The TDIMA and ATHN have customized the materials and tools used in the pilot program for future use. Individuals involved in the Wave One pilot and the NHPCC Quality Improvement Work Group reviewed the guide to recommend changes for further improvement. The Action Guide will serve as a resource for HTCs and regions to begin their quality improvement programs. The HTCs will be able to download and modify the materials that are relevant to their QI program.
Electronic improvement modules, which include videos, examples, templates and other resources, will be available to complement the Action Guide in September 2016, at www.clinicalmicrosystem.org.
The Action Guide will be available soon.
Join us at the ATHN Data Summit 2016,
October 6-7, to learn more about the NHPCC's quality improvement program
Learn firsthand from coaches and sites about their experience participating in the pilot program. Attend an interactive forum to discuss strategies and best practices to improve the transition from pediatric to adult care in the bleeding disorders community.
Data Summit Sessions Include:
Wednesday 4:15 PM - 6:15 PM
Focus groups with ATHN pilot coaches and pilot improvement teams - invitations forthcoming to everyone in this group
Thursday 8:00 AM - 12 PM
The NHPCC Quality Improvement Pilot Program: Reflections and Lessons Learned
Thursday 4:15 PM - 5:30 PM
Transition from Pediatric to Adult Care Strategies for Quality Improvement and Measurement of
Success
Friday 9:30 AM - 10:30 AM
National Hemophilia Program Coordinating Center: Increasing Quality Improvement Capacity at
the National and Regional Levels
Friday 10:30 AM - 11:00 AM
Quality improvement posters
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view the posters and talk to the pilot sites and coaches
Funded through HRSA cooperative agreement UC8MC24079
Correction: An earlier version of this newsletter incorrectly labeled Cincinnati Children's Medical Hemophilia Center in the Western region and the Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders in the Great Lakes Region. This version has been corrected. Cincinnati Children's Medical Hemophilia Center is in the the Great Lakes Region and the Center for Comprehensive Care and Diagnosis of Inherited Blood Disorders is in the Western region. Kara Garner, RN, MSN, NP is coaching with the Hemophilia Center of Western NY and Robert Fox is coaching with the Oregon Health & Science University. They were mislabeled in the earlier version.