IFOPA Connection September Newsletter
September 2016 eNewsletter

Take a look at the new IFOPA Connection! 

This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.

IFOPA forges a path to connect the FOP community with the Midwest Family Gathering. Find out more about the event and get registration details. 
New Website on the Way

Watch for the launch of our redesigned website in October. We're making it easier for you to find the information you need and connect with resources, clinicians and the international FOP community.
Yahtzee is a Good Friend

Miriam Rocke shares the story of her service dog, Yahtzee. Discover tips for selecting a dog and learn about the important roles these remarkable animals can play in the lives of people living with FOP.  Read More >
IFOPA Leadership Develops Guidelines for Engaging Pharmaceutical Companies

Read more about new guidelines drafted to outline a preferred partnership approach with pharmaceutical companies and ensure the independence of IFOPA as a patient-centered organization. 
Fundraising Focus

Find out more about the Physical Freedom Festival, a fundraising event in Middletown, Conn., coming up on September 24th. This event is organized in honor of Holly LaPrade, a woman living with FOP, by her sisters. 

Another great event,  ZipperQ, will be held October 1st. You can support this event no matter where you live by buying raffle tickets for a Special Edition ZipperQ Jeep WranglerIn four years, this event organized by Amy and Jacob Gordon in honor of their son Zip, who has FOP, has raised more than $500,000! 
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IFOPA | +1(407) 365-4194 |   Email | www.ifopa.org