Family Fun Walk & Sanctioned 5K

Saturday, October 18, 2014
Liberty State Park
Jersey City, NJ

Benefiting The Epilepsy Foundation of New Jersey

           

Join the Epilepsy Foundation of New Jersey as we raise awareness and dollars to provide education, recreation, and support to individuals living with epilepsy in New Jersey. 

For more information visit www.glowwalkrun.org

Registration onsite.

Click here to donate

Nearly 120 volunteers, staff and supporters gathered at the NJ Law Center for the Annual Awards Dinner on Thursday.

Former Governor Richard Codey was saluted as "Legislator of the Year" for his effort on behalf of SUDEP (Sudden Unexpected Death due to Epilepsy) control.  In remarks, he pointed to the continued stigma facing people with epilepsy. 

EFNJ also awarded Dr. Madeline Badalaty for her generous donation of public service announcements on Comcast statewide as well as Island Beach State Park for 24 years of supporting the "Day at the Beach" event.  Park manager, Ray Bukowski excepted the award on the parks behalf.

 

If you're in NJ, Philly or New York, won't you support this series and this cause? Emily Kinney from TV's highest rated show The Walking Dead, Dan Reed of Dan Reed Network and Chris Barron of Spin Doctors performing their ...wonderful songs and telling stories in-the-round. Sofia Nicole opens the night with her brilliant voice. Epilepsy N.J. will be there. We'll have a young advocate Brittany Gresham speaking about her experiences with epilepsy. It's only $20 in advance - that's cheaper than a night out at the movies! A great night of music for a great cause - epilepsy awareness.

Tickets and info at http://www.candlelightconcert.org/

 

For most children there are many local opportunities for physical activity programs, however this is not always the case for children with epilepsy. "Get FIT Kids" is currently providing specialized fitness instruction and group programming to children with epilepsy and other developmental disabilities in the Red Bank area in a socially inclusive and safe environment. Weekly sessions are designed to build flexibility, balance and coordination while fostering listening and communication skills.

 

 To register your child aged 5-12, please contact Adeola at 609-392-4900.

 

Science Daily

Philadelphia, Sept. 25, 2014 - An international research team has identified gene mutations  causing severe, difficult-to-treat forms of childhood epilepsy. Many of the mutations disrupt functioning in the synapse, the highly dynamic junction at which nerve cells communicate with one another.

 

 

 

Science Daily

 

The omega-3 fatty acids found in fish oil are able to cross over from the bloodstream into heart cells where they work to stabilize heart rhythm and protect against heart attacks.

 

This is particularly important for people with epilepsy because they have a significantly higher risk of having a heart attack than those without the condition.

 

And experimental research indicates that omega 3 fatty acids can also cross over into the central nervous system, where they reduce the excitability of brain cells which trigger seizures.

 

But previous research looking at the impact of high dose fish oil on seizure frequency in people whose epilepsy no longer responded to treatment, found that it didn't affect seizure frequency.

 

The researchers in the current study wanted to know what difference, if any, low dose fish oil made to seizure frequency and/or cardiovascular health.  Continue reading 

The professor of Health and Exercise Science at Rowan University in New Jersey is currently performing a research study to test the effectiveness of a nutrition and fitness mobile app that was developed for individuals with Intellectual and Developmental Disabilities (IDD) and their caregivers.  She needs to recruit 100 subjects who are at least 16 years of age to simply view a YouTube tutorial on how to use the app, download it, and fill out an online survey on their opinions of the effectiveness and ease of usage of the app.  Click here for the link to the YouTube video tutorial on the app. 

 

The app itself is website based and can be accessed via desktop or mobile at www.getfitmobile.com.  She  have also provided a link here to the informed consent form (that can be signed electronically) and the evaluation survey:

 

If you or anyone you know fit the study participation criteria (can range from ADHD, Asperger's, autism, etc.) please relay this information!! You can message me here on FB (www.fb.com/Barbara.Fralinger.21) or at [email protected] if you have questions!! Those who complete the survey will receive a $20 gift card. Is there anyone who would be willing to do this??"

 

Gather friends, family and co-workers for a fun event in support of the Epilepsy Foundation of NJ. Popular fundraisers in the past have included concerts, bar or restaurant outing, bake sales, etc.

We will gladly provide any information or promotional materials you may need for a successful event. Don't forget to share your success and photos from the event with us and we'll include you in our monthly e-zines!

 

In 2013, .95 cents of every dollar donated to the Epilepsy Foundation of NJ went directly to programs and services. Feel confident in donating the money you worked so hard to raise, we will spend it wisely to support individuals in NJ with special needs and their families.

Click here for some ideas.