Conversation with Dr. Mrinal Gounder on Sorafenib/ Nexavar Phase III Trial

Please be aware that NCI's Phase III trial on sorafenib is currently enrolling patients. Ultimately open to hundreds of institutions, patients will not have to travel far to participate in this trial.

In the first video below, we have a conversation with Dr. Gounder where he explains the details of the trial and how participating patients can help advance the field of desmoid tumor research through optional biopsies and questionnaires. In the second video, FAQ's about the trial are answered.

Special thanks to Dr. Gounder and Motus Video Design.

Dr. Gounder will be speaking at the DTRF Patient Meeting on 9/27 in Philadelphia. See below for registration details.

Sorafenib/Nexavar Trial - Interview with Dr. Mrinal Gounder of Memorial Sloan- Kettering

Information and FAQs on Sorafenib Trial (Slides)

Information & FAQs on Sorafenib Trial

View FAQ slides as a Word document here.

Register here for the DTRF Patient Meeting & Running for Answers 5K & Kids' Fun Run on September 27 & 28, 2014 in Philadelphia! At the Patient Meeting, you will learn about the latest research and treatment options for desmoid tumors. You will also have the opportunity to connect with other patients and caregivers confronted with similar challenges.

More information here:

Patient Meeting | Hotel Information (discount ends 8/27)

RFA Team Captains' Packet | RFA Kids' Fun Run

Event updates here! #runforanswers

Follow DTRF here, and join the conversation! #dtrf

This email is intended solely to provide general information for your reference only. Any information contained herein is not intended as medical advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action, and should not be used as a substitute for professional medical advice and services. Please do not delay in obtaining professional medical advice regarding your individual circumstances.