This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
The IFOPA Celebrates 10th Anniversary of International President's Council
The IFOPA's International President's Council (IPC), founded in 2007, is a network of volunteers who are committed to helping their national and regional FOP communities by keeping FOP families connected and informed about treatments and research.