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SCLERODERMA FOUNDATION, OHIO CHAPTER
SEPTEMBER 2016
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JOIN ONE OF OUR SUPPORT GROUPS THIS FALL!
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September 13th is Capitol Hill Day!
On September 12-14th, two of our Ohio Members, Demi Trice and Kathie Schwartz, will be joining with others in the scleroderma community and
going to Capitol Hill. They will
meet with Senators and members of Congress to
share their personal stories of how scleroderma affects daily life
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According to the Scleroderma Foundation, "our combined advocacy efforts led to the recognition of scleroderma as a condition eligible for study through the Department of Defense (DOD) Peer-Reviewed Medical Research Program (PRMRP) in FY 2016.
Our legislative agenda for this session of Congress includes the following:
- Asking House Representatives to cosponsor the bipartisan Scleroderma and Fibrosis Research Enhancement Act (H.R. 3666).
- Identifying a Senate Republican to introduce a bipartisan version of the Scleroderma and Fibrosis Research Enhancement Act in the Senate.
- Ensuring the scleroderma research portfolio at the National Institutes of Health (NIH) can grow and advance by securing at least at $2 billion funding increase for NIH in FY 2017. *Ensuring scleroderma continues to be recognized as a condition eligible for research through the PRMRP in FY 2017."
Good luck, Demi and Kathie!
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ATTEND OR DONATE TO ONE OF OUR FUNDRAISERS!
September 24, 2016 - Ugly Dress Gala, Embassy Suites,
Columbus, OH
Check out the funny video of our entertainer below!
October 1, 2016 - Bowl for Scleroderma, Beaver-Vu Bowl, Beavercreek, OH
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Scleroderma Foundation, Ohio Chapter
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PATIENT EDUCATION
September 23-25, 2016
State Patient Education Conference
Embassy Suites,
2700 Corporate Exchange Drive,
Columbus, OH 43231.
Dr. M. Bashar Kahaleh, Dr. Soumya Chatterjee, Dr. Donald Kirby, Dr. Toufic Rizk, Dr. Robert Schilz, Dr. David Leader and Michelle Rinehart are the experts speaking at this event.
Thanks to our sponsors:
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 Gala
Join us for an evening of comedy magic, food and fun!
The "Ugly Dress" theme is taken from the book, "If You Have to Wear an Ugly Dress, Learn to Accessorize - Guidance, Inspiration and Hope for Women with Lupus, Scleroderma and Other Autoimmune Illnesses" by Karen Kemper and Linda McNamara. Karen Kemper, PhD, is an Associate Professor in Public Health Sciences and Graduate Program Coordinator at Clemson University. She is a scleroderma patient and she will be the honorary co-chair of the event.
Invited honorees of our Special Service Award
include Soumya Chatterjee, MD, MS, FRCP, and Ohio Senator Bill Beagle.
Comedy Illusion show will be performed by local celebrity, David McCreary, host of the Cash Explosion television show.
Tickets are $60 per person.
Tickets are discounted to $36 per person for those attending the State Conference.
See a Video of David performing here!
Gala is sponsored by:
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VIRTUAL SUPPORT GROUP
Cancelled for September. Please join us at the Ohio Patient Education Conference!
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Feel free to contact us with any questions at
866-849-9030.
We're here to help you!
Sincerely,
Tina Fellows
EXECUTIVE DIRECTOR
SCLERODERMA FOUNDATION, OHIO
"Most educational programs and fundraisers made possible, in part, by an unrestricted grant from Actelion Pharmaceuticals, U.S. Bayer HealthCare and Reata Pharmaceuticals."
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