Dear Parents, Guardians and other Stakeholders,
We are writing to share with you an announcement about a new research study focusing on family quality of life among parents of individuals with intellectual disability in Illinois and Tennessee. Parents or primary caregivers/legal guardians who live in one of these states and have a son or daughter of any age with intellectual disability are eligible to participate.
If you are interested in learning more-or know of other families who may be interested-read the study description below and share this announcement with others. You can also read about this project at
www.wheaton.edu/FQOL-study.
We are sending out this announcement on behalf of the project team. Any questions about the study should be directed to Thomas Boehm who is the Ann Haskins Associate Professor of Special Education at Wheaton College. His email is
[email protected] and his phone number is (630) 752-5937.
Regards,
Wanda Thomas, Senior Vice President
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Dear Parents or Primary Caregivers/Legal Guardians,
We invite you to take part in a research study that focuses on family quality of life among parents with a son or daughter of any age with intellectual disability.
We are inviting hundreds of parents across Illinois and Tennessee to share their views in an anonymous survey. A link to the online survey, along with a description, can be found at: www.wheaton.edu/FQOL-study (print versions of the survey are available upon request).
Forty parents will be randomly selected to receive a $25 gift card (choice of Starbucks, Amazon, or Walmart) for completing the survey.
Additionally, we will gather what we learn into a helpful guide that we will make available for free to you, other families, faith communities, disability organizations, and service providers throughout Illinois, Tennessee, and across the country. We anticipate the survey should take about 30 minutes to complete.
***You can participate if you live in Illinois or Tennessee and are the parent or primary caregiver/legal guardian of an individual of any age with an intellectual disability.
The survey includes questions on the following topics:
You can skip any of the questions you prefer not to answer. And you can also change your mind about participating after receiving and reading the survey.
As you can see, we are interested in learning more about what contributes to quality of life for families touched by intellectual disability. We are particularly interested in aspects of social relationships and religion/spirituality.
For families with a child with intellectual disability, very little is known about these dimensions of life and how they may relate to family quality of life. For some families, religion/spirituality may be an important part of life; for others, it is much less-or not at all-important. Regardless of where your views fall on this topic, we strongly encourage your participation in this study. We want to hear from parents with all different views!
We encourage your questions about this project at any time by contacting Thomas Boehm at (630) 752-5937 or
[email protected].
For additional information about giving consent or your rights as participant in this study, please feel free to contact the Vanderbilt University Institutional Review Board Office at (615) 343-4138 or toll free at (866) 224-8273.
Thank you for considering this invitation!
Regards,
Thomas Boehm, Mark Hiben, Madeline Hazel, Shimmy Gajjar, & Erik Carter
Disabilities, Religion, & Spirituality Program at Vanderbilt Kennedy Center, Vanderbilt University
How Can You Participate in this Project?
If you cannot access the survey online, you can also request a printed copy by sending an e-mail to Thomas Boehm at
[email protected], calling him at (630) 752-5937, or sending the following information by mail: Your Name, E-mail, Street Address, City, State, Zip Code, Telephone #.
Mail this information to: Thomas Boehm, Education Department, 501 College Ave., Wheaton, IL 60187-5593.
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