IFOPA Connection December e Newsletter
 December 2017 eNewsletter
 
This eNewsletter contains news and information for anyone living with FOP and those who care for them. This includes family and friends, caretakers, physicians, researchers and IFOPA supporters.
The IFOPA Celebrates 10th Anniversary of International President's Council

The IFOPA's International President's Council (IPC), founded in 2007, is a network of volunteers who are committed to helping their national and regional FOP communities by keeping FOP families connected and informed about treatments and research.
 
Connecting, Learning and Growing at the IFOPA's 2017 FOP Family Gathering

The theme of the 2017 FOP Family Gathering, which was held December 1-3 at the Palace Hotel in San Francisco, California, was "Connect. Learn. Grow."

Learn more about how families connected with one another and  learned about FOP care and potential treatments, including two active clinical trials. 
Your Year-End Gift Can Have Twice the Impact

With all the last minute details and errands to run, please make sure doubling your year-end gift to the IFOPA doesn't fall off of your list!

The match pool has grown to $45,000. Give now to have your gift matched dollar for dollar.
STAY CONNECTED:
 +1(407) 365-4194 |   Email | www.ifopa.org
 FOP Registry |  Donate