Martine Elias, Executive Director
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The end of March brings the close of Myeloma Awareness Month, and it’s been a very busy one for everyone at Myeloma Canada. We have been very active in making myeloma matter and keeping you up date with various communications. That being said, I’ll keep my column very brief this month!
In this edition, I’d like to draw your attention to our new online resource centre: My Life. My Myeloma. This centre has been designed specifically for patients, putting you at the centre as you manage your myeloma.
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I look forward to seeing you at our upcoming 2019 Myeloma Canada National Conference, taking place at the end of April (27-28) in Toronto. Don’t delay, if you have not already done so, register now. Early bird pricing comes to an end on March 31.
Happy Spring everyone!
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Announcing our New, Online Resource Centre:
"My Life. My Myeloma."
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For Myeloma Awareness Month and in line with our theme “
Because Myeloma Matters
”, we’re thrilled to announce our new one stop,
online centralized resource centre for accessing the information and tools you need
to facilitate meaningful discussions with your healthcare team on managing your myeloma.
Myeloma Canada’s “
My Life. My Myeloma.”
resource centre has specifically designed, useful tools and materials like medical visit
Discussion Guides, tips and information on exploring treatment options
. It's a unique platform that walks you through difficult decision-making, features educational videos, and much more.
Our goal is to empower you to be an active participant in your healthcare so you can make informed decisions with your healthcare team…because it’s
your
life, and
your
myeloma.
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Clinical Trials as a Treatment Option
Are they right for you?
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Whether you’ve been newly diagnosed with myeloma or have experienced a relapse, clinical trials may represent an important treatment option in your healthcare plan. Clinical trials are a necessary and vital component to furthering research and developing new and effective drugs for improving your overall quality of life. They may also provide early access to new molecules or treatment combinations that may not otherwise be available.
Get access to everything you need to help you decide whether a clinical trial
is right for you. Check out our one-stop-source for all
the information you’re looking for:
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InfoGuide:
Clinical Trials as a Treatment Option
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Part I
- Participating in a Clinical Trial: Your Questions Answered
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Part II
- Participating in a Clinical Trial: Debunking Myths & Fears
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Whiteboard Video:
Multiple Myeloma Clinical Trials
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Visit our
Clinical Trials section
and find out more about clinical trials, eligibility, the approval process and your rights.
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Personal Clinical Trial Finder
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Try Myeloma Canada’s Personal Clinical Trial Finder! This simplified and easy-to-use tool allows you to receive email alerts on upcoming trials based on the stage of your disease, your place of residence and the clinical trial phase you are interested in.
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Survey on Pomalyst (pomalidomide):
For Patients & Caregivers
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Governments are making decisions about myeloma drug access, be sure your voice is heard. Myeloma Canada is seeking input on Pomalyst (polamidomide).
Complete one of our short surveys.
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Spotlight on
Jackey
LaBossiere
:
Becoming a Myeloma Advocate
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“Now that I see the full picture, I realized I should have sought medical attention sooner. I want everyone to know, and every doctor to understand how important it is to examine all potential possibilities further.”
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Join us for a great day of golf, networking and camaraderie at a beautiful private golf & country club near Montreal!
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Thursday, May 30, 2019
Summerlea Golf & Country Club
Vaudreuil-Dorion (QC)
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Lanaudière InfoSession (QC)
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Centre hospitalier de Lanaudière
Thursday, April 4, 2019
5 - 8 PM
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2019 Myeloma Canada National Conference for Patients & Caregivers
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Our annual, two-day conference is an important opportunity to get updates on the latest news in myeloma research, treatments and disease management.
This must-attend conference includes
practical breakout sessions
,
informational presentations from leading myeloma experts
and an opportunity to
meet and exchange with other patients, caregivers and health care professionals.
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Saturday, April 27 and Sunday, April 28, 2019
Radisson Admiral Hotel – Toronto Harbourfront
Toronto, Ontario
Register before March 31 and save $20!
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New InfoSessions - Save the Date!
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Yellowknife InfoSession (NT)
Friday, May 10, 2019
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Sydney InfoSession (NS)
Tuesday, May 21, 2019
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Charlottetown InfoSession (PE)
Saturday, May 25, 2019
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Cinco de Mayo
dinner party in Nanaimo (BC)
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This fundraiser is open to all Myeloma Support Group members as well as their family and friends.
When:
Saturday, May 4, 2019
(cocktails start at 5 PM)
Cost
: $20.00 per person (includes dinner and open bar)
To buy tickets,
contact Allison Jennings:
call 250 754-6822.
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6th Annual Lynn Rousseau
Memorial Golf Tournament
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When
: Saturday, June 1, 2019
(Registration at 12 PM)
Cost:
$125.00 (Golf and dinner included)
Click
here
for registration details.
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Regina (SK) and St-Jérôme (QC) InfoSessions
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On March 16, 2019, Myeloma Canada was in
St-Jérôme (QC) and Regina (SK) hosting InfoSessions for patients, caregivers and the medical community. Presentations by local experts included topics such as understanding myeloma and its management, new research in myeloma, treatment options, understanding the disease and its management and more. Thank you to everyone who came from near and far to participate in these events!
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Friday Night Fish Fry to Benefit the
Windsor-Essex Multiple Myeloma March
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When:
Friday, April 5, 2019, from 5 to 7 PM
Where:
Columbian Hall- McGregor, ON
See the menu and the price list
here
.
No reservation needed. Buy your tickets at the door.
519 982-5705
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Support Myeloma Canada’s mission in accelerating access to better care for Canadians impacted by myeloma. Your donation helps ensure that patients and their loved ones have better access to the information and support they need.
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