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Where Does Epilepsy Come From?
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 WEBINAR TODAY!! November 21, 2014  12pm-1pm Understanding the biological and neurophysiological causes and contributors to generating seizures can help empower patients. This webinar will explore and explain genetic, metabolic, structural, electrical and other sources of seizures, and how such information can help inform treatment and other interventions.
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Candlelight Concerts to Benefit EFNJ
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The Candlelight Concert Series for Epilepsy Awareness is a concert series in Pennington, NJ designed to raise awareness about epilepsy. It's grown out of a very popular house concert series and is now held at Trinity United Methodist at 1985 Pennington Rd, Ewing NJ. When you purchase your ticket using Paypal below, you will be added to the list; no physical tickets are printed or sent. You can bring you receipt to be safe. All shows are general admission. For more on this series, check out this article from The Times of Trenton here. The Epilepsy Foundation of New Jersey will be on-hand for most of these events to provide information and accept donations.
Tickets and info at http://www.candlelightconcert.org/
Next Concert is January 10, 2015
ALL STAR TRIBUTE TO SAM COOKE
featuring
Gary U.S. Bonds
Sarah Dash(LaBelle),
Doug Wimbish (Living Colour),
Jeffrey Gaines,
Chris Trapper,
Paul Pesco (Hall & Oates/Madonna),
Danielia Cotton,
Lili Anel
Carsie Blanton
and more!
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"Search for the Next Medikidz Star" Contest Launches for Kids with Epilepsy
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Do you or someone you love with epilepsy want to be a superhero? Have you or that special someone overcome an obstacle due to living with epilepsy?
As part of Eisai's commitment to education about epilepsy and reducing stigma associated with the disease, Eisai has partnered with Medikidz to launch the contest, "Search for the Next Medikidz Star." Children between the ages of 13 and 18 years old who have been diagnosed with epilepsy by a health care professional are encouraged to enter the contest. Entrants must register by December 31, 2014 and submit a short inspirational (up to two minute) video describing how he or she has overcome obstacles associated with the condition and why he or she should be chosen to be the next Medikidz star. The winner will be announced in January 2015.
Eisai is also announcing the availability of the second book in the "Medikidz Explain Epilepsy" comic book series, titled "Medikidz Explain Seizure Assistance Dogs." The series is designed to help young people understand illness and medical concepts.
Visit www.medikidzcontest.com today to enter the contest, review the rules and obtain a free copy of "Medikidz Explain Seizure Assistance Dogs." Don't delay - the contest entry period ends on December 31, 2014!
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| FRN Health Insurance Navigator Program |
The Family Resource Network, of which EFNJ is a part, has been named one of four "navigator organizations" in NJ for the purposes of the Affordable Care Act. FRN staff have been covering multiple events in Middlesex, Monmouth, Mercer and Ocean Counties. Individuals seeking health insurance can reach us at 800-355-0271 (toll free) or www.frnnavigator.org.
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Project Healthy Bones for Epilepsy: A Research and Wellness Program
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Project Healthy Bones (PHB) is a 24 week exercise and education program for older men and women who have osteoporosis or are at risk of developing the condition. It is based on Tufts University Research that shows strength training exercises helps preserve bone density. PHB was developed by the NJ Department of Health and Senior Services alongside physical therapists specializing in osteoporosis. Professor Mary Wagner has initiated a Project Healthy Bones class to meet once a week, specifically tailored to patients with epilepsy. More information
Our program's sessions will be on Fridays from6:007:15 PM at Robert Wood Johnson Fitness Center, in the Community Education Room. (Day and time may change based on best time for group)
Address:
100 Kirkpatrick Street, 2nd floor (Suite #201)
New Brunswick, NJ 08901
732-873-1222
Parking: Is Free! Entrance to the Wellness Plaza Parking Deck is on Paterson Street between Joyce Kilmer and Kirk Patrick Street
Cost: Class and materials are free. Participants should purchase their own weights.
For more information, Contact:
Professor Mary Wagner, Pharm.D. by Email: [email protected] or leave a message with Janice Weinstein at 848-445-6815
Sandhya Balachandar by Email: [email protected]
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Scientists Discover New Gene for Devastating Form of Epilepsy
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 Medical News Today
Using whole genome sequencing, a large group of scientists has identified a new genetic cause of progressive myoclonus epilepsy, one of the most devastating forms of epilepsy that emerges in early childhood and can result in early death.
The international team - including members from the University of Helsinki in Finland and the Universities of Melbourne and South Australia - report their findings in the journal Nature Genetics.
Progressive myoclonus epilepsies (PME) are severe, rare forms of epilepsy and frequently arise from hereditary metabolic disorders. Their core symptoms include epileptic seizures and debilitating involuntary muscle twitching. Muscle rigidity, unsteadiness and mental deterioration are often also present.
Continue reading
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Investigational Medication Used to Resolve Life-Threatening Seizures in Children
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In its first clinical application in pediatric patients, an investigational medication developed and manufactured at UC Davis has been found to effectively treat children with life-threatening and difficult-to-control epileptic seizures without side effects, according to a research report by scientists at UC Davis and Northwestern University. The investigational formulation of allopregnanolone was manufactured by UC Davis Health System's Good Manufacturing Practice Laboratory. Two children were treated with the allopregnanolone formulation, one at UC Davis Children's Hospital, the other at the Ann & Robert Lurie Children's Hospital in Chicago. Both children were weaned from general anesthetics and other seizure treatments and their seizures resolved. In both instances the children are recovering.
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Planned gifts, for example bequests in your Will, are the ultimate expression of your commitment and caring - an opportunity to invest in the shared vision of a world in which everyone with epilepsy enjoys the freedom to participate fully in life.
While you feel strongly about supporting our critical work, we realize that your primary concern is for the financial security of your family and other loved ones. Fortunately, there are many ways for you to put your family first and make a gift to the Epilepsy Foundation of New Jersey.
A variety of assets and investment vehicles qualify as planned gifts, each offering unique benefits for you. Be sure to consult your legal and financial advisors to select the option that best meets your financial planning objectives. Your planned gift gives you a special connection with the Epilepsy Foundation of New Jersey. You will help those touched by epilepsy-for now and for years to come. Visit our website
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