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ISSUE | APRIL 2014
 
Thank you for reading our April issue of Epilepsy News. We're dedicated to providing our readers with informative, exciting and interesting news related to epilepsy in NJ.

For a larger look at trainings happening around NJ, don't forget to check out The Training Calendar. If you have feedback regarding our e-zine or would like to contribute content, let us know!
*Epilepsy Advocacy Day Postponed*
EFNJ will be rescheduling the Epilepsy Advocacy Day that was scheduled for Thursday, April 17th because of a change in the legislative calendar.  The New Jersey Legislature will NOT be in session and our representatives will not be in Trenton that day. Please check www.efnj.com/advocacy for announcement of the new date.
Epilepsy Linked to Autoimmune Disorders

Analysis of U.S. insurance claims data on some 2.5 million people found that a diagnosis of epilepsy was nearly four-fold more common among those with autoimmune disorders, according to a report in JAMA Neurology.

Kenneth D. Mandl, MD, MPH, of Harvard Medical School in Boston, and colleagues, compared the presence of an epilepsy diagnosis in insurance plan members who had any of 12 autoimmune disorders listed in their records -- such as psoriasis, rheumatoid arthritis, or celiac disease -- versus other plan members. Continue reading

 
Paint the Pony Purple Tops $20,000
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Thank you to the generous support of this year's Paint the Pony Purple sponsors, performers, volunteers, and the 500 enthusiastic attendees, EFNJ raised over $20,000 to support epilepsy programs and services in NJ.

If you missed the event and would still like to contribute, you can make a donation, or purchase a t-shirt for a limited time.


Sponsors: Cyberonics, Lundbeck, CNNH, Northeast Regional Epilepsy Group, UCB

 

Performers: THE ROCKNROLLCHORUS, Chelsea Palermo, enjoy!, Sofia Nicole and the Laura Cheadle Family Band

 

Special Thanks: Carlo's Bakery of Red Bank, Cameo Cakes, Sofia Germana Murray, Danny Coleman, Ronnie Gantz, Helayne Van Sickle, Joe Powell and the AT&T Pioneers

 
Revised Definition of Epilepsy Announced
On Monday, the International League Against Epilepsy (ILAE) released its revised definition of epilepsy. Although a theoretical definition was created in 2005, the ILAE called for a second task force to form a more practical definite of seizures and epilepsy for doctors and patients to use. Read more
Latinos por la Epilepsia at Seaside Park Walk

On May 3rd, Latinos por la Epilepsia will be marching in the Walk for a Brighter Tomorrow in Seaside Park, NJ to benefit the Epilepsy Foundation of NJ. 

 

"Our team is made up of Latinos who either have epilepsy or know someone who does.  The goal is to bring epilepsy out of the shadows especially because in our Latino culture, it is still very much in the shadows and stigmatized. We need to make as much noise as possible to get Latinos who have epilepsy on the map!"  

 

Join or donate to the Latinos por la Epilepsia Walk Team.
 
Feeling inspired? Register your own team for the Walk for a Brighter Tomorrow!
Form of Epilepsy in Sea Lions Similar to That in Humans, Researchers Find

California sea lions exposed to a toxin in algae develop a form of epilepsy that is similar to one in humans, according to a new study. Every year, hundreds of sea lions wash up along the California coast, suffering seizures caused by exposure to domoic acid, a neurotoxin that can produce memory loss, tremors, convulsions and death. Domoic acid is produced by algae blooms that have been proliferating along the coast in recent years, accumulating in anchovies and other small fish that the sea lions feed on... Continue reading

 
Women's Caregiver Retreat Registration Now Open!!
Registration is now open for the 10th Annual Women's Caregiver Retreat. The day will be filled with dynamic speakers, health screenings, exhibitors, relaxation techniques, a healthy lunch, cooking demo, yoga, zumba and much more! The registration fee of $20 will cover a healthy breakfast, lunch, and all other activities. Continue reading
 
Friday, May 16, 2014
8:30 a.m. - 3:00 p.m.
Robert Wood Johnson Fitness & Wellness Center
Mercerville, NJ
 
Save the Date! Glow Walk Run at Liberty State Park
The Epilepsy Foundation of New Jersey will be holding a BRAND NEW family fun walk and 5k this October in Jersey City. We are in the planning phase and will be launching the walk website this month. We will announce registration information as soon as it becomes available.
 
For now, mark your calendars for October 18th and start thinking of costume ideas!

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