SDS Family Day
Saturday, October 14, 2017
Cincinnati Children's Hospital

Dr. Kas Myers, Dr. Akiko Shimamura, and the Shwachman-Diamond Syndrome Registry are sponsoring a Complimentary One Day SDS Family Day!!!

A Meet & Greet Luncheon for all families at 11:30 am courtesy of SDSF

 

 Program to run from 1:00 - 6:00 pm

 

  • Connect with other SDS families
  • Attend sessions led by leading experts on SDS:
    • Biology & Treatment
    • Bone Marrow Transplant & SDS
    • SDS Registry Updates
    • Adults with SDS
  • Complimentary Babysitting Services 
  • An Evening Event for all families

 

We encourage all families and pediatric and adult patients to attend. This will be a great opportunity to speak with SDS medical experts and to hear about the latest research.  Hope to see you there!!

Contact SDSF at info@shwachman-diamond.org if you have any questions.


Register for SDS Family Day by September 15th at: 2017sdsfamilyday.eventbrite.com 
Shwachman-Diamond Syndrome Foundation
FOUNDER: Joan Mowery 1994

BOARD OF DIRECTORS

Christine James, President
Joan Mowery, Vice-President 
Pamela Miller, Secretary
Bryan Sample, Treasurer
Ed Bickel, Creative Media Chair
Christian Del RĂ©, Communications Chair
Stephanie Gregoretti, Fundraising
Jenni Wachter, Webmaster
Nicole Shen, Membership

Other Amazing Leaders

Joyce Wall - Anna Angel Basket Coordinator
Maura Donahue - Advisor to the Board
Ed Turkaly - Advisor to the Board
Kim McDowell - Administrative Assistant and Bookkeeper

ATTORNEY: Ann Bodewes Stephens, Herzog Crebs

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If you'd like to share a fundraiser or some family news or updates, email Christian at  christiandelre@shwachman-diamond.org.

Have an article, update, or fundraising activity you would like to share in a future newsletter?  Email your story to: christiandelre@shwachman-diamond.org.

We would love to hear from you and share your stories!
Shwachman Diamond Syndrome Foundation
888-825-7373
info@shwachman-diamond.org
www.shwachman-diamond.org