community Partners: Asian American Health Coalition (HOPE Clinic). Asian American Health Initiative. Asian Health Coalition. Asian Pacific Health Foundation. Asian Pacific Community in Action. Asian Services in Action Inc. Center for Pan Asian Community Services(CPACS). Charles B Wang Community Health Center. Chinese American Medical Society - Greater Boston Chapter. CCACC Pan Asian Volunteer Health Clinic. Dallas Fort Worth Hepatitis B Free Project. Hep B Free Las Vegas. Hep B Free Los Angeles. Hep B Project. Hep B United Philadelphia. Hep B United Twin Cities. Hep Free Hawaii. Hepatitis B Coalition of WA. Hepatitis B Initiatives of Washington, DC. Hepatitis Education Project. Midwest Asian Health Association. New Jersey Hepatitis B Coalition. North East Medical Services. NYC Hepatitis B Coalition. NYU Center for the Study of Asian American Health (CSAAH).  Ohio Asian American Health Coalition. Project Prevention. SF Hep B Free. 
National Non-Profit Partners: Hepatitis B Foundation. Association of Asian Pacific Community Health Organizations (AAPCHO). Asian American Network for Cancer Awareness. Research and Training (AANCART). National Task Force on Hepatitis B. National Viral Hepatitis Roundtable.  Asian & Pacific Islander American Health Forum. Immunization Action Coalition.
Federal Partners: US Department of Health and Human Services (HHS). Centers for Disease Control and Prevention, Division of Viral Hepatitis, HHS. HHS Office of Minority Health. White House Initiative on Asian Americans and Pacific Islanders.

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