January 2018      
The MPN Communi ty Connection
Educating and Advocating on behalf of those affected by myelofibrosis,
polycythemia ver a, and essential thrombocythemia   
2018 Events

  Saturday
February 24, 2018  
San Antonio, Texas
Registration Open 
Speakers
Dr. Ruben Mesa
Dr. Jason Gotlib
Dr. Srdan Verstovsek
Dr. Laura Michaelis
Dr. John Mascarenhas
Dr. Jeanne Palmer
Dr. Robyn Scherber
Dr. Roger Lyons
 
Go To Registration
 
March
San Mateo, CA
 
April 27 
Nashville, TN
Dr. Michael Savona 
Vanderbilt University

May 31
Cleveland, OH
Dr. Aaron Gerds
Cleveland Clinic
 
June
Pittsburgh, PA
 
September
Chicago, IL

4th Annual Women & MPN Conference 
Following Day (1/2 Day) Pediatric/Young Adult

Coming in February's 
newsletter 

In the Trenches:

Dr. Michael Savona
Vanderbilt University


Upcoming Support Group Meetings 

January 18
Pittsburgh, PA   

February 3
Indiana

February 3
Albuquergue, NM

Stock Up on Healthy Foods this Winter

Heavier, warmer, spicier foods are a better fit in winter as they help to encourage this natural cycle of restfulness. Not so coincidentally, the food nature offers during this time of year gives us what we need, energetically and nutritionally.

8 Great Winter Foods:

Bok Choy:  High in Vitamin K which helps maintain blood and cardiovascular health.

Parsnips: Improved digestion, improved blood sugar and blood pressure levels  

Squash: Packed with Vitamin A, along with iron, potassium and a ton of fiber

Collard Greens: Eating this nutrient powerhouse may also help reduce your cancer risk as it contains compounds that help prevent cancer cell growth

Red Cabbage: Powerful antioxidants that can help reduce inflammation, eliminate free radicals and reduce your risk for early cell deterioration

Carrots:  Eat cooked to help the body more easily absorb their nutrients, especially in winter when the digestive tract can use an extra bit of warmup 

Sweet Potatoes:  Full of   B Vitamins, along with Vitamin C, beta-carotene, potassium, and calcium all of which are great for building bone, blood and immune cells
 
Cranberries: They offer edible salicylic acid which may prevent blood clots and eliminate cancer cells

   Information courtesy of ClassPass.com
Remembering Robert "Bob" Rosen

Robert Rosen,  Chairman & Founder MPNRF
In 2 005 , I met with the MPN Research Foundation for a pot ential job opportunity. Chairman Bob Rosen, Barbara Van Husen, President, and another Board member conducted the invigorating interview. The JAK2 Gene mutation had just been discovered and the energy and enthusiasm in the room was palpable. I was intrigued to say the least. A few months later I began my career there as Associate Director.

As Bob and I learned each other's work habits and styles, we eventually hit a stride that took the Foundation to new and rewarding places. On any given day, conversations centered on MPN science, fundraising strategies, children, and of course, how we cooked our chicken the night before.

I remember the early days at the office on the river. The logo on the front door said Bridge Development, and I always thought my job was a bridge to another calling. I loved the absolute freedom to be creative, launch a project, or find new ways to increase visibility. Bob never refused to hear me out, look at the facts and inevitably say, "Go for it." 

Our travels over the years to meet with donors and other potential partners always ended with a story to add to a growing list for a laugh or two later. I still laugh when I think about meetings he would request with me and Barbara, and we'd sit baffled that no one could quite remember why we were meeting.
In the Trenches: 
Dr. Jeanne Palmer, MD
Mayo Clinic, Arizona

Jeanne Palmer has been involved with the care of patients with hematologic malignancies for over ten years. She went to medical school at New York Medical College and did her internal medicine training at Columbia Presbyterian Medical Center. She went on to do hematology/oncology fellowship at Duke University Medical Center in Durham, NC. Her first position was at Medical College of Wisconsin in Milwaukee, WI.  After five years, she accepted a position at Mayo Clinic in Arizona, where she now serves as the Interim Program Director for the Adult Blood and Marrow Transplant Program. She has a special interest in treatment and bone marrow transplant for myeloproliferative diseases. 

Mayo Clinic performs more bone marrow transplants than any other center in the United States. It has performed nearly 10,000 stem cell transplants at its campuses in Arizona, Florida and Minnesota

Dr. Palmer will be presenting at our MPN Patient/Caregiver Program on February 24th in    San Antonio, Texas. 
Join Us in 2018 for a Patient/Caregiver Educational Program
MPN Advocacy and Education International is pleased to be able to bring MPN specialists and other guest speakers to our patient/caregiver educational programs this year.  We will introduce you to hematologists and researchers you may not be familiar with but are doing great work in the MPN Community. We are visiting new cities in hopes of reaching those patients who have little resources. We look forward to seeing you in:

San Antonio, TX
San Mateo, CA
Nashville, TN
Cleveland, OH
Pittsburgh, PA
Chicago, IL

Details on all events will be shared as they are finalized.  Visit our website for updates. 
Clinical Trials-News Updates

MPN Advocacy and Education International's website provides a comprehensive list of current clinical trials and research projects, as well as up-to-date news related to myelofibrosis (MF), polycythemia vera (PV) and essential thrombocythemia (ET).  Click the information below for the latest. 

Follow Us
Visit our blog Like us on Facebook Follow us on Twitter View our videos on YouTube