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Upcoming Events
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June 23, 2016
Boston, MA
Speakers:
Dr. Gabriela Hobbs, MD
Massachusetts General Hospital
Dr. Raajit Rampal, MD
Memorial Sloan Kettering
Dr. Nicole Kucine,
MD,MS
New York Presbyterian Hospital/Weill Cornell Medicine
Dr. Laura Michaelis, MD
Medical College of Wisconsin
Dr. Ann Mullally, MD
D
ana-Farber/Brigham and Women's Cancer Center
......
September 30, 2016
Women & MPN
New
York City
Keynote Luncheon Speaker:
Dr. Gail Roboz, MD
Weill Cornell
Dr. Ruben Mesa, MD
Mayo Clinic, Arizona
Dr. Laura Michaelis, MD
Medical College of Wisconsin
Dr. Alison Moliterno, MD
Johns Hopkins School of Medicine
Dr. Raajit Rampal, MD
Memorial Sloan Kettering
Visit our Events
Webpage
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Coming Next Month in
MPN Community Connection
ASCO Update
In the Trenches:
Dr. Ross Levine, MD
Memorial Sloan Kettering Cancer Center
Jean Diesch
Patient Support Group Coordinator
Wayne Erickson
Vietnam Veteran/Patient
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Are you asking your Hematologists the right questions?
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Our website provides a comprehensive list of questions you should ask your hematologist including:
How many MPN patients do you see?
What kinds of treatments are available?
Am I a candidate for a clinical trial?
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Immune Booster
S
m
oo
thie
Using the spices mentioned in April's newsletter, the recipe below is the perfect smoothie to help with blood flow and keeping your energy level up.
1 banana
1/2 cup frozen strawberries
1/4 cup coconut or almond milk
8 oz. plain yogurt
1/2 avocado
1 tsp cinnamon
1/2 tsp tumeric
1/2 tsp cumin
honey to taste
Enjoy!
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Robin Roberts Joins Us in NYC
for the 2nd Annual
Women & MPN Conference
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On Friday, September 30, 2016, MPN Advocacy & Education International will host its 2nd annual Women & MPN Conference in New York City. We are thrilled to have Robin Roberts join us as our keynote speaker for this timely and informative program.
Roberts was diagnosed with breast cancer in June 2007. Five years later she was diagnosed with MDS or myelodysplastic syndrome, a disease of the blood and bone marrow once known as pre-leukemia. Roberts underwent a bone marrow transplant in September of that year. She was honored with a George Foster Peabody Award, Gracie Award and CINE Award for "Robin's Journey," reports on her MDS that inspired hundreds of potential bone marrow donors to register. Additionally, Roberts was recognized with the Arthur Ashe Courage Award at the ESPY's in July 2013.
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Dr. Gabriela Hobbs, MD
Massachusetts General Hospital
Dr. Gaby Hobbs is currently an Assistant in Medicine at Massachusetts General Hospital and an instructor of Medicine at Harvard Medical School in Boston, Massachusetts. She was born and raised in Mexico City and moved to the United States for college. Dr. Hobbs completed her undergraduate degree in biotechnology and psychology at Tufts University and then attended medical school at Mount Sinai School of Medicine in New York. Her residency training in internal medicine was at Brigham and Women's Hospital in Boston, MA. She completed her fellowship training in hematology and oncology at Memorial Sloan Kettering Cancer Center in New York City. Her mentor at MSKCC was Dr. Ross Levine. Dr. Levine is a leader in the field of MPN research and his guidance was crucial to setting Dr. Hobbs on the path to becoming a clinical investigator in the field of myeloproliferative neoplasms.
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Susan: An Interview with a Caregiver
How has your loved one's MPN diagnosis impacted your life?
My husband was diagnosed 15 years ago while we were in our mid 30's and the only information that was obtainable at the time was grim. Needless to say, there were tears in the beginning...questions like, will he walk our then 6 year old down the aisle when she gets married? Will I be a widow before my 50's? However, as the information and medical treatments improved, so did our attitude towards the MPN's. In a way, our lives are so much more rich due to him having this disease. We celebrate the little things more and don't sweat the small stuff. Work isn't the driving force behind our partnership, it's quality family time. We now have two kids in college but remain incredibly close to them at all times. We founded a support group and truly care about each of the 100+ members in this group, some of the members are as close as family members to us.
Do you feel like you had the knowledge and resources you needed to navigate the various challenges of dealing with this diagnosis?
Fifteen years ago, there wasn't all that much information in terms of support around MPN's. But now, thanks to the MPN Research Foundation and MPN Advocacy and Education International, we feel like the information and support are just a click away. Our support group meetings have been invaluable to me in terms of learning more about the disease and talking with other caregivers on how to continue to support our loved one.
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Clinical Trials: Current Open Trials for MF, PV and ET
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Did you know the National Institutes of Health (NIH) provides a comprehensive list of public and private clinical trials on their website?
Navigating their search page can be confusing. However, if you create the right search terms it can prove to be very helpful in determining the trials that best fit your needs, including searching specific medications, age parameters, and locations. To learn more about searching clinical trials click on the titles below.
To find all the "open and recruiting" clinical trials for each illness, click on the name below.
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