In light of CNNH's ten-year anniversary this past December, we have spent more time than usual reflecting on our
Core Values
and our organizational
Mission
. While we may have altered the wording, the essence remains the same:
patient care
. Making a difference in the lives of each patient we serve is why we started CNNH and why we are committed to its ongoing success. Additionally, we recognize the ongoing selfless dedication of family caregivers.
In this newsletter we have outlined some of the ways we are making improvements in our patient services. To ensure a quality patient and family experience, we have established the role of a patient care representative. Additionally, so we can better understand your needs and concerns, we have started a Patient/Parent Advisory Committee. Our new and improved website has launched, and we have stepped up our social media efforts to ensure you have information about developments in our organization and in the field of brain health. In the near future, we will be adding a patient and physician portal, and various scheduling enhancements.
While these service and delivery enhancements contribute to efficiencies and conveniences, we also want to stay focused on the work we do to advance patient care. We are honored to be a member of your families' medical "team" and want to share some of the work we are doing together each and every day. We established a "CNNH Champions" designation to highlight the successes of our patients and their families and we are proud to share the stories of two champions in this newsletter.
Our first story shares how one patient's mother championed federal legislation in support of chemical safety regulations. There is growing concern about the effects of environmental toxins on neurodevelopment, as recently outlined in a "call to action"
endorsed by the Child Neurology Society and many other organizations, scientists, and clinicians. This legislation, which may lead to a reduction in children with neurodevelopment disabilities, was recently signed into law by President Obama: all because of the efforts of CNNH mother and caregiver, Lisa Huguenin, Ph.D.
The second story shares the experience of Officer Bill Reed, who sustained a life altering head injury and the journey he and his family have experienced during his ongoing recovery. We are so proud of his progress and the determination that he and his wife have to move forward.
There are so many
inspiring stories to share: many more
can be found on our website
, and we encourage you to take a minute to read them. We feel that these stories of success are reflective of our Mission and how we strive to make a difference in the lives of every individual and their families.
