Free Air Transportation

If you cannot afford to fly commercially and are in need of medical treatments or consultations or want to attend our September Patient Meeting, DTRF has made special arrangements with Angel Flight East ("AFE"). Angel Flight East is a 501(c)(3) nonprofit organization dedicated to serving the community by facilitating free air transportation for children and adults with medical conditions who need to get to treatment away from home. This free air transportation is provided by volunteer pilots in private general aviation aircraft.

Free air transportation is available to residents of the following states traveling within the United States up to a maximum of 1000 miles: Connecticut, Delaware, Maine, Massachusetts, Maryland, New Hampshire, New Jersey, New York, Ohio, Pennsylvania, Rhode Island, Vermont, Virginia, and West Virginia. If you live outside of these states and still require assistance, AFE can connect you with another Angel Flight organization in your area. AFE does not provide emergency flights.

Mother, daughter and Angel Flight volunteer pilot

AFE will field requests from desmoid tumor patients for air transportation for medical treatments or consultations, as well as flight requests to/ from Philadelphia for DTRF's Patient Meeting and Running for Answers events on September 27- 28.

For more information about the organization, please visit www.angelflighteast.org. To submit a mission request, patients must call AFE directly at 215.358.1900, or emailmissions@angelflighteast.org.

Please note that submitting a flight request to Angel Flight East does not guarantee that one of their volunteer pilots will be able to accommodate the request. DTRF is not affiliated with Angel Flight East in any way and all requests will be handled directly by AFE in its sole discretion.

DTRF's Weekend in Philadelphia

We're 4 short months away from our Patient Meeting and Running for Answers 5K Run/ Walk & Kids' Fun Run on September 27 and 28! By attending this Patient Meeting, you'll be able to learn from experts in the field, and connect with other patients who are faced with similar challenges. There is no better place to get answers and information. We urge everyone to join us for this year's meeting.

View our distinguished speakers who will be featured at the Patient Meeting here.

Book hotel room at discounted rate here.

Read about last year's events here.

Join us for Lap4Life in Newburgh, NY

Lap 4 Life is a non- profit organization created to raise money and awareness for Desmoid Tumors and Organ Transplant Research. Eleven years ago, at the age of 30, Maddalena Reade's brother Angelo was affected by a desmoid tumor. After nine years of medical treatment and multiple surgeries with subsequent complications he was left with few options. A final attempt to remove his large desmoid required resection of his entire small intestine. Following this, he could no longer eat and was reliant on intravenous nutrition.

Six months later he received an intestinal transplant, a rare and risky procedure. Seven weeks after his transplant, he returned home to resume his life as a loving father and husband. Unfortunately, one week after being home, at the age of 39, he succumbed to an illness that his weakened immune system could not ward off.

In celebration of Angelo's life, mark your calendar for the 6th Annual Lap4Life at Chadwick Lake in Newburgh, NY on June 21, 2014. This is a wonderful event for the family, including a 4 mile run, walk and kids' fun run.

Register here today!

Follow DTRF here, and join the conversation! #dtrf

This email is intended solely to provide general information for your reference only. Any information contained herein is not intended as medical advice for any individual problem, or as a diagnosis, treatment plan, or recommendation for a particular course of action, and should not be used as a substitute for professional medical advice and services. Please do not delay in obtaining professional medical advice regarding your individual circumstances.